awards page
From: kathy (anonymous@obgyn.net)
Sun Aug 30 20:48:53 1998
have added an award page whre you can apply for an award for your page check
it out
http://www.heartland/prairie/4863
-----Original Message-----
From: anonymous@obgyn.net <anonymous@obgyn.net>
To: Multiple recipients of list <anonymous@obgyn.net>
Date: Sunday, August 30, 1998 8:02 PM
Subject: ENDO digest 113
> ENDO Digest 113
>
>Topics covered in this issue include:
>
> 1) Re: New Here...With Endo
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 2) Re: Endo & Irritable Bowel Syndrome
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 3) 16 Days Post-Op Lap and No Good News to Report
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 4) FYI
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 5) Re: accupuncture
> by ANISSACA2@aol.com
> 6) Re: HELLO
> by ANISSACA2@aol.com
> 7) Re: ENDO digest 92
> by splaz <splaz@ix.netcom.com>
> 8) Re: accupuncture
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 9) RE: Post-op at Gyn Today
> by "Lorianne Koneczny" <koneczny@erols.com>
> 10) Re: accupuncture
> by ANISSACA2@aol.com
> 11) Re: accupuncture
> by "Debra Wells" <debra_wells@hotmail.com>
> 12) Re: accupuncture
> by "Chandra A. Martin" <mrscmartin@hotmail.com>
> 13) Re: Have a question Help me please.
> by medterms@watchic.net
> 14) Re: National Lupron Victims network-- Marla
> by Druzgal <poolpage@usaor.net>
> 15) Re: Have a question Help me please.
> by "Dina ....." <fire_angel2@hotmail.com>
> 16) Re: 16 Days Post-Op Lap and No Good News to Report
> by "Dina ....." <fire_angel2@hotmail.com>
>
>----------------------------------------------------------------------
>
>----------------------------------------------------------------------
>Date: Sun, 30 Aug 1998 10:40:43 PDT
>----------------------------------------------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: New Here...With Endo
>Message-ID: <anonymous@obgyn.net>
>
>Laura:
>
>Though I am not facing the possibility of a hysterectomy, I know what
>it's like to be dismissed as a hypochondriac or just as having something
>small. I've had Endo for 5 years now. Previously, I was either told
>that it was all in my head, that periods are supposed to be painful,
>that I have IBS and I've also been told that I have PID.
>
>There is no such thing as small Endo. Even the powder burns can wreak
>havoc on your body. I am so glad that you did finally come across a
>physician that listened to you and was willing to help. How do YOU feel
>about facing a hysterectomy? If you feel like there is a possibility
>that your uterus can be saved, please seek a second opinion. I don't
>want to frighten you, but there are still be a lot of Ob-Gyns out there
>that believe that the solution to female problems is to remove the
>female organs. Sometimes that's not the case.
>
>You are not alone here. We are all here for you.
>
>Welcome to Sisterhood!
>
>Chandra
>Manassas, VA
>mrscmartin@hotmail.com
>
>----Original Message Follows----
>Date: Sat, 29 Aug 1998 21:25:59 -0500
>Reply-To: anonymous@obgyn.net
>From: anonymous@obgyn.net (Laura)
>To: Multiple recipients of list <anonymous@obgyn.net>
>Subject: New Here...With Endo
>
>I have read some of the messages here and I think you are all very
>supportive. I was diagnosed with endo 18 years ago. It was not a lot,
>but I was in a lot of pain. Back then I guess there was nothing that
>could be done until it was so bad you needed a hysterectomy. I have 2
>children now and Im 36 years old. For the past 10 years I have been
>having a lot of pain again. When I would tell my Drs that I was
>diagnosed with endo, they looked at my chart and said oh it is so small,
>it isnt causing your trouble. So I suffered with it. About a month
>ago, I started having sever stabbing pains by my right ovary. We now
>have a different insurance company, so I saw a new Dr. She really
>listened to me and did an ultrasound to check for tumors and cysts. I
>have a large fibroid tumor on my uterus. She did a lap to try to remove
>the fibroid and any endo she might find, and was so overwhelmed at how
>bad then endo is. There was nothing she could do. The endo also spread
>to the bladder. Right now I am waiting to have a complete hysterectomy.
