Re: Hysterectomy
From: E. (anonymous@obgyn.net)
Mon Jul 27 23:24:33 2009
I'm sorry, I responded to this before I read this post.
In this case, all I can say is I support your decision & wish you the
best of luck.
At Mon, 27 Jul 2009, Erica wrote:
>
>Pam,
>Thank you for sharing your story and your concern. I have tried
>everything over the past 9 years, including, pain management, lupron,
>dietary changes, acupuncture, experiemental shots and surgeries (several
>of those with endometriosis "experts"). I have finally come to the
>point to where I can't take it anymore, and I would like to go back to
>living a fairly normal life without pain and without taking numerous
>pain pills everyday to function.
>
>At Mon, 27 Jul 2009, Pam wrote:
>>
>>Hi Erica and Maura,
>>
>>I don't want to cause you to go through additional agonizing, but I feel
>>that before you get a hysterectomy you owe it to yourself to try any
>>alternatives that you possibly can. You are both so young I would hate
>>to see you getting a hysterectomy that that age.
>>Let me tell you a little about my story. I didn't realize I had endo
>>until I could not get pregnant. I had pain, but thought it was
>>"normal". While seeing a reproductive endocrinologist and going th
ries, etc. I decided to try some alternatives while also using
>>conventional medicine. I started with a massage 1/wk and did this for 2
>>1/2 yrs. It made me realize how completely stressed out I was, I gues
> it, but didn't consciously acknowledge it. I still didn't have
>>any luck with getting pregnant, but I was feeling a little better. I
>>read in a magazine how acupuncture could help with infertility and with
>>endo. I decided to try it. After about 6 mo of weekly visits I had
>>another surgery. The Dr. noted that the endometrioma on my ovary was
>>actually at the point of falling off! I got pregnant shortly after that
>>surgery, but continued with the acupuncture for
>>rough
>>pregnancy).
>>I'm not saying that acupunture or other alternatives are the answer for
>>you, but before a hysterectomy, try it.
>>You also may want to know that research done by the Endometriosis
>>Association says that only 41% of women said that getting a hysterectomy
>>was a success in getting rid of endo and endo pain. In the book
>>"Endometriosis" by Mary Lou Ballweg and the Endometriosis Association, I
>>finally read what they mentioned as a cause of endo. Toxins. So you
>>may also want to follow their sugguestions on getting rid of all of the
>>toxins that you can (diet, environment, etc.). They give some specific
>>suggestions.
>>Good luck to you. Endo really sucks, and it is so hard when most people
>>just can't relate.
>>
>>At Fri, 24 Jul 2009, Maura wrote:
>>>
>>>Hi Erica! My name is Maura and I am 26 and have been suffering from
>>>severe endo for 5 long years. I also am going to go through with a
>>>hysterectomy. Maybe we can help each other. It is not an easy decision
>>>to make and not an easy surgery to cope with physically and emotionally.
>>>I have exhausted my other options (even traveled to he CEC for surgery)
>>>and believe that this may help with the majority of my symptoms. Though
>>>I have always thought I would have children of my own someday after
>>>years of constant thinking I now realiz
ring into my
>>>household (blood related or not) will be loved as my own. It took me a
>>>long time to get to his point and I feel I have mentally aged incredibly
>>>in the last 5 years but life is too good to be suffering.
>>>
>25 and married
>>>Severe Endo (5 surgeries so far)
>>>Chronic Pelvic/Back Pain
>>>right ovary removed...
>>>
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