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Susan-adhesion painsFrom: Christine (anonymous@obgyn.net)Wed Dec 30 17:45:23 1998
Hi Susan: Just wanted to say a few things. When I asked are you sure the pain is adhesion pain and not something else I wasn't thinking in terms of endo being the something else. I was thinking of something more ominous. Now this is much less of a concern in young women of reproductive age, but when we get up around 50 years old it is more likely that the other things can come into the picture. This has me concerned. DO I just ignore intermittent lower abdominal pains ,dismissing them as adhesions? Usually endo isn't a factor in a woman in her 50's. Doctors don't seem to have any answers. I think the only thing you can do is have regular exams and the recommended tests. As far as being able to tell it isn't something else because it feels like the problem we once had-I have no confidence in that! When I had my first problem that led to the first lap I told the gyn it felt exactly like menstrual cramps. I had never had any kind of acute abdomen situation (other than endo pain) before and to me this is what it felt like-menstrual cramps. (I had a hysterectomy so this felt kind of unusual.) Then the problem was found to be a partial bowel obstruction. I had no bowel symptoms whatsover-just pain. Then after the first lap I was pain free for 3 months and then the problem reoccurred. I was sure it was the same exact problem because it felt EXACTLY the same. Wrong again. The adhesion fixed in the first lap had not reoccurred. The problem was on the other side of my pelvis, yet the pain was in the same exact spot as the first time!!!!My doctor said almost everything refers pain to the right side of the pelvis. So when women describe the pain as in the ovary area, it may not necessarily be from the ovary. I'm only repeating what my gyn said to me about Lupron and endo when I tell you that endometriomas do not respond to Lupron and require surgery. It's possible she was prescribing the Lupron for the other endo in the pelvis (non ovarian)but it is not surprising that the ovarian site reoccurred. (if it was an endometrioma) I've never heard of prescribing Lupron for 18 months. From what I've read 6 months is the recommended amount, yet they sometimes do another course. (as I started to do). I know a lot of women have problems from Lupron. I guess I was lucky. I would've tried anything as I was tired of seeing a neurologist and taking a medication for something I didn't know what it was! Hope you continue to do well. I was encouraged when you wrote that they told you the pulling/tugging can continue for awhile. Chris S.
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