>I have been in so much pain all the time now. I am very upset and very
>scared about having this surgery. No one seems to understand me. I
>have been looking for a support group or a chat room to go to but when I
>find them they either dont work, or arent on line at the time. I just
>needed to talk with someone who has been there or is there right now. I
>feel all alone here.
>Thanks for listening,
>Laura
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 10:45:22 PDT
>------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: Endo & Irritable Bowel Syndrome
>Message-ID: <anonymous@obgyn.net>
>
>Noeleen:
>
>I had the same pain that you had with "giving birth through your bum".
>Mine was because of my bowels being adhered to my uterus. It sounds to
>me like your Endo is back. I would definately have that looked at.
>
>Chandra
>Manassas, VA
>mrscmartin@hotmail.com
>
>----Original Message Follows----
>Date: Sat, 29 Aug 1998 21:44:36 -0500
>Reply-To: anonymous@obgyn.net
>From: anonymous@obgyn.net
>To: Multiple recipients of list <anonymous@obgyn.net>
>Subject: Re: Endo & Irritable Bowel Syndrome
>
>HI
>
>I am new to the list and I was wondering if any of you have the same
>kind of pain that I am experiencing.
>I was told 5 years ago that I had IBS do to stress, and that I needed
>to change my diet, well I have just about removed all stress from my
>life (if that is possible) and I have changed my diet drastically,
>but I am still in so much pain. I have been diagnosed with "minimal"
>endo by lap in 1996, at that time my doc. cauterized my lesions on
>the right uteroscral ligament and said that I would be fine from then
>on. Well I haven't and it is only getting worse. It used to be
>that I was only in pain around my period, now it is when I ovulate
>(I had a dermoid cyst removed from my right ovary in 1991 and I was
>told later that the pain in my ovary was "just" some scar tissue) and
>and it sends me to bed with the several times a week. The worse pain
>is still around my period, and it isn't so much as cramps, but the
>only way to describe it is it is like giving birth through my bum.
>Sorry I can't be very technical with the description, but that is
>exactly how it feels. When that happens, I can hardly breath or
>function. I have two young boys, 3 and 6 years, and I am at home
>with them fulltime, so I can't take a lot of strong med. because I
>need to be coherent to care for them.
>I have recently moved and I am now willing to go back to doctors, I
>have been doing lots of reading and searching on the web and I do
>think that I have endo on the bowel or still on the ligament that the
>doctor in 1996 did not remove. Can someone give me some insight?
>Has anyone experienced this pain as well? I would just love to know
>that I am not crazy or a hypochondriac.
>thanks for reading this.
>
>Noeleen Ashton
>ashton@internetcds.com
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 11:24:02 PDT
>------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: 16 Days Post-Op Lap and No Good News to Report
>Message-ID: <anonymous@obgyn.net>
>
>Hi all:
>
>I am sitting here about to tear my hair out because I am so frustrated
>right now. I am only 16 days post-op lap and I am starting to feel my
>old symptoms creeping back up on me again.
>
>On 8/16, I had my first pain-free period in 5 years. There were twinges
>of sharp pains, but not the same intensity as before. On 8/21, my
>husband and I had intercourse and it was pain-free for the first time in
>2 years. It was great!! All last week, I was constantly feeling
>sharp, stabbing pains in my abdomen, just like before, but with less
>intensity. With these pains, I could still function. This past Friday,
>8/28, my husband and I had intercourse again and THE PAIN WAS BACK!!! I
>didn't tell him because he has really been looking forward to the time
>when I could finally get some enjoyment out of sex again, and I didn't
>want him to start worrying. After intercourse, I was in pain and it
>felt like my insides were going to come out. This pain lasted until
>Saturday afternoon. All day today, I have been suffering from "phantom"
>menstrual cramps with back aches and it's driving me crazy.
>
>I consented to this surgery because I thought that it was going to help
>in the long run. Not help for one week and then everything eventually
>goes back to the way it was before. I am so upset over this. To add
>insult to injury, I have been having burning sensations during
>urination. So, not only is the Endo coming back 16 days post-op lap,
>but I've developed a lovely UTI in the process (yipeee!).
>
>I just want to murder my doctor. I know that it's not his fault, he
>removed all the Endo that he could see, I just want someone to take this
>out on. I know he mentioned the possibily of me having "powder burns"
>and those are not very visible to the naked eye. He is singing the
>praises of Lupron, but because of all of the posts that I've read in the
>forum, in addition to my own indepth research, I can't go that route.
