Re: Abdominal cramping after orgasm
From: mia (anonymous@obgyn.net)
Tue Jul 7 23:17:55 2009
I am so glad I had my surgery. It's helped a lot.
I'd always be concerned if I had pain with certain things, like bowel
movements, because endo can get on your bowels, and also invade :(
Endo can be in the cul-de-sac / pouch of douglas, and you need to have
an endo expert excise it.
you might also try diet, endometriosis.org/nutrition
Her book is great, Dian S mills
At Tue, 7 Jul 2009, Mia wrote:
>
>At Thu, 8 Jan 2009, Ann wrote:
>>
>>Hi Lisa,
>>
>>Have a look at the older posts below- you may relate to some of the
>>stories. Best of luck!
>>
>>That's the problem.
>>So many doctors have 'their theories.'
>>While your problem might have changed when you changed medications, you
>>should still look into the probably real reasons : endo in the
>>cul-de-sac or adenomyosis.
>>
>>Esp with the bowel problems. You could also have endo on or in the
>>bowels.
>>
>>At Wed, 31 Dec 2008, Ann wrote: >
>>>I have also had a similar experience - I'm 28 years old, diagnosed with
>>>endometriosis 6 years ago. I had cysts removed shortly after diagnosis
>>>and was on Depot Provera since then until recently. I began to have the
>>>i
nse cramping pain after orgasm about two years ago. Initially it
>>>was about 50% of the time. As time passed the pain occured after every
>>>orgasm and lasted between 20-40 minutes. I would describe the pain as
>>>unbearable. I never vomitted, but I would always have a bowel movement.
>>>I also always felt very hot and sometimes resorted to lying on the tiled
>>>floors to try and cool down. Occasionally, I would also wake up in the
>>>middle of
>
>is pain.
>>>
>>>I eventually went to speak to my gynaecologist. She had never come
>>>across this problem. One possible theory that she had, was that as a
>>>result of being on Depot for so long, the walls of my uterus had become
>>>very thin and this was leading to the pain when the muscles contracted
>>>during orgasm. I came off the Depot (which I was quite nervous about,
>>>because apart from the 'orgasm pain', I had been pain free since my
>>>operation) and I took Estrofem (estrogen) for two months. I then
>>>started on an oral contraceptive (Melodene) and have been taking that
>>>for 6 months. I only take a break between every two cycles. I am happy
>>>to report that close to the end of the two month Estrofem course, I
>>>STOPPED EXPERIENCING THIS PAIN COMPLETELY and have not had it since. Not
>>>once. Not even a hint. My doctor is still not sure exactly what the
>>>problem was- or whether it was solved by coming off the Depot alone, or
>>>taking the Estrofem alone, or a combination of both. But it is solved
>>>for the moment and I am greatly relieved.
>>>
>>>I trawled the internet to try and find some sort of information about
>>>this but could only find the occasional post on a forum reporting the
>>>pain, but no solution. I really hope that what worked for me, helps
>>>some other people that are having this problem.
>>>
>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>
>>>>I have never heard of anyone else having my very symptoms. Like each of
>>>>you, my doctors were all stymied. I began having intense pain after
>>>>EVERY orgasm around the age of 25. The pain was
ay very very still and didn't move a
>>>>muscle and breathed deeply, the spasm would be less intense, but if I
>>>>gave into the urge to get up and walk around to try to escape the pain,
>>>>it was worse. The pain did FEEL also connected to bowels.
>>>>
>>>>I had a laparoscopy showing I did NOT have endom. but had two fibroids
>>>>on my outer uterus. One was removed, but one remained as it was
>>>>attached also to a fallopian tube
>
>n I began having children, I found that the pain went away for most
>>>>of my pregnancy. After orgasm, instead of pain, my uterus just blew up
>>>>like a balloon and got very hard (just as in labor). After birth, the
>>>>pain stayed away for a full year and then returned, but not as intense.
>>>>I had one C section and two fully natural vaginal births.
>>>>
>>>>After my last child, the pain began returning at different times, but
>>>>intermittently. Sometimes during intercourse.. sometimes during
>>>>intense physical activity.. but it wasn't consistant. I had a second
>>>>laparoscopy 11 years after the first with a specialist (colorectal...
>>>>the name escapes me..) present along with my OB GYN. Still no endo., no
>>>>adhesions connecting anything. There was nothing that showed up in my
>>>>lap. That was 3 years ago.
>>>>
>>>>Since then, it has developed a pattern. The pains begin about 1.5 weeks
>>>>before the onset of my period. My cycle ranges from 4-5 weeks lately
>>>>although I was very irregular throughout my life. The pains begin
>>>>manageable but progress through the following week and a half to
>>>>unbearable. I try to avoid orgasm during the second half of this period
>>>>of time.
