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Re: living with endoFrom: Alexia (anonymous@obgyn.net)Fri Aug 7 22:41:28 1998
I have had my 4th surgery for endo, and my first one I had a cystoscope and lap done at the same time. My second surgery I just had a lap, and the third I had laser surgery and they removed my appendix because it was connected to my ovary. I have been on every strength of birth control and also tried the depro-parvo which is the only thing that has come near helping me except the bad side effects. My muscles started hurting and my joints, I couldnt hardly walk in the mornings the bottom of my feet were even tender. My last option given to me was the lupron, but for now im just living with the pain. So I guess what im trying to say is I sympathize with all of you, wish I would have known about this support group a long time ago.....hang in there its got to get better!!
-- ---------- > From: Dragon <prawski@emunix.emich.edu> > To: Multiple recipients of list <endo@talk.obgyn.net> > Subject: Re: living with endo > Date: Friday, August 07, 1998 7:27 PM > > > > >What alternatives are there to using lupron? I would like to try > >something with fewer side effects. > > > > I am taking Micronor (for "mild" endo) which isa progesterone > derivative only BCP. I know of people who are using Depo-Provera > (which was my doc's alternative to Micronor but i didn't want Provera > so I wentwith the Micronor). My step sister was on a nasal spray > about 5-6 years taht was daily, i think that was Syrnel (sp?). > > http://www.geocities.com/HotSprings/9783 lists some very > general treatment options taht the site owner has heard of, > and you could get more information with fist hand experiences > ofwhat some other ladies have used/been treated with by > posting the question in alt.support.endometriosis a support > newsgroup. > > My side effects nclude extra oily skin (slowly developing to acne), > nails growing for teh first time in my life, a little weight gain > (10lbs or so in the 9 months I've been on it), some moodiness and > during the first 3 months I dealt wtih mornng sickness, constant > nausea and complete exhaustion, which has let up to only require > naps every few days. > > Best Wishes, > Tricia > > -- > ===================================================== > = Patricia Rawski=== === prawski@emunix.emich.edu > = =================== == rawski@online.emich.edu > = =================================================== > =================== nethack addict ================== >
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