>He refuses Danazol (even worse side effects, he says), he says Zoladex
>is the same as Lupron, as it stands right now, Depo-Provera or regular
>BCPs may be my only option.
>
>I am just about ready to tell him to just remove all of my female organs
>regardless of the fact that I want kids so desperately that at times my
>heart aches. I don't want to deal with this. I don't want to believe
>that this is happening so soon after my lap. I'm trying to be strong
>and not go into a panic over this, but I just can't help but feel that
>something is not right. I have a consultation with him on 9/9, I don't
>think I can wait that long - I'm going to see if I can move it up.
>
>Has anyone else experienced anything like this so soon after a lap? I
>would really like to hear your comments on this. In the meantime, I
>will be drinking gallons of cranberry juice and taking lots of Echenacia
>until I can get an appointment with my Internal Medicine physician for
>this possible UTI.
>
>Thanks for listening. I'm venting here because I don't want to tell my
>husband what's going on right now. It would crush him.
>
>God Bless.
>
>Chandra
>Manassas, VA
>mrscmartin@hotmail.com
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 11:30:12 PDT
>------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: FYI
>Message-ID: <anonymous@obgyn.net>
>
>All:
>
>Hello, I thought I would pass this on to all of you. I was reading this
>book that I got from the library. It's called "Healing with Vitamins",
>it's by the editors of Prevention Magazine. Here is a list of vitamins
>and minerals that they feel are good for Endo.
>
>25,000 - 50,000 IU of Beta Carotene
>200 micrograms of Biotin
>400 micrograms of Folic Acid
>50 milligrams of Niacin
>50 milligrams of Pantothenic Acid
>50 milligrams of Riboflavin
>25 micrograms of Selenium
>50 milligrams of Thiamin
>30 milligrams of Vitamin B6
>50 micrograms of Vitamin B12
>1,000 - 4,000 milligrams of Vitamin C
>400 - 2,000 IU of Vitamin E
>
>Comments?
>
>Chandra
>Manassas, VA
>mrscmartin@hotmail.com
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 14:37:52 EDT
>------------------------------
>From: anonymous@obgyn.net
>To: anonymous@obgyn.net
>Subject: Re: accupuncture
>Message-ID: <anonymous@obgyn.net>>
>
>Chandra:
>
>You do feel it , but only a bit.... It is less then a needle prick when
they
>draw blood. The way that it works is that when the needles are inserted it
>changes the "normal" nerve signals and from what I understand it causes the
>body to excrete different types of endorphins etc. All I know at this
point
>is that it as helped me!! If you have any other questions let me know!!
>
>Anissa
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 14:39:53 EDT
>------------------------------
>From: anonymous@obgyn.net
>To: anonymous@obgyn.net
>Subject: Re: HELLO
>Message-ID: <anonymous@obgyn.net>>
>
>Chandra:
>
>I agree you need to make an informed decision. Please do not let all the
>negative sway you to one side. Ask those of us who had a positive
experience
>with Lupron. Take care and I wish you all the luck in the world. My
thoughts
>are with you!
>
>Anissa
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 12:14:31 -0700
>------------------------------
>From: splaz <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: ENDO digest 92
>Message-ID: <anonymous@obgyn.net>
>
>Hi DiAnna,
>
>I'm sorry it took so long to get back to you.
>
>My surgeon is Dr. Arnold Kresch, California Center for Pelvic Pain &
>Fertility, 780 Welch Road, Suite 206, Stanford Professional Center,
>Palo Alto, CA 94304 Phone 650 833 7900 Fax 650 833 7909. He has an
>incredible staff. They are so knowledgeable, kind and understanding!!
>You are treated with such dignity, not talked down to or thought to be
>over reacting.
>
>I went to him after almost 4 years of being told that when you have kids
>sometimes this happens. I was opened up diagnosed and the endo was left
>inside me. I fought with the Doc until I educated myself with The
>Endometriosis Sourcebook and then began my search for a good Doc, that's
>when I found Dr Kresch. I had a 3 1/2 hour surgery where he removed
>endo from my ureters, bowel, plevic wall & floor, culdesac essentially
>everywhere, my ovaries were so stuck you almost couldn't see them and
>then he did a procedure called an OPERA which is an ablation of the
>uterine lining. That was in March and so far so good. I have almost no
>period now, where before it was 7 days of flooding. This month I have
>had pain on my right side pretty bad but I'm not sure it's related to
>the endo It's like nothing I've ever felt befor. I'm actually worried
>it's appendicits. Well just one more thing to deal with. I really hope
>you contact Dr. Kresch he's one of the best.
