Re: Endometriosis after hysterectomy
From: E. (anonymous@obgyn.net)
Tue Jul 21 23:48:54 2009
Have you heard of Dr. John Steege?
His information:
The University of North Carolina at Chapel Hill
Department of Obstetrics and Gynecology
Professor of Obstetrics and Gynecology
Chief, Division of Gynecology
Phone: (919)-966-7764
Fax: (919)-966-5833
E-Mail jfsteege@med.unc.edu
Mailing Address: CB#7570, UNC-Chapel Hill
Chapel Hill, NC 27599-7570
Also, look at the site pelvicpain.org. If you type in his last name, it
will give you his info. & you can also research other docs in your
area.
You can call and ask about insurance. Unfortunately, endometriosis is a
disease where the lining ends up outside of the uterus--in our pelvic
cavity. If during a hysterectomy, ALL of the endo lesions are not
removed, it will remain and eventually respond to the body's hormones
and become active again.
I hope you find relief!
At Tue, 21 Jul 2009, jane wrote:
>
>I had my uterus removed 3 yrs ago. I was doing ok and then just
>recently within the last 5 mths I have noticed alot more pain. Just
>yesterday my right side and pelvis pains were do sharp. I really had
>trouble getting around. I went to my primary doctor las
dn't used it for years. I can not
>believe endo could be back... But after reading from other women I
>realize it could. Thought all my problems went ways side with the
>surgery.
>
>I totally understand what you are feeling.
>Does anytone recommend a really good specialist in or near Raliegh NC
>that is a specialist in Endometriosis. I feel like I am going crazy and
>yes I was referred to a psych because the endo could not be there. The
>surgeon checked and he said that there was none and that is that... He
>is the MD and I am not. How fustrating.... We know our bodies.... We
>all just want to get better. I had to leave my job because of all this
>and now trying to find one with this pain... AHH...
>
>***Edited by Moderator on duty for easier reading. ****
>
>At Fri, 17 Jul 2009, ampyali wrote:
>>
>>Peggy--
>>
>>Was your endometriosis remove
>
>y excised it is still there is could potentially be causing
>>the problems you describe. Hysterectomy is not a cure for
>>endometriosis, a fact many who suffer from this disease
>>post-hysterectomy can attest to. Have you considered seeing an
>>endometriosis specialist who uses excision? These doctors are
>>specially trained and highly skilled to remove endo in all it's
>>shapes, sizes and colors, wherever it is found. Their rate of
>>recurrence is low. If you post the part of the country you live in,
>>other forum members will reply with the name of a trusted specialist
>>in your region.
>>
>>Best wishes!
>>
>>At Fri, 17 Jul 2009, Peggy wrote:
>>>
>>>Hi ~
>>>
>>>I had a full hysterectomy 8 years ago. I had endometriosis from my
>>>very first period. My endometriosis got so bad I had endo attached to
>>>my bowel and bladder. My hysterectomy was done vaginally. I think
>>>that endo is still attached to my bowel and bladder and is now in my
>>>leg and other places. Anyone have endo after a hysterectomy?
>>>
>>>My doctors are at a loss because they don't think that I could have
>>>this problem.
>>>
>>>I am in severe pain 24/7 and have been on painkillers f
clean up this mess so I can
>>>go off of the pain meds and have a "normal" life.
>>>
>>>Anyone out there with similar experiences?
>>>
>>>--
>>>Peg
>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)