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Re: Pain with walking/exercise
From: anonymous (anonymous@obgyn.net)
Sun May 31 00:25:33 2009
Is this the carrot / cabbage / pumpkin / onion soup? Funny that this one
says it's good for sugar cravings! ok, i'm going to throw my uneaten
poppycock snack out now! i'll try this recipe tomorrow, is it the one
you use? (I mean these 4 veggies in a soup?)
At Sat, 30 May 2009, anonymous wrote:
>
>I was the same. Morning was okay, by the end of the day, the pelvic
>pain got worst. I spent all evenings on couch or bed. My husband did
>all the cooking and feeding me. I also had more pain when walking,
>specially on my right leg.
>
>I used heat pads, warm (or hot) shower (sometimes a few times), and
>electric blanket after the shower to mitigate it. Some days I used them
>in addition to painkiller. Sometimes the over the counter's didn't work
>and I need the prescribed painkiller. A doctor at ER told me to take
>the painkiller early. For the week of my period where my pain is
>extremely bad, I should not wait till the pain is bad or unbearable
>before taking painkiller. Take it when the pain starts and is mild.
>Otherwise I end up at ER having morphine when none of the painkiller
>(Tylenol 3, oxycocet, I couldn't naproxan due to allergy) help.
>
>It took me a few years to realize that wearing EXTREMELY loose pants AND
>panties during the day help quite a bit. I went as far as trying
>various maternity clothes to find those working for me. I sometimes
>need suspender to avoid button up my pants. I just couldn't have
>anything tied around my belly, my pelvic area, and my thighs.
>
>If this helps at all for you, don't stop there. It could get worst that
>it would become unmanageable again. (I have been there.)
>
>I went on trying dairy free, wheat free diet, and sugar-free for many
>months. It seems to help a little but then the pain was still an issue.
>
>I recently went further on macrobiotic diet with a counsellor. I only
>started for couple months and I couldn't say whether it would address my
>endo problem. As with many things, I am usually very skeptical. Yet I
>just have been in pain for too long (20 years+) and have seen many
>physicians. I figured I should consider trying alternative treatments.
>
>Meanwhile, after 2 months seeing the macrobiotic counsellor, I am doing
>better in most evenings. Surprising, I am not in couch every single day
>after work! There are some evenings I still use robaxacet. My period
>pain it still very bad. Yet, I could live normal life in some evenings,
>like cooking and walking with my husband! I didn't expect this
>improvement so soon as I thought the diet would take much longer before
>I notice any difference.
>
>I tried macrobiotic diet on my own by reading books and videos on
>internet for 2 months. And it didn't help at all. Then I had the
>counseling and followed the instructions and remedies tailored for me.
>The pain in the evenings started to improve.
>
>One of the remedies was the macrobiotic sweet vegetable soup to be taken
>at 11am and 2:30 - 3:30pm daily. Along with diet change, the soup twice
>a day help getting me through the day. I am not in pain in the evenings
>most of the time. It used to be almost every day in a month.
>
>Mind you the dairy free and wheat free diet alone is difficult enough to
>follow. The macrobiotic diet is even harder to pick up. I am still
>learning and adapting. If it were not for this crazy pain, I don't
>think I would ever have the persistence to learn such a difficult
>diet/lifestyle.
>
>Surgery helps many. Yet many still have pain after surgery. Hence I
>hope this would work for me.
>
>I spoke in person to two ladies with severe endo and they said they are
>now pain free after they changed their diet and lifestyle. I would see
>how it works out.
>
>Stacato
>
>At Mon, 18 May 2009, anonymous wrote:
>>
>>I didn't just have pain with walking, the adhesions precented my walking
>>much...Yay CEC!
>>
>>At Mon, 18 May 2009, Katie wrote:
>>>
>>>I had a laparoscopy on April 1, 2009. I never experienced any pain
>>>relief and am in the process of sending my records to the CEC. In the
>>>meantime, do any of you have any suggestions for dealing with pain with
>>>walking or exercising? I'm usually ok in the morning, but by the end of
>>>the day if I take more than I few steps I experience severe pelvic pain.
>>>I've been spending every evening on my couch, unable to join my husband
>>>and dog for our evening walks. It's very disheartening. I couldn't
>>>walk at all on Saturday and it was gorgeous here.
>>>
>>>Has anyone had this happen to them? Could it be from adhesions? Any
>>>exercise suggestions? I love yoga, but I don't think I can handle that
>>>right now. Has anyone had better luck with swimming? I'd like to avoid
>>>gaining 20 pounds while I'm waiting for my next surgery.
>>>
>>>Thanks ladies!
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