ENDO Messages for June, 2009: Re: Unsure whether to have 5th zoladex injection

Re: Unsure whether to have 5th zoladex injection

From: E. (anonymous@obgyn.net)
Thu Jun 18 13:41:29 2009

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Reply: Susan: "Re: Unsure whether to have 5th zoladex injection"

Endometriosis is an extremely complex disease. The first important step is to find a doctor who knows how to treat it. If your doctor is being honest w/you and telling you she doesn't know enough, she doesn't. It's time to find a new doc, one who is familiar with endometriosis.

Zoladex is a strong drug and it can relieve pain, but it's important to be aware that all hormonal therapy is only effective when you are on the hormone. Once you stop the hormone, the pain often comes back. Since your doctor is giving you add back therapy, this can counter the severe side effects of the Zoladex (such as bone loss and other menopausal symptoms) but it encourages your remaining endo to 'grow', so more than likely, you'll start to experience some type of pain again.

If your goal is to get pregnant, and you have tried Zoladex and it isn't working, then the next step may be surgery.

This is why it's important to have a doctor who knows about endo, because if the doctor doesn't know about endo in all of it's forms, he may just laser the surface of the endo lesions, leaving some behind, that can grow and bloom. So you will end up back in the same kind of pain about 6 months after the surgery! So it's important to find a good doctor, and to have the doctor excise the endo implants completely. I'm guessing you're in Canada, and if you are, here are a couple of docs who are good there: >>Dr Nicholas Leyland
> > 27 Roncesvalles Avenue
> > Suite 407
> > Toronto,Onatario,M6R 3B2
> > Canada.
> > 416-979-1371
> > Fax...416-979-3556
> >
> > DR.K. Lie
> > 700 Bay Street,
> > Suite 605,
> > Toronto,Ontario.
> > M5G 1Z6
> > telephone...416-595-1311
> > Fax...416-979-0238

You also might try a reproductive endocrinologist, since they are often more familiar with the disease than regular ob/gyns are.

If you're in England, you can go to this website & maybe they can help you find a doc: http://www.endometriosis-uk.org/

At Thu, 18 Jun 2009, Susan wrote: >
>Hi,
>I have been trying to get advice from my gynae for the past two months
>so am hoping I can get some here. My Dr says she doesn't know enough
>about the condition.
>
>I was diagnosed with endo and adenomyosis in January after suffering
>with daily chronic pelvic pain. My gyna started me on 6 months course
>of zoladex with Livial tibilone add-back HRT. The first two months was
>pretty bad but by the 3rd injection the pain was lifting, I felt great.
>I had two periods that month which was surprising since they had stopped
>and were supposed to stop.
>
>I had the 4th injection and 1 week later felt sick, the pain was bad and
>I had another period. Two weeks on now I do feel better, but the pain,
>although much less, is still there. I am emotionally tired from not
>knowing what to expect. I want to have try and have a baby as soon as I
>come off the treatment. I am 30 yrs old. My gut is telling me to stop
>the treatment and start trying, especially since I'm still in pain and
>having periods. I'm not convinced the zolly is working very well and
>I'm miserable.
>
>Should I persist for the last two months, even though I'm unhappy and in
>pain, or should i stop? Will the last two months make much of a
>difference?
>
>thanks for any advice!
>Sue

Next message: heavenlygarcia: "Re: Itchy rash...nerves???"
Previous message: E.: "Re: Endometriosis doctors in Philadelphia area-- please help"
In reply to: Susan: "Unsure whether to have 5th zoladex injection"
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Reply: Susan: "Re: Unsure whether to have 5th zoladex injection"

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