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Re: adenomyosis?
From: krayca (anonymous@obgyn.net)
Mon Jun 22 15:50:41 2009
I have a 9 year history of what I was told is sciatic pain starting with
my first pregnancy. Over the years I have seen a handful of
chiropractors, 3 physical therapists, 2 series of epidural injections
and now currently seeing a nueroligist who is a bit confused after
passing a EMG normal. My MRI shows mild bulging disc at L4 and L5 but
no nueral compression. I recently was diagnosed with endometriosi and
adenomyosis and had a lap. Dr wants me to start Lupron for that.. Im
thinking about it. The pain in low back a sciatic notch aches,
burns,and or throbs into my leg. It is not giving up. The Nueroligist
says I am a mystery patient.... I am now starting to read everything
about endo, adeno and now the relation to sciatic. I have put in a call
to Nuero doc about taking this info into consideration.. I am here
because I am looking for someone who has some info similar to endo or
adeno causing such pain in back , buttocks and legs. I really dont want
to start Lupron without knowing this is the problem
At Fri, 21 Nov 2008, Nevi wrote:
>
>Hi Brandy,
>
>After years of being told there was nothing wrong, I too was told I have
>Adenomyosis. I am so happy knowing it is something I can change. What
>happened with you and Kaiser? I am facing the same questions. I want
>the surgery but am not sure how Kaiser will handle it.
>
>I appreciate the feed back as well,
>
>At Sun, 26 Oct 2008, bren wrote:
>>
>>Hi Brandy,
>>I'll make this short since I emailed you about this and your thoughts of
>>having a hysterectomy. First, you should see an endometriosis
>>specialist (I don't know how accessible one is for you, but as you know,
>>I have Kaiser and only Kaiser accepts Kaiser insurance and I don't know
>>of an endo specialist in Kaiser, so anyone I see outside of Kaiser, I
>>would have to pay out of my own pocket-so not easy for me). After your
>>post-op and finding out what was exactly done during your lap surgery
>>and asking as many questions as you can and hearing out other treatment
>>options, then I would make a record of all this and if possible, take it
>>to an endo specialist for review. I know that if one has had all
>>possible treatments for endo and even had this "cut/excised" out rather
>>than lasered out and one is still sufferring symptoms and pain, then it
>>is quite possible that adenomyosis is the culprit...However, if before
>>deciding to have a hysterectomy, I would work w/ an endo specialist who
>>can offer proper advice and treatments beforehand. If my symptoms don't
>>improve or continue to worsen, then I would have another lap w/ the Endo
>>Specialist rather than my original obgyn specialist who doesn't know
>>everything about endo and adeno. After thoroughly discussing everything
>>w/ the endo specialist, I would then give permission for him to remove
>>my uterus (hysterectomy through laparoscopy) during the lap if he finds
>>that your uterus is very distorted and adenomyosis is highly suspected
>>as the cause of your sciatic pain. Since the article I emailed you that
>>adeno can cause sciatic pain & even the retroverted uterus can cause
>>back pain....Just remember to weigh out all the pros and cons of a
>>hysterectomy before deciding to have one. I would actually probably
>>have a lap again w/ an endo specialist and before deciding to have a
>>hysterectomy (big decision) and I know the recovery for lap is a lot
>>shorter and easier than the recovery for a hysterectomy during a lap.
>>I'd basically would just want to try all types of treatments (besides
>>Lupron), I'm talking more about exision surgery w/ an endo specialist
>>and if symptoms are not better, then I would have a hysterectomy as
>>research does say that if women continue to suffer endo symptoms after
>>exision surgery and hormonal treatments, etc, then it is highly possible
>>that you have adenomyosis. The good thing is that you already have one
>>child, so the decision might be easier. Just make sure to weigh out the
>>pros and cons and get more than one opinion especially by an endo
>>specialist. I'm hoping that your recovery is getting better. Let me
>>know, cuz I've been worried! Read your email. =) ***Hugs*****
>>
>>*Bren*
>>
>>At Sat, 25 Oct 2008, Brandy wrote:
>>>
>>>Hi ladies,
>>>
>>>I'm wondering if any of you have been diagnosed with or are suspected of
>>>having ademomyosis? And, if so, what types of symptoms are you having?
>>>
>>>I know the the only "cure" for this is hysterectomy, but have you been
>>>able to find relief using any medications, like Lupron?
>>>
>>>I am meeting with my GYN on monday for post-lap follow up, and I'm
>>>afraid that the lap didn't get the job done. I'm almost wishing I had
>>>requested a hysterectomy while he was already in there, as I don't
>>>really want to go through this tough recovery again.
>>>
>>>My symptoms are heavy periods, usually 2 periods a month, heavy
>>>clotting, dark blood, and severe and crippling sciatic-type back pain.
>>>
>>>thanks for any input.
>>>
>>>--
>>>Brandy
>>>
>--
>*Nevi*
>
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