Re: Mrs. Clinton/NICHD responding to Endo Awareness Requests
From: Ronna (anonymous@obgyn.net)
Mon Nov 30 14:35:09 1998
Heather,
Thanks for taking the time in sharing that letter you
rec'd. I found it quiet "hopeful" while reading it!
Hope you are doing well
--
Ronna
>
>I thought everyone might be interested in reading a letter I received
>via snail mail today from the Director of the National Institute of
>Child Health and Human Development...
>
>"Dear Heather:
>
>Your recent email to First Lady Hillary Rodham Clinton, regarding
>facilitating awareness for endometriosis, has been referred to this
>Institute for reply.
>
>The NICHD is that part of the National Institutes of Health with primary
>responsibility for conducting and supporting basic and clinical research
>in the biomedical, behavioral and social sciences relating to child and
>maternal health, in medical rehabilitation, and in the reproductive
>sciences such as reproductive biology.
>
>As you know, endometriosis is a common, yet poorly understood disease.
>While some women with endometriosis may have severe pelvic pain, others
>who have the condition have no symptoms. Nothing about endometriosis is
>simple, and there are no absolute cures. The disease can affect a
>woman's whole existence--her ability to work, her ability to reproduce,
>and her relationship with her mate, child and everyone around her.
>
>As part of NICHD's mandate in the reproductive sciences, NICHD has
>established a Reproductive Medicine Network linking several institutions
>across the country. While this cooperative effort focuses on other
>important issues such as infertility and various male and female
>reproductive disorders, developing an optimal treatment for
>endometriosis is one of its primary goals.
>
>Gradually, scientists will identify the mechanisms behind this most
>enigmatic of gynecologic diseases.
>
>Enclosed is a copy of our brochure, Facts About Endometriosis, which we
>distribute in quantity free of charge. If you wish, you may order this
>form from us for your dissemination by contacting our clearinghouse. I
>have enclosed a description of the NICHD Clearinghouse that contains
>instructions on how to contact them.
>
>Sincerely yours,
>Duane Alexander, MD
>Director"
>
>The brochure is good, and has most of the info that is contained on
>their website, which I'm sure many of you are familiar with.
>
>The info to contact the Clearinghouse if anyone else is interested is
>800/370-2943; at URL http://www.nih.gov/nichd or snail mail at NICHD
>Clearinghouse, PO Box 3006, Rockville, MD 20847. The National
>Institutes of Health themselves are located at NIH, Bldg. 31, Room
>2A03, 31 Center Dr. MSC - 2425, Bethesda, Maryland, 20892. The phone #
>is 301/496-3454.
>
>I am delighted to see that someone out there is paying attention and I
>hope that the work the Institute is doing will pay off for all of us
>very soon!
>
>--
>Fond regards,
>Heather Guidone
>Coordinator, Endometriosis Pavilion
>http://www.OBGYN.net/endo/endo.htm
>OBGYN.net - http://www.OBGYN.net
>
>Elecomm Internet Applications
>5707 Lakemoore Drive, Suite 100 (512) 231-0810...phone
>Austin, Texas 78731-1730 (512) 372-4321...fax
>
--
Ronna
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