ENDO Messages for August, 1998: Re: Carey - National Lupron Victims Network

Re: Carey - National Lupron Victims Network

From: Kim (anonymous@obgyn.net)
Mon Aug 31 06:34:32 1998

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At Fri, 28 Aug 1998, Carey wrote: >
>I stand by my previous post 100% because it is my opinion of something
>and someone that I was privy to first hand as were many other women
>who were "victims" of Dr. Abend's personal attacks. I refuse to get
>into a pissin' match with anyone on this woman or her "network" or
>with anything else concerning Lupron. I stand by my statement that
>Lupron IS a person's choice to take or not to take and no one, not
>even someone with the supposed "Facts" should scare people into not
>taking a drug that may help someone live without pain (even if that
>painfree time is short lived). Indeed it HAS offered many woman that
>opportunity. I don't know about your situation personally, but there
>are times I wish I could die, because the pain is so relentless and so
>horrible. SO don't tell me that my choice of a drug should only be
>considered if my life is threatened. Because to me my endo pain makes
>my "very life" and the ability to LIVE a life threatened. I live with
>endo pain 24 hrs a day 7 days a week and have for over 4 years now,
>with pain for 15 years before that. It is a personal choice. I am
>not attacking Linda or her "network", I was simply stating the facts
>as they happened and there are many women who can back up what I've
>told you all. And you are wrong to state that some other meds that
>people can't take and have bad reactions to aren't to be compared with
>the "life long" effects of Lupron. Some of these very people you are
>referring to have died from taking a drug they didn't know they were
>allergic to, and others have complications that they might have to
>live with forever because of a bad reaction to the drug. I don't
>think that there are as many people who've taken Lupron and suffer the
>side effects for life that you think there are. I'm not saying people
>won't or don't, but it isn't a horrible drug for everyone. The side
>effects you live with aren't necessarily from taking Lupron, you do
>know that don't you? I'm not saying they definitely aren't, but to
>give Lupron credit for 5 horrible miscarriages isn't really fair, and
>usually people complain of hair LOSS not growth, as it reduces certain
>hormones, decreased sex drive can be a part of hormonal imbalance,
>yes, but so can it be from pain that happens with sex when you have
>painful intercourse from endo or other pelvic problems, but it isn't
>fair to blame everything you have wrong with you now, just because
>they happened AFTER you took Lupron. You could say the same thing
>about an aspirin( or fill in the blank with a drug ____) you took that
>preceded a lifetime of troubles as well.
>
>Anyway, I'm not going to argue with anyone about Lupron or anything
>else for that matter. I've enough to deal with in my life than to
>worry about Linda's network. I just want people to be aware that she
>herself never has taken Lupron nor has she ever had endo and she was
>extremely nasty to each and everyone who didn't agree with her opinion
>and that isn't just putting out the facts... that's getting angry
>because someone doesn't see it YOUR personal way. I know people don't
>always agree, but I felt I needed to add my opinion and PERSONAL
>EXPERIENCE into the pot. I just think that Lupron is a personal
>choice and that the opinion of those that have taken it should be the
>ones to offer the "scoop" on it. That's all. I'm sorry you had a bad
>experience with it. And as far as your comment that Lupron is used
>for infertility and fibroid shrinkage, you are incorrect. Luprons
>uses as listed in the Mosby's nursing drug reference is ONLY for:
>metastatic prostate cancer, and in the *management* of endometriosis.
>No one ever said it would cure it, we agree it is only a stop gap
>measure, but any relief is better than none. And if you are at a high
>risk for osteoporosis, you should definitely speak to your doc about
>it before using it. But it isn't recommened or even suggested in the
>medical books I have privy to for the use of infertility (I can't even
>imagine HOW it could be used for that), and it doesn't mention
>anything about fibroids. Also it shouldn't be used without a
>LAPAROSCOPIC diagnosis of endo. Don't give it more credit than it is
>due.
>
>In Friendship,
>
>Carey of John and Carey
>Florida
>
> ~~~~~~~~~~
>If you must take a step into the darkness of the unknown,
>believe one of two things will happen........
>either you will find something solid to stand on,
>or you will be taught to fly.
>
> ~~~Patrick Overton~~~
>
>John's web site: MENDO - Men and Endometriosis:
>http://www.geocities.com/HotSprings/Spa/8449/
>
>Carey's Endo Window - Includes "Endo Sister's Survival Kit" :
>http://www.geocities.com/HotSprings/Spa/8509/

-- . <<<<<<<<< But it isn't recommened or even suggested in the >medical books I have privy to for the use of infertility (I can't even >imagine HOW it could be used for that), <<<<<

Carey, I may just add one thing....My very good friend is trying to get pregnant and she has in fact been placed on Lupron many times as a part of her fertility treatment. I will explain to you what she has told me the reason is...She says that her infertility specialist puts her on it to SHUT- DOWN the ovaries completely so that he can put her on all the fertility type drug's an sort of make her go into a drug induced fertility cycle, I guess it is supposed to make it easier to use the other medications, and make the use of the medications more succesful. She takes a daily shot of Lupron for one month and then I believe she has to get on all those drug's to stimulate eggs, (not sure which ones he put's her on, not Clomid though it is a much stronger drug than that) she is going to get IVF done and I guess this is his way of doing it...Also she has Polycystic Ovaries....Well, anyhow I just thought I would add that to the discussion..... Kim

Next message: Carey: "Re: ANY LUCK WITH LAPAROTOMY?"
Previous message: Tami: "Re: Teenagers and Lupron"
In reply to: Lee: "Ryan - Re: I am curious"
Next in thread: Coordinator: "Re: National Lupron Victims Network"
Reply: Coordinator: "Re: National Lupron Victims Network"
Reply: Ronna: "For Carey,please read"

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