Re: Chronic Endometriosis
For more information on symptoms and treatment of endometriosis visit www.EndometriosisZONE.org.
From: Kristen (anonymous@obgyn.net)
Wed Sep 2 20:41:37 2009
Hi,
I've suffered with endometriosis for more than 10 years now and have
tried many many treatments, including Depo-Provera, Lupron, several
different BCPs, herbal remedies, laparoscopies, etc. the list goes
on. I made a decision a few years ago to see a specialist. This
doctor was a pain management doctor, but he specialized in pelvic pain
and had worked with a team of doctors from NYU and Columbia on
treatments of pelvic pain due to endometriosis. This doctor
recommended a procedure called "superior hypogastric plexus block".
The procedure itself takes only about 15 minutes and it has been a
blessing for me. During this procedure,the doctor basically injects a
medication (bupivicane in my case) into the plexus which is located in
front of your L5 vertebrae and blocks the pain fibers in that area.
In the beginning, i was going for this procedure every 2-3 months, but
now i go every 5-6 months and it continues to block the pain for that
long. I am not 100% pain free, but as most endometriosis sufferers
know - any relief is wonderful. I would say these procedures have cut
the pain in half if not more and my quality of life has increased
dramatically.
This procedure is done in my doctor's office and no sedation is
needed. I would highly recommend discussing this option with your
doctor. I am not saying it will definitely work for you because all
treatments work differently on different people, but it has helped me
incredibly. If you need more information about this procedure, you
can find a lot of info on the internet or feel free to ask me. I will
do what i can to help.
I wish you pain free days in the future - take care!
Kristen
At Wed, 26 Aug 2009, sunshineinhappiness wrote:
>
>Hi,
>
>I have severe endometriosis, does anyone have any recent suggestions to
>help the pain (excluding, those i have tried, zoladex, co-codamol, tens
>machine, hot water bottles, dairy free, wheat free, gargling with oil,
>drinking cider vinegar with bicarb, aerobic exercise, yoga, pilates,
>accupressure, accupuncure, reiki, massage, reflexology, keep distracted.
>Also my gyne says that hysterectomy will have to happen, does anyone
>know of alternatives to avoid this? Many thanks
>
>At Wed, 21 Apr 2004, Lori wrote:
>>
>>Hi,
>>Even though you mentioned the natural route that you have tried, I will
>>list what has worked for me:
>>Besides the herbal remedies-chastree,don quai,evening primrose
>>oil,slippery elm,amino acids,dandelion leaf,ginseng,liquorice,black
>>cohosh,folic acid,calcium/magnesium,st johns wort...it is crazy
>>sometimes, they are given to me thru a naturopath dr.-theraputic doses
>>so are not the normal dosages.
>>I also use natural progesterone cream on my own-cannot live without
>>that-I even stock up,it is the thing that took the cramps away-but from
>>experience I have to use it diligently
>
>>With all of this treatment, I have been doing very well so far-3 very
>>good months! amazingly I was a normal person! The dr. cut the doses
>>down & was still ok, until they were cut down again & then disaster-but
>>not as bad as before I started treatment. I guess one suggestion is to
>>look for another herbal or naturopath dr. to treat you since you seem
>>to be have experience with that route?
>>A good sleep remedy is: calcium/magnesium citrate before bed along with
>>chamomile tea afterwards
>>Hope something here helps
>>God Bless
>>Lori
>>
>>At Wed, 21 Apr 2004, Jude wrote:
>>>
>>>Hi all,
>>>
>>>My name is Jude, I am 30 years old and live in New Zealand. I am
>>>feeling very disillusioned because my pain is getting worse with every
>>>period. The pain is getting so bad I have been unable to work during my
>>>period, even though I take pain medication (Voltaren and Panadeine). I
>>>have very heavy bleeding the first two days, with large clots. I
>>>experience bad lower back pain, painful bowel movements and nausea. I
>>>have trouble sleeping at night because of the pain and have given up
>>>having sex becuase it is so painful.
>>>
>>>I have a past history of endo, having had 4 surgeries (one exploratory,
>>>three to excise endo) and seven pharmaceutical treatments; Provera (x2),
>>>Depo Provera, Dimetriose, Zoladex, Mirena IUD and I have trialled Epilim
>>>to relieve pain.
>>>
>>>I am on a wheat and dairy free diet, exercise regulary, drink limited
>>>caffeine and wine. I have tried acupuncture, herbal remedies, vitamin
>>>and mineral supplements and a heated wheat pack.
>>>
>>>I am wondering if anyone else is in the same situation, and if so, what
>>>have you done that was helpful to relieve pain or treat the endo? I am
>>>going to see a Gyn on Monday but I feel hopeless and don't think that
>>>the Gyn will have any more options for me. I am really at my wits end
>>>this time because I am in the middle on a couselling internship for my
>>>Masters degree and I don't want endo to take over my life when I am
>>>trying to study and see cli
>, Jude.
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