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Re: Endometriosis after hysterectomy

From: jane (anonymous@obgyn.net)
Tue Jul 21 18:53:17 2009


I had my uterus removed 3 yrs ago.  I was doing ok and then just recently within the last 5 mths I have noticed alot more pain.  Just yesterday my right side and pelvis pains were do sharp.  I really had trouble getting around.  I went to my primary doctor last week and she did give me some hydrocodone.  I hadn't used it for years.  I can not believe endo could be back...  But after reading from other women I realize it could.  Thought all my problems went ways side with the surgery.

I totally understand what you are feeling. Does anytone recommend a really good specialist in or near Raliegh NC that is a specialist in Endometriosis.  I feel like I am going crazy and yes I was referred to a psych because the endo could not be there.  The surgeon checked and he said that there was none and that is that...  He is the MD and I am not.  How fustrating....  We know our bodies....  We all just want to get better.  I had to leave my job because of all this and now trying to find one with this pain...  AHH...

***Edited by Moderator on duty for easier reading. ****

At Fri, 17 Jul 2009, ampyali wrote: >
>Peggy--
>
>Was your endometriosis remove

y excised it is still there is could potentially be causing >the problems you describe.  Hysterectomy is not a cure for
>endometriosis, a fact many who suffer from this disease
>post-hysterectomy can attest to.  Have you considered seeing an
>endometriosis specialist who uses excision? These doctors are
>specially trained and highly skilled to remove endo in all it's
>shapes, sizes and colors, wherever it is found.  Their rate of
>recurrence is low.  If you post the part of the country you live in,
>other forum members will reply with the name of a trusted specialist
>in your region.
>
>Best wishes!
>
>At Fri, 17 Jul 2009, Peggy wrote:
>>
>>Hi ~
>>
>>I had a full hysterectomy 8 years ago.  I had endometriosis from my
>>very first period.  My endometriosis got so bad I had endo attached to
>>my bowel and bladder.  My hysterectomy was done vaginally.  I think
>>that endo is still attached to my bowel and bladder and is now in my
>>leg and other places.  Anyone have endo after a hysterectomy?
>>
>>My doctors are at a loss because they don't think that I could have
>>this problem.
>>
>>I am in severe pain 24/7 and have been on painkillers for months.  I
>>just want the docs to go in surgically and clean up this mess so I can
>>go off of the pain meds and have a "normal" life.
>>
>>Anyone out there with similar experiences?
>>
>>--
>>Peg
>>




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