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From: anonymous@obgyn.net
Wed Dec 2 20:23:28 1998


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At 11:47 PM 12/1/98 -0600, you wrote: >Elizabeth,
> Thank you for the words of encouragement and advice. It is nice to
>finally get support from someone else who has this disease. Everyone here
>has been so nice and open with their lives. One more question, yes i would
>like to join the endo association, but i don't know how. Can you give me
>some info on that too. Thank you soooooo much.
>-----Original Message-----
>From: anonymous@obgyn.net <anonymous@obgyn.net>
>To: Multiple recipients of list <anonymous@obgyn.net>
>Date: Tuesday, December 01, 1998 8:16 PM
>Subject: Re:
>
>>At 10:53 AM 12/1/98 -0600, you wrote:
>> My name is Kelley and I am new to the list. I am 21 and have been
>>living with this disease for 4 years. I had my first lap last December
>>which is when the docs found out that I have stage 3, almost stage 4 Endo.
>>you can imagine that I was not happy about this, and to be honest it broke
>>my heart. I have always wanted to have children but having Endo makes this
>>more difficult. it didn't help any when the doctor told me that I had the
>>worse case he had ever seen in a woman my age.
>>
>>Dear Kelley,
>> I'm 45 and had endo for many many years before it was
>>diagnosed, and it is Stage III-IV, because there were so
>>many adhesions too the doctor couldn't exactly classify it.
>>I don't think you should ever lose hope of having
>>children. There needs to be a lot more research, but
>>there are some doctors who have done great things. Also,
>>you should not lose hope about adopting, in vitro, etc.
>>Personally, because my symptoms were "in my head"
>>according to former doctors (I was diagnosed only
>>this year), I learned to avoid foods that aggravated
>>it. Some foods have estrogen added, such as meat
>>not raised organically, and even any meat, because
>>it does have animal hormones. Some people talk
>>about the natural therapies as though they replace
>>the medical ones. I don't think so, but avoidance
>>of things containing estrogen can help a lot. Also,
>>I avoid coffee in any form. For some reason, even
>>decaffeinated starts colon and back spasms that won't
>>let me stand up straight for about 2 weeks. To me,
>>where there is pain, something is going wrong. My
>>sister was told to avoid coffee for breast cysts,
>>so, coffee might aggravate cysts in other places too.
>> I hope you learn a lot here. You might also want
>>to join The Endometriosis Association.
>>Elizabeth
>>




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