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Re: SHARING A SUCCESSFUL HYSTERECTOMY STORY

From: Coordinator (anonymous@obgyn.net)
Mon Nov 30 12:28:36 1998


Hi Dee,

Thank you for sharing your positive story. As a hysterectomy patient myself (3 weeks post-op), I appreciated reading it and know that others do as well.

<<I now get a shot of 1/2cc of Delestrogen every two weeks>>

I'm interested in learning more about Delestrogen...did/do you have any side effects from the injections that are common with other estrogen replacements, such as weight gain, etc.? I will not be going on HRT for another 5 months but would like to have some options to discuss w/my GYN...I do very badly on Premarin, as evidenced through my history with it while on Lupron.

<<Another thing I also feel I need to share is the fact that my symptoms were not all physical.>>

Absolutely - being "sick" takes it's toll on us both physically as well as mentally and in order to treat Endo completely, one must address the whole patient.

<<He indicated we may go down in the history books because: 1) it's not known to run in families; and 2) he'd never seen such a dramatic improvement of the mental symptoms before in his practice.>>

He may be very mistaken. Many Endo experts throughout the world believe there is indeed a genetic link in Endo patients. You may interested in learning more about the Oxegene Study regarding genetic Endo here at this URL...

http://www.medicine.ox.ac.uk/ndog/oxegene/oxegene.htm

(OXEGENE is a world-wide research study which aims to find genes responsible for causing Endometriosis. The study is based at the Nuffield Department of Obstetrics & Gynaecology in the University of Oxford.)

And as for your mental symptoms improving, certainly if one is out of pain and feeling better overall, her mental status will improve as well!

Thank you again for sharing your story. I wish you good health!

--
Fond regards,
Heather Guidone
Coordinator, Endometriosis Pavilion
http://www.OBGYN.net/endo/endo.htm
OBGYN.net - http://www.OBGYN.net

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