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Laparascopy, endo not removed, trouble healing

From: wish (anonymous@obgyn.net)
Wed Jul 22 02:27:45 2009


I had laparascopic surgery 3 months ago.  The only way I consented to the surgery, was because I was told I had a large cyst that would burst and put me in the ER, where a general surgeon would not clean up the endometriosis thoroughly.  The papers I signed said I was having a laparascopy to remove a cyst, adhesions, and possibly my right ovary. Before I went in the OR, I said I didn't want it to turn into a laparatomy just to remove an incurable disease, only if it was necessary for the ovary/complications.

When I woke up from surgery the attending nurse couldn't tell me if my ovary was removed.  She brought my parents in who told me the DR said something along the lines of "It was a real mess, we didn't expect what we found.  There was no cyst, it was a pseudocyst" The surgery took longer than expected, yet all they removed was some SCAR TISSUE from my past appendectomy.  Of course she was gone, I had to get the nurse to bring me my chart. It took her 2 days to call me back, to let me know what she thought was a cyst, was my bowel/ovary/fallopian tube stuck together.  She left them as is, be would have ended up with a bowel bag.  She said my endo is a stage 3-4, and she left it all.  She told me she didn't reccommend further surgery, but I may need it, and that I would want to have children by that point.

I can't take birth control because it causes blood clots/swollen veins in my legs.  Both my DRs thought a progesterone only would be ok, but I have taken the morning after pill and ended up with the same problems. I'm too scared to have something like depo, which is in your blood stream for 3 months, or mirena.  My GP now wouldn't put me on anything. The gynecologist said I should have mirena.  When I said I couldn't afford it, she gave me a perscription for a copper only IUD.  I went to her with the complaint of excessive bleeding when this all began, and a copper IUD causes more bleeding.

My big problem is my stomach still hurts from the surgery.  It bloats, it hurts to lay on, it hurts to jump, it hurts to have anything touching it basically.  I had a large hematoma after surgery, and that area is now a light brown colour.  I had an infection below my belly button after surgery, and that area is an even darker brown.  The gynecologist said my stomach wasn't discoloured, maybe a bit under my belly button, no big deal.  It's very clearly discoloured!My GP said, you must be a slow healer.  That's not from the hematoma, that's like a melasma(mask of pregnancy), from hormones.  Why would I have a melasma?? And she dismissed me.  Has anyone experienced anything like this, pain 3 months after surgery, from the surgery?

I asked my GP for a referral to a different gynecologist, and she asked if I knew of any, and never did it.  I'm not sure what to do anymore! I feel like a hypochondriac going to see yet another DR, I've had a lot of odd problems over the last couple of years and no answers.  I see it all as related to the endo, and it's all immune system related it seems.




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Last Updated: Wed Dec 2 04:09:58 2009

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