>>>>
>>>>I usually have an urge to pass a bowel movement during the pain spasm,
>>>>and sometimes this makes it go away faster and sometimes not. It is
>>>>still more manageable if I lay very still and breath deeply. My spasm
>>>>used to last around 20 minutes from beginning to peak to normal. After
>>>>the pain goes away I get an almost euphoric feeling. Maybe it is just
>>>>relief.
>>>>
>>>>La
ore my period begins,
>>>>if I do have an orgasm, the spasm ultimately has led to vomiting. I
>>>>don't feel sick to my stomach, but I can feel it begin to contract and
>>>>spasm and then I begin vomiting. This has happened about four times in
>>>>the last year.
>>>>
>>>>For a brief time I got a prescription for codeine and I would CHEW it
>>>>when I felt the spasm coming on. At this point in my life, things other
>>>>tha
>, strenuous
>>>>activity like working out or walking up a flight of stairs, dancing,
>>>>etc. Sometimes it comes on spontaneously with no explanation. I am
>>>>currently in my early 40's
>>>>
>>>>I can't tell you what a relief it is to read of others who have my
>>>>bizarre symptoms. No doctor understands it. It is frustrating to need
>>>>to explain to partners or friends. It is difficult to ask a partner to
>>>>not touch me or talk to me for 15 minutes following my orgasm (during
>>>>that week and a half) until my "cramps" go away.
>>>>
>>>>I am eager to hear more from others.
>>>>
>>>>At Thu, 16 Oct 2008, anonymous wrote:
>>>>>
>>>>>At Tue, 20 Mar 2007, anonymous wrote:
>>>>>>
>>>>>>I note these are quite old messages but I wanted to also mention that I
>>>>>>have a problem with this. I had left sided pain for many years with
>>>>>>intense contraction like pain following orgasms and no other symptoms
>>>>>>and was diagnosed with irritable bowel initially. I eventually had a
>>>>>>laparoscopy and was diagnosed with endometriosis which was treated by
>>>>>>laser surgery which alleviated my symptoms for a year but they have
>>>>>>since returned. the pain I experience after orgasm has also occured
>>>>>>during my sleep and awoken me. the pain is intense and I usually pass a
>>>>>>bowel motion then the pain subsides over about 30mins or so. The
>>>>>>doctors didnt think that it could be related to my endo due to passing
>>>>>>bowel motions but the laser treatment for endo did make it go away for a
>>>>>>while. It is helpful to see I am not the only one with this problem.
>>>>>>
>>>>>>At Fri, 15 Oc
has happened to me once, and the doctor could give me no
>>>>>>>explanation for it. The experience I had was particularly scary and it
>>>>>>>happened not after intercourse but after masturbation. A minute or two
>>>>>>>afterwards I started to get intense pelvic pain which increased until I
>>>>>>>couldn't stand up and was crying with it. I was really scared and ran
>>>>>>>to get my mother - then I felt very sick. I
>
>ick as well, and had a bowel movement. By this time I
>>>>>>>was experiencing intense pains - I can't think contractions could be
>>>>>>>worse! My body went into shock from the pain, my lips turned white and I
>>>>>>>went freezing cold and I felt woozy and passed out on the floor for
>>>>>>>several minutes. When I came round, I made it to the bathroom and the
>>>>>>>pain subsided, if you can call it that, into intense contractions which
>>>>>>>were coming regularly every minute or two as if I was in advanced
>>>>>>>labour. They were so bad I was doubled over and screaming in pain. It
>>>>>>>did almost seem like something had triggered false labour pains - I
>>>>>>>could feel the contractions in my uterus. These gradually, over the
>>>>>>>course of an hour or two subsided - I went to the doctor when able but
>>>>>>>she could not tell me what was wrong. My period started later the same
>>>>>>>day. Nobody has ever been able to explain this and I wish they could
>>>>>>>becasue it was very frightening. I am glad it has only happened once to
>>>>>>>me.
>>>>>>>I did wonder why it happened - it happened after the end of a
>>>>>>>relationship with a man during which I had experienced other
>>>>>>>gynaecological problems - thrush, cystitis, and also irritation to his
>>>>>>>semen like an allergy - at one point I seemed to get mucus like discarge
>>>>>>>from my cervix but this was ealier than the pelvic pain episode. And
>>>>>>>yes, we did both get ourselves checked out at the sexual health clinic,
>>>>>>>and we didn't have anything wrong or any infection. I did wonder if his
>>>>>>>semen had caused problems
I experienced when I has skin contact with it. It
>>>>>>>even happened when it got on my fingers or thighs, I would get red
>>>>>>>patches! I am fine now a couple of years later with another man. Do you
>>>>>>>think whatever caused this wil have gone or should I see a gyno?
