ENDO Messages for July, 2009: Re: almost at the end of my rope

Re: almost at the end of my rope

From: E. (anonymous@obgyn.net)
Tue Jul 21 23:48:13 2009

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Endo is a complex disease and does cause a lot of heartache. I wish there was an easy answer for you, but there doesn't seem to be. You will definitely go through many emotions and spend money on fertility treatment if you desire to get pregnant.

It can be heartbreaking and expensive in order to conceive with endo. Have you seen an endo specialist? These doctors are experts at detecting and removing endometriosis, many regular ob/gyns will miss if they perform a lap.

There are many out there, although they also do cost a lot of money, some accept insurance and can offer reimbursement. Your best bet to conceive would be to have the endo removed by an expert and then try to get pregnant right after the surgery.

Here is a list of some specialists websites that you may want to check out: Dr. Cook in CA http://www.pelvicpain.com/ Dr. Lyons in Georgia http://www.thomasllyons.com/procedures.htm Dr. Robbins in Maine http://www.endoexcision.com/ Dr. Liu in TN http://www.gyndr.com/ and Dr. Redwine http://www.endometriosistreatment.org/

There are two doctors, Dr. Orbuch and Dr. Seckin, who are in NYC and specialize in endo. You can atemds.com.

You may also want to check out the Endometriosis Association. They require a membership fee to join, but you can order books and other information without joining. You can check it out here: http://www.endometriosisassn.org/

I wish you luck & hope you get your cycle soon and have success in getting pregnant.

At Mon, 20 Jul 2009, tinka wrote: >
>I was recently diagnosed with endo, although I knew I had it years
>before. Since I was a teenager I have had very painful periods. I have
>taken various medications to help with the pain. Over the years I have
>gone from 3-4 days of cramping to about 3 weeks every month. I get
>cramps in my pelvis and into my thighs and sometimes in my calves.
>Both of my sisters have endo and at first my Dr did not want to do
>anything. She just gave me stronger medication. After no relief I
>asked again, the Gyno I saw told me it was normal to wake up crying due
>to the pain and it was normal to cramp for 3 weeks in a month. Defeated
>I dealt with it for a few more months.
>When my husband and I had been trying to get pregnant for a year, my GP
>referred me to a fertility specialist. That is when I had a lap and was
>diagnosed that I do indeed have endo. The surgery did nothing for my
>pain nothing for the heavy heavy periods. I am to start IUI in a few
>days....if I get my period.
>For the last 3-4 years I have seriously been thinking about a
>hysterectomy.....but I want children. I hate that I have so much pain
>every month. I am scared that I ha
>nd that I am
>going to face a lot of emotions and waste a lot of money on fertility
>treatment.
>

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Maybe in reply to: tinka: "almost at the end of my rope"

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