Adhesion medication
From: Lorianne (anonymous@obgyn.net)
Mon Nov 16 08:31:02 1998
Dear Helen,
Thanx for the confirmation that adhesions do cause inflammation. What
medication are you taking that help with adhesion pain? I'm sure many of us
could benefit from knowing; then we could do the research and decide if we'd
like to try it. I'm always encouraged when someone finds something that
helps them cope with suffering.
It always means that it could benefit *one* of us too, if not more. And I
realize that there will be others that may not perceive any benefit; that is
why we must stay educated, remain focused on continuing to try new products
and services (if they meet our own personal requirements for safety, etc.),
and not give up hope.
Helen, I consider you the "guru" of adhesions. You've earned that title, in
my mind, because I respect all the many hours of research and study that
you've done to discover all that you can about adhesions. And you've been
so willing to share with us your findings; you also are helpful and willing
to explain that which we don't understand.
In my opinion, you've been a blessing here on the forum.
Sunshine,
Lor
-----Original Message-----
From: anonymous@obgyn.net [mailto:anonymous@obgyn.net On Behalf Of Helen Dynda
Sent: Saturday, November 14, 1998 8:55 PM
To: Multiple recipients of list
Subject: Re: Natural
Lorianne,
I honestly believe that adhesions do cause inflammation ! My ESR blood
tests, or in others words blood sedimentation rates, stay consistently
in the mid 80's!
A NORMAL ESR blood test is a reading of about 30.
I have noticed that I have *more* pain when I am sitting...medium pain
when I am up and moving around...and...when I wake up in the morning, my
pain is considerably reduced in severity. BUT, since I am on
medication, it may be that the medication that I am on helps to reduce
the severity of the pain overnight too. The medication, that I am on,
does help to make the chronic pain manageable.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~
At Sat, 14 Nov 1998, Lorianne wrote:
I sometimes even wonder if my adhesions themselves cause
>inflammation. Because they have been quieter recently; and after 26 years
>of dealing with endo and adhesions I've come to be able to distinguish the
>difference between them sometimes. I wish it were all the time and as I
said
>before it would be real convenient if I could just use my x-ray eyes to
take
>a look/see.
>
>One of the reasons I've been able to develop discernment for myself on
>whether the pain is endo inflammation or adhesion related is because
certain
>areas of my body that have suffered injuries have adhesions, but do not to
>my knowledge have endo. The pain is very similar, but when not drugged
>there are some distinguishments between the two that I can sense or feel.
>It is hard to explain and I hope that if you must endure this hardship that
>one of the benefits may be the ability to discern.
>
>For instance, I can feel an adhesion pain on my right side ovarian area
>which occasionally sends out sharp warnings... staying very still helps
this
>area to calm down. Once it has calmed down I can resume movement.
However,
>when it is endo related, gentle massaging, moist heat application and slow
>rhythmic movement help ease the pain somewhat... but doing that to an
>adhesion induced pain exacerbates and prolongs my agony. I'm not sure it
>works like this with other people... I learning just how very different we
>all are. And both cold (as well as heat) applications will help an
adhesion
>pain, but cold only worsens an endo pain. On multiple occasions I've had
>the "pleasure" of experiencing both types of pain simultaneously. That is
>when I hate living.
>
>I wish there was more we could do to help each other carry this pain
>burden... I long for the day when all suffering will cease.
>
>Peace to you,
>Lor
>
>-----Original Message-----
>From: anonymous@obgyn.net [mailto:anonymous@obgyn.net On Behalf Of Dave Mompher
>Sent: Friday, November 13, 1998 5:40 PM
>To: Multiple recipients of list
>Subject: Re: Natural
>
>Hi Lor,
>I did not know the answer to you question so when I went to the doctors
>yesterday I asked for a copy of my medical records and I talked to the
>doctor I found out that I severe endometriosis with extreme adhesion
>formation and a frozen pelvis. But as of now the doctor dose not know if
the
>adhesions are causing the pain or if the hormones have triggered the endo
>again. So for now I just have to stay off the hormones to see what is
>causing the pain,if the pain goes away then they know it is the endo
>causing the pain if it's the adhesions I will just have to learn to deal
>with the pain . He will talk with more about ways to learn to deal with
pain
>when we are sure the pain is not from endo. Hope this all makes sense.
