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Re: Unsure whether to have 5th zoladex injection
From: Susan (anonymous@obgyn.net)
Sat Jun 20 08:20:07 2009
thanks for all the help and information - really appreciate it!
At Thu, 18 Jun 2009, anonymous wrote:
>
>By the way, most RE's don't know how to treat endo either. They turn
>towards meds, which don't remove endo. You might have some pain relief,
>but others have more problems sometimes.
>
>At Thu, 18 Jun 2009, anonymous wrote:
>>
>>GP's really don't know how to treat endo.
>>
>>Here's an article that might help
>>
>>http://centerforendo.com/articles/suppmeds.htm
>>
>>They're great docs, and there's more info on excision of endo at
>>
>>http://centerforendo.com/articles/excision.htm
>>
>>http://centerforendo.com/cecarticles.htm
>>At Thu, 18 Jun 2009, Susan wrote:
>>>
>>>Hi and thanks for the quick reply!
>>>
>>>I'm actually in England and thank you for the information.
>>>
>>>It's my GP who doesn't seem to know much about it. I have seen a
>>>consultant gynaecologist, who diagnosed me and suggested the zoladex
>>>treatment. However, I emailed and phoned his secretary for advise but
>>>she kept fobbing me off. I appreciate he is busy. I then asked my GP
>>>to write a letter to him to ask for advice. This was about 2.5 weeks
>>>ago and I've not heard anything back.
>>>
>>>So the add-back HRT is still encouraging the endo to grow? I wondered
>>>that. If the zoladex implant is wearing off after 3 weeks (as I think
>>>it is due to having periods) the HRT could be the reason I'm feeling the
>>>pain return so quickly? So continuing for another two months might not
>>>really be that beneficial if i'm still taking the HRT! I don't know what
>>>to do for the best.
>>>
>>>thank you for your help, it's given me more info!
>>>Sue
>>>
>>>At Thu, 18 Jun 2009, E. wrote:
>>>>
>>>>Endometriosis is an extremely complex disease. The first important step
>>>>is to find a doctor who knows how to treat it. If your doctor is being
>>>>honest w/you and telling you she doesn't know enough, she doesn't. It's
>>>>time to find a new doc, one who is familiar with endometriosis.
>>>>
>>>>Zoladex is a strong drug and it can relieve pain, but it's important to
>>>>be aware that all hormonal therapy is only effective when you are on the
>>>>hormone. Once you stop the hormone, the pain often comes back. Since
>>>>your doctor is giving you add back therapy, this can counter the severe
>>>>side effects of the Zoladex (such as bone loss and other menopausal
>>>>symptoms) but it encourages your remaining endo to 'grow', so more than
>>>>likely, you'll start to experience some type of pain again.
>>>>
>>>>If your goal is to get pregnant, and you have tried Zoladex and it isn't
>>>>working, then the next step may be surgery.
>>>>
>>>>This is why it's important to have a doctor who knows about endo,
>>>>because if the doctor doesn't know about endo in all of it's forms, he
>>>>may just laser the surface of the endo lesions, leaving some behind,
>>>>that can grow and bloom. So you will end up back in the same kind of
>>>>pain about 6 months after the surgery! So it's important to find a good
>>>>doctor, and to have the doctor excise the endo implants completely.
>>>>I'm guessing you're in Canada, and if you are, here are a couple of docs
>>>>who are good there:
>>>>>>Dr Nicholas Leyland
>>>>> > 27 Roncesvalles Avenue
>>>>> > Suite 407
>>>>> > Toronto,Onatario,M6R 3B2
>>>>> > Canada.
>>>>> > 416-979-1371
>>>>> > Fax...416-979-3556
>>>>> >
>>>>> > DR.K. Lie
>>>>> > 700 Bay Street,
>>>>> > Suite 605,
>>>>> > Toronto,Ontario.
>>>>> > M5G 1Z6
>>>>> > telephone...416-595-1311
>>>>> > Fax...416-979-0238
>>>>
>>>>You also might try a reproductive endocrinologist, since they are often
>>>>more familiar with the disease than regular ob/gyns are.
>>>>
>>>>If you're in England, you can go to this website & maybe they can help
>>>>you find a doc: http://www.endometriosis-uk.org/
>>>>
>>>>At Thu, 18 Jun 2009, Susan wrote:
>>>>>
>>>>>Hi,
>>>>>I have been trying to get advice from my gynae for the past two months
>>>>>so am hoping I can get some here. My Dr says she doesn't know enough
>>>>>about the condition.
>>>>>
>>>>>I was diagnosed with endo and adenomyosis in January after suffering
>>>>>with daily chronic pelvic pain. My gyna started me on 6 months course
>>>>>of zoladex with Livial tibilone add-back HRT. The first two months was
>>>>>pretty bad but by the 3rd injection the pain was lifting, I felt great.
>>>>>I had two periods that month which was surprising since they had stopped
>>>>>and were supposed to stop.
>>>>>
>>>>>I had the 4th injection and 1 week later felt sick, the pain was bad and
>>>>>I had another period. Two weeks on now I do feel better, but the pain,
>>>>>although much less, is still there. I am emotionally tired from not
>>>>>knowing what to expect. I want to have try and have a baby as soon as I
>>>>>come off the treatment. I am 30 yrs old. My gut is telling me to stop
>>>>>the treatment and start trying, especially since I'm still in pain and
>>>>>having periods. I'm not convinced the zolly is working very well and
>>>>>I'm miserable.
>>>>>
>>>>>Should I persist for the last two months, even though I'm unhappy and in
>>>>>pain, or should i stop? Will the last two months make much of a
>>>>>difference?
>>>>>
>>>>>thanks for any advice!
>>>>>Sue
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