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Should endo sufferers have children?From: Lorianne (anonymous@obgyn.net)Thu Aug 20 11:48:08 1998
I understand the dilemma you feel. I have three preschoolers and by no means can I offer them the same normal life of varied activities that say my next door neighbor gives her four children. This is a constant source of depression for me. I have hope though. I am trying everything I can to offer them a life as close to normal as I can. I'm doing this while I hold steadfast to my commitment to myself to attain as much normality as I can by battling my endo through natural means. With all the failures I've had with drugs, I've turned toward other measures. I'm finding that they are slowly working for me. I'm only dealing with endo, not side effects. It seems to be making all the difference in the world to me. The benefits keep increasing, but it has been a slow process. And, I cannot attribute it to any one thing I'm doing; it very much points to a synergistic effect of the combined efforts. So, the bottom line is that I do not regret having children. They are both a joy and a burden at many differing moments. However, I think this is the case in most people's lives, even people without diseases. And, I feel I will be better enabled to rise above the endo as I continue to plunge ahead with the methods I've begun and will continue to improve upon as time passes. Still, I don't really know how to respond to your question when you look at the genetics, etc. part of the equation. I get a pit in my tummy to think my daughter might have endo. I can't bear the thought of her suffering like I have. I can only hope that if I choose to conceive again that I will have the determination and strong resolve to firmly avoid as much exposure to xenobiotics and petrochemicals as is possible before conception and after. And, since this is a goal in my life regardless, it just might work out. Until your post I hadn't given the selfish side of me much thought. I guess I could be selfish to desire more children; I so much would love to have a "love child." A baby purposefully made and wanted. My first three children were birth control failures and successes at the same time! Their presence is a marvel to me. I am thankful they are in my life and I love them and their father with every fiber of my being. I don't suppose I answered your question, but perhaps either choice (to have children or not to have children) could be the right answer. Either way, which ever decision we make will be good and right for each of us. Thinking rainbows for a sunnier future, both warm and bright for all, Lorianne -----Original Message----- From: anonymous@obgyn.net [mailto:anonymous@obgyn.net On Behalf Of kmckeigh Sent: Thursday, August 13, 1998 4:36 PM To: Multiple recipients of list Subject: Questions? med-long Hi to everyone: I am so grateful for this forum and have just been reading all the e-mails over the past three weeks or so, but wanted to see if i could get some questions answered. i am 39 years old, diagnosed with stage IV endo through laporascopy surgery 2 years ago. I had 1 Lupron shot but had bad side effects and went off it. Have never been able to take birth control pill either. I probably had endo for many years but did not know it. Now my symptoms are back and am feeling bad about 2 weeks out of each month. I plan on marrying soon and my OB sent me to a fertility specialist. He told me if I wanted children, the only way at this point in my life would be to start IVF yesterday! If I was not considering children, then Lupron therapy or hysto. That is when I started doing research and found this forum. I have sent my records to the endo clinic in Atlanta to Dr. Lyons and expect a call soon. I also sent records to Dr. Cook in Louisiana and have a phone consult with him next Wed. One of my questions is has anyone had success with surgeries at either of these clinics? If it is possible for me to still have children, being almost 40 and if and when symptoms do come back, is it unfair to the child when not feeling good most of the time? Was wondering how those of you who have children cope with raising children and having endo. I appreciate all your e-mails and thank you for taking the time to read my story Karen McKeighen Akron, OH ------------------------------------- Name: kmckeigh ------------------------------------- E-mail: kmckeigh <anonymous@obgyn.net> -- ------------------------------------- Date: 8/13/98 Time: 4:24:42 PM
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