Re: Hysterectomy
From: teresa (anonymous@obgyn.net)
Fri Jul 31 23:18:20 2009
Hi,
I'm 26 and thinking of doin the hystorectomy also.. I have 3 beautiful
children and have tried everything to help my endo... nothing seems to
work,
and as for taking the meds to see what real menopause will be like I
dont
need to cause when I have a cyst growing I get all the signs of
menopause
anyway.. hot flashes night sweats vaginla dryness I am tired of all of
it
but not sure if I really want the hystorectomy either...
At Tue, 28 Jul 2009, sally wrote:
>
>muscle relaxants are great for uterine pain
>
>At Mon, 27 Jul 2009, E. wrote:
>>
>>I would like to second this sentiment.
>>A hysterectomy is a 'forever' treatment. Unlike drugs, you can't just
>>stop it and go back to your normal hormone levels.
>>If I were you, I would try any and all treatments I could, including
>>accupressure, accupuncture, topical progesterone, muscle relaxants, and
>>diet modification.
>>It is very hard to get treated by gyns for endo after a hysterectomy
>>because the majority do not believe endo occurs after a hysterectomy. So
>>you may want to think about your treatment options if the endo does
>>recur.
>>If you have ever been on Lupron, you will get a glimpse as to wh
menopause does to your body. The hot flashes, vaginal dryness,
>>weight gain, mood swings, etc. can be just as devastating as endo is.
>>I support your decision to have a hysterectomy if you have truly come to
>>the end of your rope, however, I really think I would talk to your
>>doctor and find out what his treatment plan would be in case the endo
>>came back.
>>
>>At Mon, 27 Jul 2009, Pam wrote:
>>>
>>>Hi Erica and Maura,
>>>
>>>I don't want to cause you to go through
>
>ng, but I feel
>>>that before you get a hysterectomy you owe it to yourself to try any
>>>altern
>>
>>y can. You are both so young I would hate
>>>to see you getting a hysterectomy that that age.
>>>Let me tell you a little about my story. I didn't realize I had endo
>>>until I could not get pregnant. I had pain, but thought it was
>>>"normal". While seeing a reproductive endocrinologist and going through
>>>surgeries, etc. I decided to try some alternatives while also using
>>>conventional medicine. I started with a massage 1/wk and did this for 2
>>>1/2 yrs. It made me realize how completely stressed out I was, I guess
>>>I knew it, but didn't consciously acknowledge it. I still didn't have
>>>any luck with getting pregnant, but I was feeling a little better. I
>>>read in a magazine how acupuncture could help with infertility and with
>>>endo. I decided to try it. After about 6 mo of weekly visits I had
>>>another surgery. The Dr. noted that the endometrioma on my ovary was
>>>actually at the point of falling off! I got pregnant shortly after that
>>>surgery, but continued with the acupuncture for
>>>rough
>>>pregnancy).
>>>I'm not saying that acupunture or other alternatives are the answer for
>>>you, but before a hysterectomy, try it.
>>>You also may want to know that research done by the Endometriosis
>>>Association says that only 41% of women said that getting a hysterectomy
>>>was a success in getting rid of endo and endo pain. In the book
>>>"Endometriosis" by Mary Lou Ballweg and the Endometriosis Association, I
>>>fin
at they mentioned as a cause of endo. Toxins. So you
>>>may also want to follow their sugguestions on getting rid of all of the
>>>toxins that you can (diet, environment, etc.). They give some specific
>>>suggestions.
>>>Good luck to you. Endo really sucks, and it is so hard when most people
>>>just can't relate.
>>>
>>>At Fri, 24 Jul 2009, Maura wrote:
>>>>
>>>>Hi Erica! My name is Maura and I am 26 and have been suffering from
>>>>severe endo for 5 long years. I also am going to go through wit
>hysterectomy. Maybe we can help each other. It is not an easy decision
>>>>to make and not an easy surgery to cope with physi
>>
>>tionally.
>>>>I have exhausted my other options (even traveled to he CEC for surgery)
>>>>and believe that this may help with the majority of my symptoms. Though
>>>>I have always thought I would have children of my own someday after
>>>>years of constant thinking I now realize that any child I bring into my
>>>>household (blood related or not) will be loved as my own. It took me a
>>>>long time to get to his point and I feel I have mentally aged incredibly
>>>>in the last 5 years but life is too good to be suffering.
>>>>
>>>>--
>>>>Maura
>>>>25 and married
>>>>Severe Endo (5 surgeries so far)
>>>>Chronic Pelvic/Back Pain
>>>>right ovary removed...
>>>>