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Re: AdenomyosisI MIGHT BE ABLE TO HELP ATTN:KIM

From: yenta (anonymous@obgyn.net)
Thu Jan 28 11:06:28 1999


Dear Kim, I was dx'd with endo but not adeno. But I have also lost large amounts of hair -- so much that the plumbing guy has had to clear out the tub pipe a couple of times!!!Found LOADS of hair in the drain! Is it possible that endo also causes this hair loss? Yenta

At Thu, 28 Jan 1999, anonymous@obgyn.net wrote: >
>adenomyosis is a disease of the uterus that affects the walls and glands of
>the uterus, it causes heavy bleeding and there is no real cure for this other
>than having your uterus taken out. Adenomyosis is not a well known disease
>either, and can confuse other symptoms like in my case. A year after my 4th
>child was born i started to experience very bad cramps at the time of my
>cycle, lower back pain and bowel problems i tryed to get answers from 3
>different doctors and they all had different answers. One doctor said i had a
>tired womb and should consider a hysterectomy and this was without even doing
>extensive tests. Another doctor said i would suspect u had endometriosis
>however u are bleeding heavy every month so i dont think its that, again no
>testing. Finally i went to a female gyn specialist and she said she could
>feel something but i was too young to have a hysterectomy, by now i was 33yrs
>old and very unwell. So i went unchecked, and become more ill by the month, I
>wont go into all the details as its a long story but 6 weeks ago i had a
>radical hysterectomy and the doctor found that my ovaries were diseased with
>chocolate cysts i was in phase 4 of endometriosis which had adhered to my
>bowel/bladder and stomach and when the pathology report came back it was then
>known that i also had adenomyosis (my uterus was the size of a 6 month
>pregnancy). This has had a devastating affect on me as a mother and wife in
>more ways than i can say, and i might also add that i also have suffered hair
>loss over a long period of time begining at the time my symptoms became
>noticable . I will help you in anyway i know how as i would not want anyone
>else to go through what i have been through. Please do not hesitate to contact
>me at anytime kind regards kim :)




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