Re: Pain with walking/exercise
From: anonymous (anonymous@obgyn.net)
Sun May 31 23:11:44 2009
How did you find the nutrition help? Hope you're pain gets better, even
better.
I know what you mean about chances to improve earlier. I had no idea
that my not-so-bad but not-so-good eating wasn't helping the endo...:(
At Sun, 31 May 2009, anonymous wrote:
>
>Yes. The four vegetables are the one. Take care to prepare it. Follow
>the instruction closely.
>
>I am told to cut out dried fruit like apricot, etc, which used to be
>part of my snack. I'm not having honey, molasses, maple syrup etc
>neither. My counsellor told me sugar feeds endo. Also no food 3 hours
>prior to sleep. This is also very bad for endo.
>
>I hope you will have luck with diet change. I am in the same boat and I
>know getting the diet right is very difficult. Don't give up! Keep
>trying and researching.
>
>When one have relief (from surgery, lupron, etc) and one then have the
>strength to research and do something, act right away. At one time, I
>had great pain relief with lupron and simply enjoyed the pain free life,
>and didn't take the advantage of the chance. Gradually when the pain
>was fully back and I was too sick to change diet or research/ read about
>it.
>
>Staccato
>
>At Sun, 31 May 2009, anonymous wrote:
>>
>>Is this the carrot / cabbage / pumpkin / onion soup? Funny that this one
>>says it's good for sugar cravings! ok, i'm going to throw my uneaten
>>poppycock snack out now! i'll try this recipe tomorrow, is it the one
>>you use? (I mean these 4 veggies in a soup?)
>>
>>At Sat, 30 May 2009, anonymous wrote:
>>>
>>>I was the same. Morning was okay, by the end of the day, the pelvic
>>>pain got worst. I spent all evenings on couch or bed. My husband did
>>>all the cooking and feeding me. I also had more pain when walking,
>>>specially on my right leg.
>>>
>>>I used heat pads, warm (or hot) shower (sometimes a few times), and
>>>electric blanket after the shower to mitigate it. Some days I used them
>>>in addition to painkiller. Sometimes the over the counter's didn't work
>>>and I need the prescribed painkiller. A doctor at ER told me to take
>>>the painkiller early. For the week of my period where my pain is
>>>extremely bad, I should not wait till the pain is bad or unbearable
>>>before taking painkiller. Take it when the pain starts and is mild.
>>>Otherwise I end up at ER having morphine when none of the painkiller
>>>(Tylenol 3, oxycocet, I couldn't naproxan due to allergy) help.
>>>
>>>It took me a few years to realize that wearing EXTREMELY loose pants AND
>>>panties during the day help quite a bit. I went as far as trying
>>>various maternity clothes to find those working for me. I sometimes
>>>need suspender to avoid button up my pants. I just couldn't have
>>>anything tied around my belly, my pelvic area, and my thighs.
>>>
>>>If this helps at all for you, don't stop there. It could get worst that
>>>it would become unmanageable again. (I have been there.)
>>>
>>>I went on trying dairy free, wheat free diet, and sugar-free for many
>>>months. It seems to help a little but then the pain was still an issue.
>>>
>>>I recently went further on macrobiotic diet with a counsellor. I only
>>>started for couple months and I couldn't say whether it would address my
>>>endo problem. As with many things, I am usually very skeptical. Yet I
>>>just have been in pain for too long (20 years+) and have seen many
>>>physicians. I figured I should consider trying alternative treatments.
>>>
>>>Meanwhile, after 2 months seeing the macrobiotic counsellor, I am doing
>>>better in most evenings. Surprising, I am not in couch every single day
>>>after work! There are some evenings I still use robaxacet. My period
>>>pain it still very bad. Yet, I could live normal life in some evenings,
>>>like cooking and walking with my husband! I didn't expect this
>>>improvement so soon as I thought the diet would take much longer before
>>>I notice any difference.
>>>
>>>I tried macrobiotic diet on my own by reading books and videos on
>>>internet for 2 months. And it didn't help at all. Then I had the
>>>counseling and followed the instructions and remedies tailored for me.
>>>The pain in the evenings started to improve.
>>>
>>>One of the remedies was the macrobiotic sweet vegetable soup to be taken
>>>at 11am and 2:30 - 3:30pm daily. Along with diet change, the soup twice
>>>a day help getting me through the day. I am not in pain in the evenings
>>>most of the time. It used to be almost every day in a month.
>>>
>>>Mind you the dairy free and wheat free diet alone is difficult enough to
>>>follow. The macrobiotic diet is even harder to pick up. I am still
>>>learning and adapting. If it were not for this crazy pain, I don't
>>>think I would ever have the persistence to learn such a difficult
>>>diet/lifestyle.
>>>
>>>Surgery helps many. Yet many still have pain after surgery. Hence I
>>>hope this would work for me.
>>>
>>>I spoke in person to two ladies with severe endo and they said they are
>>>now pain free after they changed their diet and lifestyle. I would see
>>>how it works out.
>>>
>>>Stacato
>>>
>>>At Mon, 18 May 2009, anonymous wrote:
>>>>
>>>>I didn't just have pain with walking, the adhesions precented my walking
>>>>much...Yay CEC!
>>>>
>>>>At Mon, 18 May 2009, Katie wrote:
>>>>>
>>>>>I had a laparoscopy on April 1, 2009. I never experienced any pain
>>>>>relief and am in the process of sending my records to the CEC. In the
>>>>>meantime, do any of you have any suggestions for dealing with pain with
>>>>>walking or exercising? I'm usually ok in the morning, but by the end of
>>>>>the day if I take more than I few steps I experience severe pelvic pain.
>>>>>I've been spending every evening on my couch, unable to join my husband
>>>>>and dog for our evening walks. It's very disheartening. I couldn't
>>>>>walk at all on Saturday and it was gorgeous here.
>>>>>
>>>>>Has anyone had this happen to them? Could it be from adhesions? Any
>>>>>exercise suggestions? I love yoga, but I don't think I can handle that
>>>>>right now. Has anyone had better luck with swimming? I'd like to avoid
>>>>>gaining 20 pounds while I'm waiting for my next surgery.
>>>>>
>>>>>Thanks ladies!
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