Re: Does anyone know of an Endometriosis Specialist w/in Kaiser Permanente?
From: E. (anonymous@obgyn.net)
Thu Jul 23 02:14:05 2009
I am so sorry that your surgery did not help you. Have you tried
physical therapy covered by Kaiser? Also, has your doc ever given you
muscle relaxants or Neurotonin or Lyrica for nerve pain? Sometimes these
can help.
Have you tried topical progesterone? That can also help, although if
your endo is extremely severe, it might not.
Living with pain bites the big one! It's too bad that doctors don't take
our pain seriously!
At Wed, 22 Jul 2009, Alisha wrote:
>
>I had the surgery over a year ago...didnt help me at all. He says
>removed what he could but couldnt remove any around my bladder. When it
>becomes inflamed it hits my sciatic nerve and I can barely walk. Im
>just living with the pain. I pretty much gave up on looking for help.
>Only Kaiser takes kaiser. Outside doctors do not except it. I can not
>afford to see a specialist outside of Kaiser. i am just an optimistic
>person...and everyday that im in pain, I think...it could be worse. Its
>not cancer, and im not dying...so thank GOD for that!
>At Tue, 21 Jul 2009, E. wrote:
>>
>>H
you ever have the endo surgery or are you just living w/the pain?
>>Have you checked out pelvicpain.org to see if there are any doctors
>>near you that *may* take Kaiser? You can search for providers in your
>>area. Even if they are gyns, maybe you can find a pain specialist who
>>can help you.
>>
>>At Tue, 21 Jul 2009, Alisha wrote:
>>>
>>>kaiser in So Cal does not have an Endo specialist. I have been going
>>>around and around with them for 2 years. They are not even
>h endo at all. One OBGyn will not even see me anymore. He has told
>>>me that my sciatic pain, my leg pain and my constant side ache is no
>>>longer an OBGyn problem, and he can no longer help me. This is the same
>>>doctor that did my surgery and found the endo and told me all my
>>>symptoms are due to the endo. Good luck with Kaiser and please let me
>>>know if you find any other solutions!!
>>>
>>>At Tue, 14 Jul 2009, Leslie wrote:
>>>>
>>>>At Sun, 26 Oct 2008, bren wrote:
>>>>>
>>>>>Hello everyone,
>>>>>
>>>>>I have Kaiser Permanente Insurance and had lap surgery for endo w/ an
>>>>>obgy
>>
>>a month ago and am still having pain & symptoms.
>>>>>(Sciatic pain, painful-heavy-long periods, sweats/hot flashes, Nausea,
>>>>>constipation, etc)..you name it I probably suffer(ed) from it....My
>>>>>primary care physician does not know of any in Kaiser and I can only go
>>>>>to Kaiser, as Kaiser only accepts Kaiser Insurance. =( I really want to
>>>>>see an endo
>>>
>>>not afford to see one w/o insurance
>>>>>especially when I get really good coverage @ Kaiser. I only had to pay
>>>>>$10 for my laparoscopy surgery...but then again, it wasn't w/ an endo
>>>>>specialist. *sigh* I live in Southern California and if anyone can help
>>>>>me w/ info about Kaiser and a specialist for endo/adeno, it'd be grately
>>>>>appreciated. My obgyn specialist who performed my lap referred me to
>>>>>another obgyn but one who specializes in urology (to have a cystocopy
>>>>>for my bladder symptoms) and the earliest appt I was able to get was in
>>>>>Dec. I'm
>
>>>>s that I'm probably a
>>>>>doctor's worse nightmare. Any info would be appreciated. Thank you!
>>>>>
>>>>>--
>>>>>Bren
>>>>>
>>>>--
>>>>Hi Bren!
>>>>I'm in the Exact same situation that you are in. Please let me know if you find a solution. I am also in Southern California and am considering making the trip up North to see Andrew Cook and Endo Specialist but since I have Kaiser, the surgery will cost me between $20-30K
>>>>
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