ENDO Messages for July, 2009: Re: Hysterectomy

Re: Hysterectomy

From: Pam (anonymous@obgyn.net)
Mon Jul 27 16:06:02 2009

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Hi Erica and Maura,

I don't want to cause you to go through additional agonizing, but I feel that before you get a hysterectomy you owe it to yourself to try any alternatives that you possibly can. You are both so young I would hate to see you getting a hysterectomy that that age. Let me tell you a little about my story. I didn't realize I had endo until I could not get pregnant. I had pain, but thought it was "normal". While seeing a reproductive endocrinologist and going through surgeries, etc. I decided to try some alternatives while also using conventional medicine. I started with a massage 1/wk and did this for 2 1/2 yrs. It made me realize how completely stressed out I was, I guess I knew it, but didn't consciously acknowledge it. I still didn't have any luck with getting pregnant, but I was feeling a little better. I read in a magazine how acupuncture could help with infertility and with endo. I decided to try it. After about 6 mo of weekly visits I had another surgery. The Dr. noted that the endometrioma on my ovary was actually at the point of falling off! I got pregnant shortly after that surgery, but continued with the acupuncture for rough pregnancy). I'm not saying that acupunture or other alternatives are the answer for you, but before a hysterectomy, try it. You also may want to know that research done by the Endometriosis Association says that only 41% of women said that getting a hysterectomy was a success in getting rid of endo and endo pain. In the book "Endometriosis" by Mary Lou Ballweg and the Endometriosis Association, I finally read what they mentioned as a cause of endo. Toxins. So you may also want to follow their sugguestions on getting rid of all of the toxins that you can (diet, environment, etc.). They give some specific suggestions. Good luck to you. Endo really sucks, and it is so hard when most people just can't relate.

At Fri, 24 Jul 2009, Maura wrote: >
>Hi Erica! My name is Maura and I am 26 and have been suffering from
>severe endo for 5 long years. I also am going to go through with a
>hysterectomy. Maybe we can help each other. It is not an easy decision
>to make and not an easy surgery to cope with physically and emotionally.
>I have exhausted my other options (even traveled to he CEC for surgery)
>and believe that this may help with the majority of my symptoms. Though
>I have always thought I would have children of my own someday after
>years of constant thinking I now realize that any child I bring into my
>household (blood related or not) will be loved as my own. It took me a
>long time to get to his point and I feel I have mentally aged incredibly
>in the last 5 years but life is too good to be suffering.
>
>--
>Maura
>25 and married
>Severe Endo (5 surgeries so far)
>Chronic Pelvic/Back Pain
>right ovary removed...
>

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