Re: [Fwd: Toni--about your adhesions] Elaine
From: yenta (anonymous@obgyn.net)
Wed Jan 6 15:10:46 1999
Hi Elaine,
Here Here!!!! LOL Elaine, that was an absolutely wonderful post to Toni.
Thank you very much for sharing your knowledge and concern. I've been
on this forum for a couple of months and have listened to all that Toni
has gone through!! She just sounds so miserable. I hope your post will
prompt her to take necessary action. Elaine may I email you to ask you
of your surgery? Thank you
Yenta
Toni,
If you're reading this post, please go to an EXPERT. I know that your
gyn is the only kind soul who has been by your side, sounds like he is a
wonderfully caring person/dr. But as for your surgery, you will be
doing yourself and your gyn a favor by going to an EXPERT. CATCH THE
HINT! We say this because we care Toni.
Now exactly where do you live Toni?
--
Yenta
At Sun, 3 Jan 1999, Elaine wrote:
>
>Toni--
>I've been following your posts and have noticed that your doctor told
>you he "could not get thru the adhesions." (not an exact quote)
>You may have a great doctor for most things, but that comment makes it
>clear that YOU NEED ANOTHER SURGEON! And yes, I feel like I need to
>shout, because it's so important! And you need one SOON. (Have you read
>Gretchen's posts about her last surgery? That's where too many of us
>end up) It's imperative that you get to an endo specialist. A real one
>CAN get all those adhesions. And will do a great job fixing any and all
>bowel problems. It will likely take less than 3 hours and within a
>couple weeks you'll feel MUCH better. (You might even have a chance to
>STAY well, if you haven't waited too long and depending on your current
>overall immune system functioning.)
>
>Now, I know that GETTING that surgeon isn't exactly easy in many cases.
>Email me and I'll tell you who I went to. But a first step might be to
>corral all the info you can find on what SOME doctors can and DO do
>about endo lesions and adhesions (and yes, no doubt you have both).
>I've got a 5 minute video of my very first surgery in 1993 that will
>make a believer of any skeptical doctor (if you can get him to watch
>it). There are books by doctors for doctors (such as the one by the
>Nezhat's) and there are other articles and info from the Endometriosis
>Association. I'd guess Dr. Perloe's office and web site has info, tho'
>I personally haven't been there yet. You might also ask the women at
>WITSENDO, a private endo group where your posts aren't available to
>every single person on the net.
>
>Anyway, if your surgeon will talk to you about it, show him/her the info
>and ask for advice. Remind him/her about the fact that he/she LEFT
>adhesions in your abdominal cavity. (No excuse for that, even in the
>cul-de-sac). And ask if there might be a way he/she could refer you to
>one of the experts. (All this is a moot point if your insurance will
>cover out of network without referrals--I'm assuming you've already
>thought of this)
>
>But, before you get too angry that your doctor did not do all the
>adhesion removal----It IS better NOT to have had the surgery than to
>have a doctor do a surgical technique that is beyond his/her skill
>level. In other words...better ignored than butchered. And it sounds
>as though your doctor is generally a caring individual, so maybe you can
>work this out together.
>
>I'm praying that you'll be able to figure out ways to deal with all the
>crud that goes with this disease and that you'll find the strength to go
>forward with the things you figure out you need to do for yourself for
>your health. I've found that putting those things off costs me more in
>the long run (more money, more health-risk, more misunderstandings with
>other people, etc)
>
>Hope I haven't been too cranky with this email. It's rare that I get
>worried enough to write, but when I do it's usually because something in
>that person's post has triggered a memory from my own 30 year struggle
>with endo. Email me directly at esgood@TheRamp.net if you like. I'd
>like to hear more about your situation.
>
>--Elaine Good
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