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Re: New Here...With EndoFrom: Chandra (anonymous@obgyn.net)Sun Aug 30 12:41:27 1998
Laura: Though I am not facing the possibility of a hysterectomy, I know what it's like to be dismissed as a hypochondriac or just as having something small. I've had Endo for 5 years now. Previously, I was either told that it was all in my head, that periods are supposed to be painful, that I have IBS and I've also been told that I have PID. There is no such thing as small Endo. Even the powder burns can wreak havoc on your body. I am so glad that you did finally come across a physician that listened to you and was willing to help. How do YOU feel about facing a hysterectomy? If you feel like there is a possibility that your uterus can be saved, please seek a second opinion. I don't want to frighten you, but there are still be a lot of Ob-Gyns out there that believe that the solution to female problems is to remove the female organs. Sometimes that's not the case. You are not alone here. We are all here for you. Welcome to Sisterhood! Chandra Manassas, VA mrscmartin@hotmail.com ----Original Message Follows---- Date: Sat, 29 Aug 1998 21:25:59 -0500 Reply-To: anonymous@obgyn.net From: anonymous@obgyn.net (Laura) To: Multiple recipients of list <anonymous@obgyn.net> Subject: New Here...With Endo I have read some of the messages here and I think you are all very supportive. I was diagnosed with endo 18 years ago. It was not a lot, but I was in a lot of pain. Back then I guess there was nothing that could be done until it was so bad you needed a hysterectomy. I have 2 children now and Im 36 years old. For the past 10 years I have been having a lot of pain again. When I would tell my Drs that I was diagnosed with endo, they looked at my chart and said oh it is so small, it isnt causing your trouble. So I suffered with it. About a month ago, I started having sever stabbing pains by my right ovary. We now have a different insurance company, so I saw a new Dr. She really listened to me and did an ultrasound to check for tumors and cysts. I have a large fibroid tumor on my uterus. She did a lap to try to remove the fibroid and any endo she might find, and was so overwhelmed at how bad then endo is. There was nothing she could do. The endo also spread to the bladder. Right now I am waiting to have a complete hysterectomy. I have been in so much pain all the time now. I am very upset and very scared about having this surgery. No one seems to understand me. I have been looking for a support group or a chat room to go to but when I find them they either dont work, or arent on line at the time. I just needed to talk with someone who has been there or is there right now. I feel all alone here. Thanks for listening, Laura
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