>>>>>>>
>>>>>>>At Sat, 1 Mar 2003, anonymous wrote:
>>>>>>>>
>>>>>>>>Yes, this happened to me too. I have even
>
>ou probably should have your doctor do a
>>>>>>>>laparscopy to check for endo. Talk to your doctor, he/she will
>>>>>>>>understand.
>>>>>>>>
>>>>>>>>At Sat, 1 Mar 2003, anonymous wrote:
>>>>>>>>>
>>>>>>>>>This person wrote awhile ago, but if anyone out there can relate to
>>>>>>>>>this, please write back. I experience this. I also have pain all
>>>>>>>>>through the month after orgasm. Awake, sleeping and it is excruciating
>>>>>>>>>from anywhere from 20-40 minutes. I really need help- I have tried to
>>>>>>>>>search the internet- no luck except for this. I have not been tested
>>>>>>>>>for endo. I have normal periods, well, severe pms and pain up to 2
>>>>>>>>>weeks before, and get very bloated and gaseous. I am 28 yrs old and
>>>>>>>>>have had this orgasm pain for years. I find it pretty difficult to talk
>>>>>>>>>to doctors about it. They seem to say it's about uncomfortable sexual
>>>>>>>>>positions, or back ache, and then they thought it was irritable bowel. I
>>>>>>>>>am at my wits end. It happend while I'm sleeping! Waking up to intense
>>>>>>>>>pain-- the pain always makes me squirm because it's so intense I can't
>>>>>>>>>sit still- I end up on the foor usually practically crying. It has
>>>>>>>>>gotten so severe I would bet childbirth isn't much more painful. The
>>>>>>>>>pain is exhausting. After the pain, I am completely fine. It's nuts. A
>>>>>>>>>dr. wanted to put me on the pill and i said no. I have small fibroids
>>>>>>>>>--- so small, they only found them when I asked for an ultrsound. They
>>>>>>>>>said to small to cause this pain.
>>>>>>>>>I think I need to go for a laproscopy and find out. The thing is, I
>>>>>>>
ndo-like, but I
>>>>>>>>>guess there aren't always symptoms.
>>>>>>>>>Does anyone out there think this orgasm pain can be endo?
>>>>>>>>>I don't know what else it can be. I am a healthy 28 year old. Do you
>>>>>>>>>think I should get the laproscopy?
>>>>>>>>>Please write if you can tell me any shared experiences. Thank you.
>>>>>>>>>
>>>>>>>>>At Sun, 6 May 200
>
>he first time hoping someone else out there may have
>>>>>>>>>>experienced something similar. My pain with endo in excruciating after
>>>>>>>>>>orgasm. Since the onset of this disease 9 years ago I have had orgasms
>>>>>>>>>>in my sleep resulting in severe pain and a sleepless night. The orgasms
>>>>>>>>>>always occur around day 23 of my cycle. Recently we've been trying to
>>>>>>>>>>concieve and every time I feel the egg has implanted, I get this orgasm
>>>>>>>>>>in my sleep followed by severe pain and the next few days my pregnancy
>>>>>>>>>>symptoms are gone, and I get my period. I've had surgery, Lupron, and
>>>>>>>>>>the clomid, IUI ordeal. I'm sure we concieved this month but I had an
>>>>>>>>>>orgasm in my sleep two nights ago. I'll have to wait and see. So
>>>>>>>>>>frustrating and sooo weird. It's like this disease doesn't want me to
>>>>>>>>>>get pregnant, like it has a mind of its own. Creepy. Any suggestions
>>>>>>>>>>anyone?
>>>
>>>--
>>>Ann
>>
>>At Thu, 8 Jan 2009, Lisa wrote:
>>>
>>>I've been diagnosed with endo and have dealt with a myriad of symptoms.
>>>
>>>Recently I have had abdominal cramping and pain after orgasm. Even if
>>>penetration never took place. Is this normal? Has anyone else
>>>experienced this?
>>>
>>>Also, I have the same abdominal cramping, sharp pains after bowel
>>>movements. Is this normal???
>>>
>>>I'd appreciate feedback? Thanks.
>>>
>>>--
>>>lisamaharpermer@yahoo.com
>>>
>>--
>>Ann
>>
>I'm writing to ask if anyone has had relief of their symptoms? I know most of the
>posts have been written years before so I'm curious to see if there's been any changes new diagnoses.
>I have mild/moderate cramping that varies
rse around ovulation and my menstrual
>cycle. I also get it after orgasm, where it can last up to two hours. Sometimes a bowel movement comes with the cramps
>which feel just like menstrual cramping.
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