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Re: [Fwd: Toni--about your adhesions] ElaineFrom: Toni (anonymous@obgyn.net)Thu Jan 7 05:46:44 1999
At Wed, 06 Jan 1999, yenta wrote: > >Hi Elaine, >Here Here!!!! LOL Elaine, that was an absolutely wonderful post to Toni. >Thank you very much for sharing your knowledge and concern. I've been >on this forum for a couple of months and have listened to all that Toni >has gone through!! She just sounds so miserable. I hope your post will >prompt her to take necessary action. Elaine may I email you to ask you >of your surgery? Thank you >Yenta > >Toni, >If you're reading this post, please go to an EXPERT. I know that your >gyn is the only kind soul who has been by your side, sounds like he is a >wonderfully caring person/dr. But as for your surgery, you will be >doing yourself and your gyn a favor by going to an EXPERT. CATCH THE >HINT! We say this because we care Toni. >Now exactly where do you live Toni? > >-- >Yenta > >At Sun, 3 Jan 1999, Elaine wrote: >> >>Toni-- >>I've been following your posts and have noticed that your doctor told >>you he "could not get thru the adhesions." (not an exact quote) >>You may have a great doctor for most things, but that comment makes it >>clear that YOU NEED ANOTHER SURGEON! And yes, I feel like I need to >>shout, because it's so important! And you need one SOON. (Have you read >>Gretchen's posts about her last surgery? That's where too many of us >>end up) It's imperative that you get to an endo specialist. A real one >>CAN get all those adhesions. And will do a great job fixing any and all >>bowel problems. It will likely take less than 3 hours and within a >>couple weeks you'll feel MUCH better. (You might even have a chance to >>STAY well, if you haven't waited too long and depending on your current >>overall immune system functioning.) >> >>Now, I know that GETTING that surgeon isn't exactly easy in many cases. >>Email me and I'll tell you who I went to. But a first step might be to >>corral all the info you can find on what SOME doctors can and DO do >>about endo lesions and adhesions (and yes, no doubt you have both). >>I've got a 5 minute video of my very first surgery in 1993 that will >>make a believer of any skeptical doctor (if you can get him to watch >>it). There are books by doctors for doctors (such as the one by the >>Nezhat's) and there are other articles and info from the Endometriosis >>Association. I'd guess Dr. Perloe's office and web site has info, tho' >>I personally haven't been there yet. You might also ask the women at >>WITSENDO, a private endo group where your posts aren't available to >>every single person on the net. >> >>Anyway, if your surgeon will talk to you about it, show him/her the info >>and ask for advice. Remind him/her about the fact that he/she LEFT >>adhesions in your abdominal cavity. (No excuse for that, even in the >>cul-de-sac). And ask if there might be a way he/she could refer you to >>one of the experts. (All this is a moot point if your insurance will >>cover out of network without referrals--I'm assuming you've already >>thought of this) >> >>But, before you get too angry that your doctor did not do all the >>adhesion removal----It IS better NOT to have had the surgery than to >>have a doctor do a surgical technique that is beyond his/her skill >>level. In other words...better ignored than butchered. And it sounds >>as though your doctor is generally a caring individual, so maybe you can >>work this out together. >> >>I'm praying that you'll be able to figure out ways to deal with all the >>crud that goes with this disease and that you'll find the strength to go >>forward with the things you figure out you need to do for yourself for >>your health. I've found that putting those things off costs me more in >>the long run (more money, more health-risk, more misunderstandings with >>other people, etc) >> >>Hope I haven't been too cranky with this email. It's rare that I get >>worried enough to write, but when I do it's usually because something in >>that person's post has triggered a memory from my own 30 year struggle >>with endo. Email me directly at esgood@TheRamp.net if you like. I'd >>like to hear more about your situation. >> >>--Elaine Good > Hi I live in snowy and icy Cinti, Ohio! The weather here is nasty today, and we expect more snow and ice tonight, but not near as bad as chicago, I guess they are all digging out. i have been to alot of drs. they all tell me something differnt, and I guess this is why O am driving everyone nuts, I am sorry, just confused, i know I will have to learn to live with this pain! I am trying to. Toni
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