Re: Endometriosis in c-section scar and anterior abdominal wall
From: E. (anonymous@obgyn.net)
Tue Jun 23 11:10:20 2009
First of all, let me say up front that I am not a medical professional
and can only give advice. If you want to specifically ask a doctor,
there is a web site where you can do that:
http://forums.obgyn.net/womens-health/
If the nurse practictitioner is suspicious that it might be endo, I
would investigate the possibility further. The reason that she put you
on the the birth control is because that is often the first thing that
doctors do when they suspect you have endo. The pill will often reduce
symptoms, that is probably why you have little swelling and no bleeding
from the incision now, because the pill is reducing the endo hormonally.
As long as you take the hormone, your symptoms will probably be under
control, but once you stop the hormone, then your symptoms will return.
I would go back to your ob/gyn and see what he says. He may want to do
a laparascopy to confirm the endo.
This is where you have to be careful. Many ob/gyns are not knowlegeable
about endo in all its forms. This is why a lot of women end up going to
endo specialists, because these specialists know what to look for and
how to remove all of the endo & not leave any behind. If even a few
small cells are left behind, the endo can 'grow' back and cause more
problems.
--
Endometriosis can also silently invade other organs, including the bowel
and bladder, if not properly treated hormonally or surgically. This is
why it's important to know if you have it and to get it treated.
Endo can cause problems with fertility and that would also be another
reason to get it diagnosed.
There are a lot of endo specialists who can help you with diagnosis.
Here is a list of some of them. You can check out their websites for
more information.
Dr. Cook in CA http://www.pelvicpain.com/
Dr. Lyons in Georgia http://www.thomasllyons.com/procedures.htm
Dr. Robbins in Maine http://www.endoexcision.com/
Dr. Liu in TN http://www.gyndr.com/
and Dr. Redwine http://www.endometriosistreatment.org/
There are two doctors, Dr. Orbuch and Dr. Seckin, who are in
NYC and specialize in endo. You can check them out at
ratemds.com.
There are various endo organizations and it's important to educate
yourself about this disease and how to treat it.
You may want to check out the Endometriosis Association.
They require a membership fee to join, but you can order
books and other information without joining.
You can check it out here: http://www.endometriosisassn.org/
At Tue, 23 Jun 2009, anonymous wrote:
>
>I had a C-Section in September 2008. I started having bleeding from one
>side of my C-section scar about 10 weeks post partum. I visited my
>OB-GYN, and he said it was just a suture trying to work its way out. I
>accepted this diagnosis. At 20 weeks postpartum, I was still having
>severe swelling and bleeding in the same area, so I visited another
>doctor. She told me it was an ingrown hair and to use hot packs and
>neosporin on it. At 31 weeks postpartum, I visited a nurse
>practitioner, and she diagnosed me with incisional endometriosis. She
>consulted with the OB-GYN who performed the procedure, and he said that
>I needed to come see him. At the same time, the nurse practitioner put
>me on the new oral contraceptive Yasmin. My first period after starting
>this, I still had some swelling and bleeding. My second period on this
>drug, I have very little swelling and no bleeding from the incision. My
>question is this... Do I still need to visit the OB-GYN? He will
>probably tell me there is nothing wrong with me. Also, will this
>condition affect my ability to carry another baby?
>
>At Mon, 21 Feb 2005, Julie wrote:
>>
>>Julie and Rachel - thanks for your responses. I also had a lap in Sep
>>04 which revealed dense adhesions from my uterus to my abdominal wall.
>>After getting another opinion, I was also diagnosed with incisional
>>endo. Since starting on the Zoladex treatment, I have had some relief
>>from pain however the lesions in my c-section scar seem to be getting
>>bigger and harder and still give me a lot of shooting pain. Am now
>>confident that it is possibly not the adhesions causing me the grief but
>>the endo. Julie - I am wondering - how did they diagnose you with
>>endometriosis too? Do you also have swelling and lumps in the c-section
>>scar or endo lesions in the abdominal wall? Sorry to hear that Lupron
>>didn't give you any relief. What's the next step for you? It is all
>>really depressing and from everything I read, there seems to be no easy
>>cure for endo or adhesions. And every surgery you have, can possibly
>>casue more adhesions to form bringing more pain.
>>
>>--
>>Julie
>>
>>At Mon, 21 Feb 2005, Julie wrote:
>>>
>>>Julie,
>>>I had a c-section 5 years ago and I started having pain during ovulation
>>>soon after. My extreme pain started a year ago and I had my first lap
>>>in Sept 04. My operative report states that I have adhesions from my
>>>previos c-section with a large adhesive band from my uterus to my
>>>anterior abdominal wall. I can actually feel this pulling pain if I
>>>stand up too quickly or if I run or exercise. I have not had excision
>>>surgery yet, my dr did not remove anything during my previous lap. I
>>>will tell you that 3 months of Lupron did nothing for me, but
>>>unfortunately I don't have any successful treatments for this to share
>>>with you. I hope your surgery goes well and the dr is able to remove
>>>all endo for you. Good luck.
>>>
>>>--
>>>Julie
>>>
>>>At Mon, 21 Feb 2005, Julie wrote:
>>>>
>>>>Hi there - I'm just wondering if anyone currently reading these boards
>>>>has had incisional endometriosis in a c-section scar and also in the
>>>>anterior abdominal wall. I had never suffered from endometriosis until
>>>>after my second c-section. I have been treated with zoladex for the
>>>>last 5 months and they are going to operate in April to excise the
>>>>endometriomas from the scar area. Having done a search of this forum -
>>>>I know there are a few of you who have also developed endo after a
>>>>c-section. I would be interested in hearing from you to find out how
>>>>successful surgery was and options for treating endo in their abdominal
>>>>wall. Thanks - any responses would be greatly appreciated.
>>>>
>>>>--
>>>>Julie
>>>>
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