>
>Rainbows
>
>Anne Spalasso
>Livermore, CA
>splaz@ix.netcom.com
>> From: direis1280@juno.com (DiAnna)
>> To: endo@obgyn.net
>> Subject: Re: ENDO digest 91
>> Message-ID: <19980823.174900.28134.0.direis1280@juno.com>
>>
>> Anne,
>> I have endo on my ureters and am not having much luck finding a surgeon
>> capable or willing to remove the implants. Would you suggest your
>> surgeon and if so, could you please post the surgeons name and address?
>> Peace,
>> Di
>>
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 13:32:39 PDT
>------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: accupuncture
>Message-ID: <anonymous@obgyn.net>
>
>Anissa:
>
>I had no idea that it causes the boy to secrete endorphins. How long do
>the needles have to stay in?
>
>Chandra
>mrscmartin@hotmail.com
>
>----Original Message Follows----
>Date: Sun, 30 Aug 1998 12:17:02 -0500
>Reply-To: anonymous@obgyn.net
>From: anonymous@obgyn.net
>To: Multiple recipients of list <anonymous@obgyn.net>
>Subject: Re: accupuncture
>
>Chandra:
>
>You do feel it , but only a bit.... It is less then a needle prick when
>they
>draw blood. The way that it works is that when the needles are inserted
>it
>changes the "normal" nerve signals and from what I understand it causes
>the
>body to excrete different types of endorphins etc. All I know at this
>point
>is that it as helped me!! If you have any other questions let me know!!
>
>Anissa
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 17:21:27 -0400
>------------------------------
>From: "Lorianne" <anonymous@obgyn.net>
>To: <anonymous@obgyn.net>
>Subject: RE: Post-op at Gyn Today
>Message-ID: <anonymous@obgyn.net>
>
>Some people have their hysterectomy down vaginally. In the event you
choose
>that route, is that a possibility for you?
>
>RESPONDING TO: edited version
>the only
> problem will be ,that if
>this hysterectomy is in my future, gyn ,may not be able to give me that
>'bikini
> cut" (going across
>lower tummy) ,I may have to have the vertical cut, because of the mesh
>that
> was placed, because of
>the left hernia, it is in the way...... gyn said , he would have to
>talk to the
> sugeron, just to see if it
>would be at all possible to have it 'bikini".. healing time is so much
>faster that
> way..... Of course ,with
>my luck, it would be the more painfull, ugly cut!!!. Right now ,that is
>is all I
> would worry about ,
>would be the cut
>Ronna
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 17:43:47 EDT
>------------------------------
>From: anonymous@obgyn.net
>To: anonymous@obgyn.net
>Subject: Re: accupuncture
>Message-ID: <anonymous@obgyn.net>>
>
>Chandra:
>
>It took my Doctor about 5 minutes to insert them. I had one in each foot,
one
>in each shin, in each hand (between the thumb and the pointer) and 5-6 in
my
>stomach. The ones in the hands and the feet were the most annoying, and I
was
>the most uptight about the stomach and I felt NOTHING. He woke up the
nerve
>endings in the hands and feet, and then I had to lay there and relax for
about
>15-20 minutes. I felt SOOOO relaxed when I left there!!
>
>I have had numerous Laps and tried Lupron, and while these worked for me, i
t
>was for only a period of time. I was willing to try about anything. I am
>happy to say, as I have stated before, that I have noticed a difference!!
>
>Hope your feeling well today!!
>
>Anissa
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 15:05:58 PDT
>------------------------------
>From: "Debra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: accupuncture
>Message-ID: <anonymous@obgyn.net>
>
>Anissa--
>Would accupressure be a suitable alternative for those of us who dread
>needles? =)
>(Sorry, I'm a big baby!)
