 |
 |
 |
|
|
|||
|
|
||||
|
||||
|
|
Re: adhesion pain-HELENFrom: Toni (anonymous@obgyn.net)Sat Jan 23 20:15:34 1999
At Sat, 23 Jan 1999, Christine wrote: > >At Sat, 23 Jan 1999, Helen wrote: >> >>Chris, >>It was an endo specialist that told me that the chronic pain that I had >>been having for the past 27 years "sounded more like adhesions than >>endo." He gave me the benefit of the doubt and scheduled a diagnostic >>laparoscopy. He was right!! Massive adhesions the full length of the >>surgical scar from a laparotomy in 1970!!! >> >>For 10 days after the surgery I felt like myself again...BUT...on the >>11th day I started to feel pain again.!!! When I told the endo >>specialist that I was feeling pain, he did seem concerned about it....so >>I let it rest. Weeks later though the pain was getting worse instead of >>better...so I wrote a letter to him telling him I was really having pain >>and asked what he would suggest. >> >>Two weeks went by and no answer; so I called his office and talked with >>one of his nurses. I tried to make an appointment to see this endo >>doctor...BUT...his nurse told me that I couldn't make an >>appointment...the doctor did not want to see me. >> >>I was baffled!! I could not understand why I was being denied the right >>to make an appointment. For months I wondered about this...and I >>finally decided it had to be because as a Medicare patient, he was not >>adequately paid by Medicare for his surgical work. It was a difficult >>surgery...but Medicare treats all adhesiolysis cases the same. They all >>get paid the same...whether the surgery is uncomplicated or complicated. >> >>But, Chris, you may have a point. Since my problem was adhesions and >>NOT endometriosis, this could have been another reason for not wanting >>to see me again. >> >>Had I received the care of a surgeon who specializes in adhesion cases, >>I could have had the opportunity to undergo a "second-look" laparoscopy >>that Dr. J.Glenn Bradley says is easily done within so many days >>following surgery. This "second-look" surgery could have released me >>from the chronic pelvic pain that persists to this day. >> >>I have researched everything I could find about adhesions. NOW I know >>that adhesions are a common occurrence after surgery...but not all >>people develop chronic pain from adhesions. There is that certain >>percentage of people who are not so lucky. Their chronic pain from >>adhesions is real! My chronic pain from adhesions is real! >> >>There are gel adhesion barriers that are in clinical trials in the >>US...FloGel, Adcon-P, and Intergel. Surgeons are using gel adhesion >>barriers in Europe and Canada already. In the US we have to wait until >>the FDA will approve these gel adhesion barriers....which could happen >>late in 1999. >> >>Yes, Chris, there are surgeons who "specialize" in trying to help people >>who are victims of adhesions. Thank goodness for them....but there are >>not to many of them. Surgery for adhesions can be a very difficult and >>sometimes impossible procedure. And there are no guarantees that >>surgery will result in a *pain-free* life for the patient...even in the >>hands of a highly skilled and experienced surgeon. >> >>~~~~~~~~~~~~~~~~~~ >>At Sat, 23 Jan 1999, Christine wrote:> >> >>>Hi Helen: >>> >>>Have you heard of any adhesion "specialists" in your research? >>>(surgeons) Do you think an "endo specialist" would take on a case where >>>it was obvious the problem was surgical adhesions? In other words, is it >>>worthwhile going to (or trying to go to) an endo specialist if your >>>problem is surgical adhesions? >>>I don't know if you read my post, but I don't believe an "endo >>>specialist" would take on a case that appeared to be >>>a case of surgical adhesions if the persons old records did not show a >>>probability of endo. I could be wrong about this, I am curious about >>>what your opinion is. >>> >>>Chris S. > >Hi Helen: > >Thanks for you response. Who are these adhesion specialists? Have you >consulted any? > >I don't think my adhesions are "massive", they do not fit the >description Toni gives of hers. I *think* my problem is that they don't >fix ALL of them and hope they pick the right ones, the ones they think >will cause trouble. So there's always some left. This is my theory. >This is what happened the first time and when they did the second lap, >the first area had not reoccurred! > >I would be very interested to know where these specialists are located. > >Thanks, > >Chris S. Chris, Hi how are you feeling? I am having alot of cramping pain, and it feels like another bout with irritable bowel, when it happens I get alot of cramping , but it alot higher than usual, and all of a sudden you hear a loud gurgle going through there, it hurts at the bottom area to, pulling pain is pretty hard tonight, it makes be nervous cause I hate to fight the spasms with levbid. That medication makes me awful tired, with the pamelor! I have not had bowel movement for about 4-5 days, and I notice the pain gets real uncomfortable after that long, I thought i had them moving pretty good, and then it stopped. I am not taking the laxative, senekot, daily anymore, the new GI dr was pretty upset that my GI dr had me take it so long. he said you can become dependant on it, andI had to wean off of it! How are you feelingtonight? Are you still having the pain that started yesterday? HAve you had any other symtoms? If Helen lets you know of these drs. let me know, she did email me and i do not know how to reach dr. wisemwn, I am looking forward to the new site on adhesions! Hope to hear from you soon! Toni
|
|
Return to ![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)
Technical Problems: webmaster@obgyn.net
Last Updated: Fri Jan 2 04:09:56 2009