ENDO Messages for January, 1999: Re: [Fwd: Toni--about your adhesions]

Re: [Fwd: Toni--about your adhesions]

From: Toni (anonymous@obgyn.net)
Mon Jan 4 09:20:23 1999

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At Sun, 03 Jan 1999, Elaine wrote: >
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>Message-ID: <anonymous@obgyn.net>
>Date: Sun, 03 Jan 1999 21:17:30 -0800
>From: Elaine <anonymous@obgyn.net>
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>To: "anonymous@obgyn.net" <anonymous@obgyn.net>
>Subject: Toni--about your adhesions
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>Toni--
>I've been following your posts and have noticed that your doctor told
>you he "could not get thru the adhesions." (not an exact quote)
>You may have a great doctor for most things, but that comment makes it
>clear that YOU NEED ANOTHER SURGEON! And yes, I feel like I need to
>shout, because it's so important! And you need one SOON. (Have you read
>Gretchen's posts about her last surgery? That's where too many of us
>end up) It's imperative that you get to an endo specialist. A real one
>CAN get all those adhesions. And will do a great job fixing any and all
>bowel problems. It will likely take less than 3 hours and within a
>couple weeks you'll feel MUCH better. (You might even have a chance to
>STAY well, if you haven't waited too long and depending on your current
>overall immune system functioning.)
>
>Now, I know that GETTING that surgeon isn't exactly easy in many cases.
>Email me and I'll tell you who I went to. But a first step might be to
>corral all the info you can find on what SOME doctors can and DO do
>about endo lesions and adhesions (and yes, no doubt you have both).
>I've got a 5 minute video of my very first surgery in 1993 that will
>make a believer of any skeptical doctor (if you can get him to watch
>it). There are books by doctors for doctors (such as the one by the
>Nezhat's) and there are other articles and info from the Endometriosis
>Association. I'd guess Dr. Perloe's office and web site has info, tho'
>I personally haven't been there yet. You might also ask the women at
>WITSENDO, a private endo group where your posts aren't available to
>every single person on the net.
>
>Anyway, if your surgeon will talk to you about it, show him/her the info
>and ask for advice. Remind him/her about the fact that he/she LEFT
>adhesions in your abdominal cavity. (No excuse for that, even in the
>cul-de-sac). And ask if there might be a way he/she could refer you to
>one of the experts. (All this is a moot point if your insurance will
>cover out of network without referrals--I'm assuming you've already
>thought of this)
>
>But, before you get too angry that your doctor did not do all the
>adhesion removal----It IS better NOT to have had the surgery than to
>have a doctor do a surgical technique that is beyond his/her skill
>level. In other words...better ignored than butchered. And it sounds
>as though your doctor is generally a caring individual, so maybe you can
>work this out together.
>
>I'm praying that you'll be able to figure out ways to deal with all the
>crud that goes with this disease and that you'll find the strength to go
>forward with the things you figure out you need to do for yourself for
>your health. I've found that putting those things off costs me more in
>the long run (more money, more health-risk, more misunderstandings with
>other people, etc)
>
>Hope I haven't been too cranky with this email. It's rare that I get
>worried enough to write, but when I do it's usually because something in
>that person's post has triggered a memory from my own 30 year struggle
>with endo. Email me directly at esgood@TheRamp.net if you like. I'd
>like to hear more about your situation.
>
>--Elaine Good
>
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No Elaine you misunderstood my posts, my gyn cleaned up EVERYTHING! He said this, that they did a ver extensive lysis, took them all down, the problem when he said he could not get in laparosopic, he did a laparotomy, but he left absolutely no adhesions behind, he told me that! The pelvic was just hard to get into when he tried scope! He is a very good dr. i will go to no one else, I am sorry I e\was not clear. he has taken care of my adhesions for years, but they keep getting worse after each surgery. thanks for listeing, where are you from?

Toni

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