>Deb
>
>>Date: Sun, 30 Aug 1998 14:09:46 -0500
>>Reply-To: anonymous@obgyn.net
>>From: "Chandra" <anonymous@obgyn.net>
>>To: Multiple recipients of list <anonymous@obgyn.net>
>>Subject: Re: accupuncture
>>
>>Anissa:
>>
>>I had no idea that it causes the boy to secrete endorphins. How long
>do
>>the needles have to stay in?
>>
>>Chandra
>>mrscmartin@hotmail.com
>>
>>----Original Message Follows----
>>Date: Sun, 30 Aug 1998 12:17:02 -0500
>>Reply-To: anonymous@obgyn.net
>>From: anonymous@obgyn.net
>>To: Multiple recipients of list <anonymous@obgyn.net>
>>Subject: Re: accupuncture
>>
>>Chandra:
>>
>>You do feel it , but only a bit.... It is less then a needle prick
>when
>>they
>>draw blood. The way that it works is that when the needles are
>inserted
>>it
>>changes the "normal" nerve signals and from what I understand it causes
>>the
>>body to excrete different types of endorphins etc. All I know at this
>>point
>>is that it as helped me!! If you have any other questions let me
>know!!
>>
>>Anissa
>>
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 15:07:58 PDT
>------------------------------
>From: "Chandra" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: accupuncture
>Message-ID: <anonymous@obgyn.net>
>
>Anissa:
>
>You have convinced me!!! I think I may see if I can find an Acupuncture
>Specialist in my area. Do you think something like this is covered by
>insurance? I'll keep you posted on my findings.
>
>Chandra
>Manassas, VA
>mrscmartin@hotmail.com
>
>----Original Message Follows----
>Date: Sun, 30 Aug 1998 15:21:39 -0500
>Reply-To: anonymous@obgyn.net
>From: anonymous@obgyn.net
>To: Multiple recipients of list <anonymous@obgyn.net>
>Subject: Re: accupuncture
>
>Chandra:
>
>It took my Doctor about 5 minutes to insert them. I had one in each
>foot, one
>in each shin, in each hand (between the thumb and the pointer) and 5-6
>in my
>stomach. The ones in the hands and the feet were the most annoying, and
>I was
>the most uptight about the stomach and I felt NOTHING. He woke up the
>nerve
>endings in the hands and feet, and then I had to lay there and relax for
>about
>15-20 minutes. I felt SOOOO relaxed when I left there!!
>
>I have had numerous Laps and tried Lupron, and while these worked for
>me, it
>was for only a period of time. I was willing to try about anything. I
>am
>happy to say, as I have stated before, that I have noticed a
>difference!!
>
>Hope your feeling well today!!
>
>Anissa
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 18:05:09 +0000
>------------------------------
>From: anonymous@obgyn.net
>To: anonymous@obgyn.net
>Subject: Re: Have a question Help me please.
>Message-ID: <anonymous@obgyn.net>
>
>I have been reading these posts and I completely understand how you
>feel!! I have had chronic UTIs since 1993. I was put on an antibiotic
>twice daily for the past 3 years probably. I still got them but not
>as often. I went off my antibiotic at the very end of June. Guess
>what?!?! A few weeks ago I had a urnialysis done and we didn't
>think anything would show. the results came back that nothing was
>significant. My gyn (knowing my history and what I have been through
>with my urologist) sent it to be cultured. And I get a call..."guess
>who has a urinary tract infection, Jenn?' I say "me?!" Yep.
>
>I can't seem to do anything to help keep them away. I hate drinking
>water but I do drink spring water like at work. That is major
>improvement! I cant do the cranberry juice thing b/c it is acidic
>and I have bladder spasms (I am on pyridium 600mg a day for a long
>time now--usually they give it to get through the UtI b/c it calms
>the bladder down). I have been doing great with the spasms and cant'
>risk that again. It took forever to calm down. Any other
>suggestions? Oh, don't take a bath...shower only they say. And in
>summer weather....wear a bathing suit only for the time you need to.
>Not like all day after the beach. Dont wear tight bathing suits,
>underwear or jeans. Yes, even wearing tight jeans can help create
>the infection. Just thought I would throw that in there.
>
>Thanks for listening.
>
>Jenn
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 19:31:12 -0400
>------------------------------
>From: Druzgal <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Cc: anonymous@obgyn.net
>Subject: Re: National Lupron Victims network-- Marla
>Message-ID: <anonymous@obgyn.net>
>
>Don't worry. I am out of here.
