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New Here...With Endo

From: Laura (anonymous@obgyn.net)
Sat Aug 29 21:25:40 1998


I have read some of the messages here and I think you are all very supportive. I was diagnosed with endo 18 years ago. It was not a lot, but I was in a lot of pain. Back then I guess there was nothing that could be done until it was so bad you needed a hysterectomy. I have 2 children now and Im 36 years old. For the past 10 years I have been having a lot of pain again. When I would tell my Drs that I was diagnosed with endo, they looked at my chart and said oh it is so small, it isnt causing your trouble. So I suffered with it. About a month ago, I started having sever stabbing pains by my right ovary. We now have a different insurance company, so I saw a new Dr. She really listened to me and did an ultrasound to check for tumors and cysts. I have a large fibroid tumor on my uterus. She did a lap to try to remove the fibroid and any endo she might find, and was so overwhelmed at how bad then endo is. There was nothing she could do. The endo also spread to the bladder. Right now I am waiting to have a complete hysterectomy. I have been in so much pain all the time now. I am very upset and very scared about having this surgery. No one seems to understand me. I have been looking for a support group or a chat room to go to but when I find them they either dont work, or arent on line at the time. I just needed to talk with someone who has been there or is there right now. I feel all alone here. Thanks for listening, Laura



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