ENDO Messages for November, 1998: Re: I'm VERY, VERY upset...

Re: I'm VERY, VERY upset...

From: anonymous@obgyn.net
Sat Nov 28 20:10:42 1998

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If a couple wants a baby, I would say to have it. My husband and I had our baby before we were "finincially stable" and we were very glad we did, because I got very sick when she was about a year old. We didn't want a baby because I was sick, but because we wanted one. I wanted a baby then, but I wouldn't have wanted a baby later feeling so bad.

I had terrible back pain too, and have it off and on. It doesn't necessarily have to be at my period or at the middle of the month, and I thought it was because I have big hips, but when I stopped drinking coffee, either regular or decaffeinated, it really helped. So, I thought it was a simple allergy. But I knew it had something to do with my colon. This year I found out that I had a bad adhesion on my left side involving the colon among other organs, and now, after the laparoscopy, I have that back pain again. I think my colon is still angry about the operation, and might need more time. My daughter reminded me that it takes time to recover. I hope that is the case. If there are more adhesions, it isn't the doctor's fault, because he is a very careful specialist, but I also have a tendency to get skin problems such as callouses that won't go away, excema which causes my hair to stick together and mat, etc. Such problems are peculiar to me, and it would take a combination of a gyn and a membrane specialist (get the best dermatologists together with the gyns?) to figure out this bod. When I was a kid a dermatologist took pictures of my fingers for his Princeton textbook!

Anyway, as I said before, whether or not you are in NYC, please write to the station at the address Dorothy gives and leave your 2 cents. I already did that. I still want to know if there are any script writers out there... Although I don't imagine a "Philadelphia Story" or "Lorenzo's Oil" about endo would grab people the same way as a terminal disease does. But a good script writer could overcome all that. Elizabeth

At 10:28 AM 11/27/98 -0600, you wrote: >[snip] I am going for a
>second opinion on the 14th of this month. The dr. I am going to is
>only a GYN, and he specializes in endo. I am constantly in pain and
>it is taking it's emotional toll on me (and my fiance'). Every time I
>am in pain I just start to cry, cry, cry... We have decided on having
>a baby before it's too late, any other thoughts, they would be greatly
>appreciated....
>~Christine~

>---"Kyriannis, Dorothy" <anonymous@obgyn.net> wrote:
>> First off, Carmen. I bought three books and will be buying one more.
>> Give me 5 minutes and I'll send another e-mail with the names.
>> On a personal note, I woke up with horrible cramps yesterday morning
>and
>> such back pain, I couldn't even move. Never had so much back pain
>when
>> I DON'T have my period. Anyone ever experienced this before? I
>usually
>> get the back pain when I have my period.

>>[snip] If as many of you as possible sent an
>e-mail
>> like that, we might be able to get a response telling us who to
>contact.
>> What do you guys think? Let me know. Please. I would appreciate
>some
>> feedback from you all. Maybe if we all put on a strong front that
>alot
>> of us are interested, they may help us out. I REALLY want to see this
>> special (or at least read what they wrote).
>>
>> Here is what is listed on the site. This may be all that they spoke
>> about, but I won't sleep well until I know for sure.
>>
>> 7 Diseases Doctors Miss Most
>> How often have you gone to the doctor looking for a diagnosis
>> only to leave frustrated and still sick? There are some illnesses
>that
>> even the best of doctors fail to diagnose. None of them is rare but
>they
>> are simply overlooked. So the next time you have symptoms your doctor
>> can't explain, perhaps it could be one of the following:
>>
>> 7 Diseases Doctors Miss Most
>> 1.Perimenopause
>> 2.Heart Disease
>> 3.Interstitial Cystisis: Symptom is frequent urination
>> 4.Pelvic Inflammatory Disease: Affects more than 1
>> million women per year.
>> 5.Thyroid Disorders
>> 6.Lupus: A chronic disease that generally affects
>young
>> women.
>> 7.Endometriosis: Affects up to 5 million women per
>year.
>>
>> This list is in no particular order and it comes from conversations
>with
>> doctors. However, there are other diseases that doctors miss. And
>> remember, if you have a problem that your doctor cannot diagnose,
>don't
>> think
>> you're crazy. Just find a doctor who will listen to you
>>
>> The URL for this is:
>> http://www.abcnews.com/local/wabc/homepage/20501_11221998.html
>> The URL with the "send e-mail to ABC" template is:
>> http://www.abcnews.com/local/wabc/onair/email.html
>>
>> Dorothy L. Kyriannis
>>

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