>
>I have never seen so much cattiness among a group of "fellow sufferers."
>We have all been through hell, but it seems more important to concentrate
>on (how was that phrased) - "pissin match"'s than getting to the source of
>the problems.
>
>I belong to several discussion boards. Each of them have pro-Lupron and
>anti-Lupron. While the debate over its uses are common, it has never been
>contested from even those pro-Lupron, that those of us who do have the
>symptoms are simply trying to "blame everything you have wrong with you
>now, just because they happened AFTER you took Lupron."
>
>I would never presume to know about any of your situations. The only
>difference between us is that I don't believe Lupron should be approved for
>the uses for which it is assigned. IF it were approved for those uses for
>which it is so commonly used, it would be a different debate from me. I am
>attacked because I don't believe that Lupron should be allowed to be used,
>because I am "trying to tell what is and is not right ... because taht's
>certainly how I read it. You *are* saying you know what's right for me."
>
>What I am not saying is that I "know" what is right for anyone else. What
>I am saying is that this drug is not approved by the FDA for all the uses
>for which it has been and is now being used - specifically as I stated -
>infertility and fibroid shrinkage. I suppose that by agreeing with NLVN in
>the first place I should have realized that I was going to alienate myself
>from the board. That is unfortunate, because whether or not Linda is a
>fellow sufferer, the fact remains that I am a fellow sufferer, who no
>longer wants to associate herself with a "support" group.
>
>It seems to me that the only place where any difference of opinion between
>us occurs is that I believe Lupron should not be used for those uses, and
>not allowed to be prescribed for those uses, for which it is not approved.
>I do not see what is wrong with that belief.
>
>So in asserting my strong feelings on a drug which has effected so much
>influence over so many, and had horrible (yes HORRIBLE) effects on many
>women, I am instantly cut-down.
>
>I am sorry that any of you had personal difficulties with Dr. Abend (yes -
>believe it or not, a dentist is a doctor too). Is she any different than a
>concerned husband who takes it upon himself (although his loved one went
>through the suffering - NOT HIM PERSONALLY) to research the facts to try to
>stop what he believes is an atrocity upon the human body?
>
>Maybe she has the personality of a a**ho*e. I have no idea, because I have
>not been on the same side of the fence as those who have had
>"confrontations with her."
>
>But I do know that in relation to her research, her dentistry status and
>non-Lupron status are irrelevant if anything. As a matter of fact, if you
>go to any scientific laboratory, they PREFER that those who do the research
>are not affiliated with or in any way have first hand knowledge of the
>drugs effects, because the study no longer can remain objective.
>
>I don't care if she had Lupron or not. My husband never had it, but he
>sure as heck knows more about it than most of the women I've come across in
>the boards, because he reads about it daily. He looks up those abstracts
>and journals which are listed in the NLVN website, and he reads for himself
>what the studies have shown and what evidence is warranted or not.
>
>How many of us have gone and researched this? We may have first-hand
>knowledge of what it has or has not done for each of us, but that does not
>make us "experts" unless we are willing to go the extra steps to look at
>the outside world as well.
>
>My husband and I have spent hours reading about endo and about Lupron and
>about fibroids and about human physiology. While my college majors were
>English and Economics and his was Safety Science, it doesn't mean we are
>any less "qualified" to do research on this drug. Likewise, because Linda
>is a DMD, not an OBGYN or a general MD, does not mean she cannot do the
>homework that each of us should be doing, to learn more and pass on more
>information on something we believe is seriously wrong.
>
>I have pains that wake me up at night. I have pains that cripple me during
>the day. Because I condemn a drug which has not been approved for which it
>is used for, does not mean that I have no idea what others are going
>through. If I had known even one person who had been through the severity
>of the Lupron effects when I was making my decision to take the drug, I
>would not have taken it. But unfortunately, I did not have the luxury of
>the "WEB" at that time, and there were no discussion groups to turn to, nor
>were there "fellow sufferers" with whom I could turn to decide my fate. At
>that time, I only had the words of a physician, who, like so many
>physicians today, was mislead by the manufacturers of the drug, to believe
>that the only side-effects were short-term "menopausal" symptoms.
