ENDO Messages for August, 1998: Re: Endo vs. Nervous Breakdown

Re: Endo vs. Nervous Breakdown

From: Michael (anonymous@obgyn.net)
Sat Aug 15 22:29:33 1998

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Sarah -

Endometriosis is not all in your head. From the time I was twelve, I suffered horrible cycles. Basically I was told that women just have to "learn to live" with monthly pain. I live with that pain for 18 years. Finally, my regular Ob/Gyn diagnosed me as being afflicted with Endometriosis. What a weight was lifted off of my shoulders! Finally there was proof that I was not making this all up -- and I found there were other women who suffered as I suffered.

I have a wonderful husband, but it is hard for him to realize just had difficult "living with" the emotions and the excruciating pain can be for me. Men and women associate pain and emotion differently. You have to put the pain into his plane of thinking. A man has no idea how having an edometrial implant disturbed during intercourse feels. A good analogy to use might be that of a blister from a pair of new shoes. The longer the shoe rubs the blister the more it hurts, thus, you don't want to wear those shoes any longer than you have to wear them, and so it is with Endometriosis and intercourse. You should not be embarrassed. Endometriosis is not your fault. You cannot change what is happening inside of your body. If you are having pain with intercourse, you need to speak to your doctor -- be honest and direct. Also, think the situation through with yourself.

The first question you should ask your self is if you have had Lapraoscopy performed. If not you need to question your doctor why this has not been done. If you can not get a satisfactory answer -- get a second opinion.

Second, if you have had Laproscopy ask yourself if your symptoms are the same or have they increased since the 'scope. If the symptoms are the same or have increased, contact your doctor if you cannot get a satisfactory answer again -- get a second opinion.

Third, if you have had the 'scope were you treated with a GnRH drug (like Lupron) to put you into a state of puseudomenopause to give your system time from cycling and possibly to help shrink some of the endometrial implants that could not be removed with the laser? Again, if you were not -- get a second opinion.

The bottom line is that you are not alone even though you may feel like it. My doctor did try giving me Anaprox for the pain, but I did not get the relief from this that alot of women get.

One other suggestion. Perhaps is you purchase the book "In Pursuit of Fertility" by Dr. Robert R. Franklin (you can find it at Amazon.com) and let your boyfriend read the chapter dealing with Endometriosis. It not only explains one theory of why we become diseased, but it also includes explanations of the various treatment options. He might begin to get an inkling of what is going on with you. By the way, Dr. Franklin is my specialist in Houston, Tx.; he is considered to be one of the "Gurus" for our disease.

Remember, you are not alone! -----Original Message----- From: Chandra <anonymous@obgyn.net> To: Multiple recipients of list <anonymous@obgyn.net> Date: Saturday, August 15, 1998 6:01 PM Subject: Endo vs. Nervous Breakdown

>Sara,
>
>I feel your pain. I am completely at my wits end with Endo. Yesterday
>I had an operative laparoscopy done and will begin 6 months of Lupron
>therapy. It's not all in your head. Girlfriend, Endo does play with
>your mind. It absolutely disrupts your life and at times makes it
>impossible to function as a normal person. Fortunately for me, I have a
>very understanding husband and when I hit my emotional rollercoaster
>(because this disease is so frustrating) he understands and leaves me
>too cool off.
>
>Try to explain to your boyfriend exactly what is going on with your mind
>and your body. Sometimes with men, they just don't quite get it simply
>because they are MEN. I had to tell my husband to imagine that two
>weeks out of the month he had excrutiating pain in his testicles, so bad
>that all he wanted to do was lay in a corner and cry. Now then I asked
>him to imagine that the only treatment was for him to take pills that
>put him on an uncontrollable emotional ride and at the same time, you're
>dealing with the frustration of "why" you got stuck with this horrible
>disease. When I put it like that, he understood.
>
>Good luck to you Sarah, and remember...this disease should not make you
>insecure, it's not your fault.
>
>Chandra
>
>----Original Message Follows----
>Date: Thu, 13 Aug 1998 17:20:12 -0500
>Reply-To: anonymous@obgyn.net
>From: Sarah <anonymous@obgyn.net>
>To: Multiple recipients of list <anonymous@obgyn.net>
>Subject: (no subject)
>
>ok - I need to vent...
>
>Is there anyone else out there that feels like they are at their
>emotional limit in dealing with endo? This disease is making me crazy!
>The continuous birth control pills seem to intensify my emotions which
>is effecting my relationship with my boyfriend. As a result our
>relationship is strained. Its not just that having sex is painful, its
>embarassing! This whole situation is making me insecure about myself...
>Does anyone see a physician to help them deal with this?
>
>Thanks,
>Sarah
>

Next message: Roberta: "Does Zoloft help with moodiness and depression caused by Endo Meds?"
Previous message: kmckeigh: "Re: Questions? med-long"
Maybe in reply to: Chandra: "Endo vs. Nervous Breakdown"

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