ENDO Messages for June, 2009: Re: Should I be tested for endometriosis?

Re: Should I be tested for endometriosis?

From: ampyali (anonymous@obgyn.net)
Tue Jun 23 10:10:57 2009

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Steph--Sorry to hear that you are experiencing these problems so early on in life. Endo is such a complicated disease and affects its victims in so many devastating ways. I was diagnosed with endo 2 years ago by laparoscopy and had excision surgery one year ago with one of the best specialists in the country. I am now completely pain and symptom free! I have a 19 year old daughter who has had the exact same problems you have, although her symptoms are currently well controlled on an OC. The minute she no longer gets relief from the pill, however, we have already decided she will be heading off to the endo specialist for excision surgery. I know you said that you don't want to have children, but the way you feel about this at 20 can be very different from the way you feel at 30. Protecting your fertility should still be a priority, just in case you change your mind later on--endo can severely affect fertility--you ought to keep all your options open. One of your very best options right now is to send your records to one of the true endo specialists. A few will review your records for free, and others will charge a small fee that can be used towards surgery if you choose that route. They can discuss your case with you via mail or phone and you won't even have to travel unless you decide on surgery. Many surgeons will tell you that you should have a hysterectomy or that they can fix your problem by just burning the endo implants during a lap and then putting you on strong drugs to suppress the implants. Neither of these treatments are effective in the long run and can have serious and devastating long-term effects. Read all you can and educated yourself because there is a LOT of misinformation out there. The web sites for the CEC in Atlanta, Dr. Cook in California and Dr. Redwine in Oregon are all filled with a wealth of reliable information about this disease and it's treatment. Best of luck to you in your search for the truth...

At Tue, 23 Jun 2009, Steph wrote: >
>Hello there! I am a 20 year old female and have some questions about
>endometriosis.
>
>I started having my periods when I was 11. When I was 13 or so, these
>periods started becoming extremely bothersome. I’d get cramps to the
>point I cannot stand up straight. I’d get diarrhea 2 days before my
>period would come (I didn’t even bother with a calendar, I knew my
>period was coming by that one symptom). I’d become quite nauseas but
>never actually vomited.
>
>My question is, should I bother being tested for endometriosis? Since
>starting Seasonique 2 years ago, my problems have greatly diminished
>(and I’d imagine without a period anymore I shouldn’t have any problem).
>However, for four years I’ve been experiencing painful intercourse, to
>the point that my fiancé and I don’t really even try anymore. Also,
>starting early 2009, I’ve been having bad cramps that feel like period
>cramps but I’m not having a period while cramping. These cramps are bad
>enough to send me to the floor. They’re intense, but only last a few
>minutes. I’m not sure if they’re related or not….
>
>My fiancé and I do not want children so I don’t really care about the
>effect on my fertility. I just want to stop these cramps and have sex
>at some point in my life! But surgery is invasive, so I’m not sure if I
>should get tested. But since that’s the only test for endometriosis…
>what’s your opinion?
>
>Thank you so much for your help. It’s greatly appreciated.

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