>
>I have loved the boards, because I have read everyone's input, responded
>privately to many who were having difficulties physically and emotionally,
>and made some lasting friendships through our mutual suffering. But I have
>never responded to posts to "pat someone on the back" for retorting to a
>fellow member.
>
>It hurts to type this, because I feel I am being negligent to future women
>who join the board who might have a particular situation in which I could
>empathise with their difficulties, but I have to stop putting myself
>through the anxiety of retrieving my email - wondering who the next woman
>will be with her claws out, ready to defend something which was not
>attacked. I need to be selfish right now, and do my own research and plan
>my own health, and hope that everyone else can do the same.
>
>I have seen others post their "goodbyes" onto these discussion boards, and
>I honestly never believed that I would ever be one of them. I stayed out
>of their discussions and took what information from EACH side which I
>deemed relevant and true for my own situation. I don't even want to sit
>and watch anymore, let alone participate. I have never been so
>disappointed and disheartened.
>
>Good luck to ALL of you in your health and wellness. I sincerely hope that
>you each find the health that you are looking for and that endometriosis
>and fibroids find their way closer to the public's concern that they have
>been in many years. I hope that more conclusive studies can be done to end
>the debates on the Lupron controversy and I hope that a cure can be found
>for these horrible female difficulties.
>
>Have a safe and happy life, whatever course you take.
>
>Peace.
>
>At 12:02 PM 8/30/1998 -0500, you wrote:
>>Tricia--
>><applause>
>>Well done, sister, well done. After 6 years of competitive debate and
>>rhetoric, I must say that that was one of the best rebuttals I have seen
>>in a very long time...
>>Deb
>>
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 18:38:35 CDT
>------------------------------
>From: "Dina" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: Have a question Help me please.
>Message-ID: <anonymous@obgyn.net>
>
>Deb,
>
>Kidney infection causes pain in the upper and lower abdomen too. Believe
>me i know.
>
>Dina
>
>>From anonymous@obgyn.net Sun Aug 30 09:29:08 1998
>>Received: from talk (anonymous@obgyn.net [127.0.0.1])
>> by talk.obgyn.net (8.8.8/8.8.8) with SMTP id LAA04644;
>> Sun, 30 Aug 1998 11:27:59 -0500
>>Date: Sun, 30 Aug 1998 11:27:59 -0500
>>Message-Id: <anonymous@obgyn.net>
>>Errors-To: anonymous@obgyn.net
>>Reply-To: anonymous@obgyn.net
>>Originator: endo
>>Sender: anonymous@obgyn.net
>>Precedence: bulk
>>From: "Debra" <anonymous@obgyn.net>
>>To: Multiple recipients of list <anonymous@obgyn.net>
>>Subject: Re: Have a question Help me please.
>>X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas
>>X-Comment: OBGYN.net Endometriosis Pavilion mail service
>>Content-Type: text/plain
>>
>>Mandy--
>>
>>Sure sounds like it to me. Bladder infections cause pain (almost a
>>burning sensation) during urination. The best thing to do? Flush it
>>out. Drink twice as much water as usual (about 16-8oz. glasses a day)
>>and pure, 100% cranberry juice (I usually drink about 1/2 a gallon a
>>day) every day until the infection is gone. If you can't handle the
>>flavor of cranberry juice, you can purchase cranberry pills from your
>>pharmacy or health food store. This is what my doctors suggested to me
>>as a kid (I had a mysterious condition that left me prone to frequent
>>bladder and kidney infections. When I say frequent, I mean about 1
>>every 2 weeks...). It may take longer than antibiotics, however, you
>>avoid the side effects of the antibiotics (like yeast infections). The
>>whole process should only take about 4 to 5 days.
>>However, if the pain you are feeling during urination seems to come
>from
>>somewhere other than your bladder or uretha (remember, bladder is in
>>front, kidneys are in back), you need to get to your doctor.
>>Hope this helped!
>>Deb
>>debra_wells@hotmail.com
>>
>
>------------------------------
>
>------------------------------
>Date: Sun, 30 Aug 1998 18:52:33 CDT
>------------------------------
>From: "Dina" <anonymous@obgyn.net>
>To: anonymous@obgyn.net
>Subject: Re: 16 Days Post-Op Lap and No Good News to Report
>Message-ID: <anonymous@obgyn.net>
>
>Chandra,
>
>Sounds to me like you could have a kidney infection and not the return
>of endo so soon. That is exactly the way i was feeling about 3 weeks
>ago. I thought i had a cyst or something. Went to the ER and found out i
>had a kidney infection from hell. Both kidneys involved.