>
> Denise
> From: endo@obgyn.net
>To: Dave Mompher
>Date: Thursday, November 12, 1998 5:50 AM
>Subject: Re: Natural
>
>>At Thu, 5 Nov 1998, Lorianne wrote:
>>>
>>>Denise,
>>>
>>>Thanks for the confirmation, could you please tell me the name or maker
of
>>>the patch you are referring to? I'd probably prefer it, most patches are
>>>designed for gradual release over a time period. It would be more
>>>convenient to use I would think. I wasn't even aware that a patch was an
>>>option for natural, original molecule hormones. But with the name of the
>>>maker or the drug, I could ask my pharmacist about it and get more info.
>>>
>>>And, so... I'm wondering if your pain is partially from
>adhesions/scarring?
>>>Do you have a history of that? I do, or at least did have them at my
>last
>>>surgery. Fortunately the doctor made an effort to remove any that were
>>>restricting pelvic organ and other tissues from natural
>>>movements/adjustments. Occasionally I feel a twinge when I stretch that
>>>lets me know I still have some that don't like being disturbed. These
>>>sources of pain never seem to have a pattern; they are very arbitrary.
>The
>>>endo on the other hand follows more of a cyclical pattern, with an
>>>occasional surprise.
>>>
>>>It makes me wonder if you are tangled up with adhesions. I'm only
>speaking
>>>from my own personal experience with endo and adhesions... they both hurt
>>
>>adhesion. I don't
>>>have Superman x-ray vision eyes to get a good look, but it sure would be
>>>convenient, wouldn't it?
>>>
>>>Before my last surgery, my pain was constant... no breaks, no good
days...
>>>the only difference was whether or not the pain made me cry. Some days I
>>>was too tired and worn out feeling the pain that I couldn't cry... I was
>>>emotionally numb and operating in remote pilot. I'm sure you what I
mean.
>>>Those were the most dangerous days for me. If it weren't for my fear and
>>>love for God, I would have killed myself. But, I don't want to depress
>>>anyone here.
>>>
>>>New topic... have you thought of a game plan maybe for your next
>discussion
>>>with your doctor? You can't keep on for long like this, I'm hoping you
>get
>>>some relief soon. I'm sending you a warm thought of heartfelt compassion
>to
>>>blanket you and comfort you.
>>>
>>>Love,
>>>Lor
>>>
>>>-----Original Message-----
>>>From: anonymous@obgyn.net [mailto:anonymous@obgyn.net On Behalf Of Dave Mompher
>>>Sent: Thursday, November 05, 1998 6:22 PM
>>>To: Multiple recipients of list
>>>Subject: Natural
>>>
>>>Thankyou Lorianne and Valarie for your letters.
>>>
>>>Valarie I will let you know what I find out , as soon as I find out !
>>>
>>>Lorianne , answer to your questions = yes the hormones are natural thay
>are
>>>in patches that you put on once a week, and the pain is always there,
just
>>>worse at times no rhyme are reason.
>>>
>>> thanks again , best of health
>>> Denise
>>
>>Hi! I know what you mean I am so tired of thepain, and some people (I
>>feel) think you are crazy, I did not even think my dr. first beleived
>>thepain I was in, I would never have went through another laparotomy
>>after 5 month from another one, I have been reaching out for help, like
>>I have written on forum the las t few days have not been to baf. I am 6
>>weeks post op, and I am hoping it is just taking time.Do you have alot
>>of pelvic pressure and pain way down in pelvis when you try to walk, I
>>was laying in bed and felt pain here and there last night, I guess we
>>will never have free days fron pain. I know the more surgery, the more
>>adhesions, but I feel better to know the bowel is back where it is
>>supposed to be, (I hope). Keep me informed about your pain, you can
>>email me if you like!
>> TOni Welsh welsh@mail.fuse.net.
>>
>>--
>>I am contemplating more surgery now due to this same trouble,
>>I had pelvic pain and leg pain too! I went in and the dr.
>>did a lap. but told my husband when he got in there he can
>>not see my last ovary, he did a laparotomy, untwisted the
>>bowel, was full of adhesions, and removed last ovary, it was
>>stuck to abdominal wall, he said he had to literally pull it
>>off, I had no pain for 3 weeks, GREAT!!! But after 4 weeks
>>the pain was back worse than before the surgery, I can not
>>stand it, I called him yesterday to go thru another lap.
>>He said that is all he could do, abd hopefully the laser would
>>help the adhesions not grow back,but it is interfering in my life.
>>There are times when I cannot even get up, or sit or bend.
>>The pain is awful, but it is in lower pelvic area where my
>>bowel he straightened, is and goes down to my legs. I am
>>looking for HELP!!!!! Can not stand the pain!
>> Toni Welsh
>>
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