>
>Dina
>
>>From anonymous@obgyn.net Sun Aug 30 11:35:39 1998
>>Received: from talk (anonymous@obgyn.net [127.0.0.1])
>> by talk.obgyn.net (8.8.8/8.8.8) with SMTP id MAA00322;
>> Sun, 30 Aug 1998 12:02:50 -0500
>>Date: Sun, 30 Aug 1998 12:02:50 -0500
>>Message-Id: <anonymous@obgyn.net>
>>Errors-To: anonymous@obgyn.net
>>Reply-To: anonymous@obgyn.net
>>Originator: endo
>>Sender: anonymous@obgyn.net
>>Precedence: bulk
>>From: "Chandra" <anonymous@obgyn.net>
>>To: Multiple recipients of list <anonymous@obgyn.net>
>>Subject: 16 Days Post-Op Lap and No Good News to Report
>>X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas
>>X-Comment: OBGYN.net Endometriosis Pavilion mail service
>>Content-Type: text/plain
>>
>>Hi all:
>>
>>I am sitting here about to tear my hair out because I am so frustrated
>>right now. I am only 16 days post-op lap and I am starting to feel my
>>old symptoms creeping back up on me again.
>>
>>On 8/16, I had my first pain-free period in 5 years. There were
>twinges
>>of sharp pains, but not the same intensity as before. On 8/21, my
>>husband and I had intercourse and it was pain-free for the first time
>in
>>2 years. It was great!! All last week, I was constantly feeling
>>sharp, stabbing pains in my abdomen, just like before, but with less
>>intensity. With these pains, I could still function. This past
>Friday,
>>8/28, my husband and I had intercourse again and THE PAIN WAS BACK!!!
>I
>>didn't tell him because he has really been looking forward to the time
>>when I could finally get some enjoyment out of sex again, and I didn't
>>want him to start worrying. After intercourse, I was in pain and it
>>felt like my insides were going to come out. This pain lasted until
>>Saturday afternoon. All day today, I have been suffering from
>"phantom"
>>menstrual cramps with back aches and it's driving me crazy.
>>
>>I consented to this surgery because I thought that it was going to help
>>in the long run. Not help for one week and then everything eventually
>>goes back to the way it was before. I am so upset over this. To add
>>insult to injury, I have been having burning sensations during
>>urination. So, not only is the Endo coming back 16 days post-op lap,
>>but I've developed a lovely UTI in the process (yipeee!).
>>
>>I just want to murder my doctor. I know that it's not his fault, he
>>removed all the Endo that he could see, I just want someone to take
>this
>>out on. I know he mentioned the possibily of me having "powder burns"
>>and those are not very visible to the naked eye. He is singing the
>>praises of Lupron, but because of all of the posts that I've read in
>the
>>forum, in addition to my own indepth research, I can't go that route.
>>He refuses Danazol (even worse side effects, he says), he says Zoladex
>>is the same as Lupron, as it stands right now, Depo-Provera or regular
>>BCPs may be my only option.
>>
>>I am just about ready to tell him to just remove all of my female
>organs
>>regardless of the fact that I want kids so desperately that at times my
>>heart aches. I don't want to deal with this. I don't want to believe
>>that this is happening so soon after my lap. I'm trying to be strong
>>and not go into a panic over this, but I just can't help but feel that
>>something is not right. I have a consultation with him on 9/9, I don't
>>think I can wait that long - I'm going to see if I can move it up.
>>
>>Has anyone else experienced anything like this so soon after a lap? I
>>would really like to hear your comments on this. In the meantime, I
>>will be drinking gallons of cranberry juice and taking lots of
>Echenacia
>>until I can get an appointment with my Internal Medicine physician for
>>this possible UTI.
>>
>>Thanks for listening. I'm venting here because I don't want to tell my
>>husband what's going on right now. It would crush him.
>>
>>God Bless.
>>
>>Chandra
>>Manassas, VA
>>mrscmartin@hotmail.com
>>
>
>------------------------------
>
>------------------------------
>End of ENDO Digest 113
>------------------------------
>**********************
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