Re: hysterctomy for endometriosis
From: anonymous (anonymous@obgyn.net)
Fri May 29 01:12:29 2009
Wow, that's interesting. Did it help?
I, too, get really bad adhesions :(
At Thu, 28 May 2009, NWeber wrote:
>
>I am honestly not sure how much the DaVinci system does help adhesions.
>They did alot of steps to prevent adhesions, tying up my ovaries for a
>week through an incision line on my stomach and also with a spray inside
>after surgery. I have a horrible history with scar tissue and
>adhesions.
>
>But I don't know the information specifically on the DaVinci and how
>much it helps since I already had issues with severe adhesions.
>
>At Wed, 27 May 2009, anonymous wrote:
>>
>>Does it reduce adhesions? because of the reduced blood?
>>
>>At Wed, 27 May 2009, NWeber wrote:
>>>
>>>The scoop on the DaVinci Robot is it helps recovery times. Nothing
>>>else. It still does the same thing as traditional excision it just
>>>allows the doctor a super close up look with as minimal blood loss as
>>>possible and through smaller holes. My recovery time was about 2 weeks.
>>>
>>>I will tell you this, it's expensive. Very expensive for the Davinci.
>>>Knowing what my surgery cost with my insurance in Texas, and knowing
>>>what the CEC cost, I would tell you to go to the CEC. Although my
>>>surgery went great with the Davinci, I could have gone to Atlanta for
>>>nearly the same cost.
>>>
>>>At Wed, 27 May 2009, anonymous wrote:
>>>>
>>>>Is it Dr Boggess?
>>>>
>>>>http://www.hospimed.cz/download/AAGL_Direct_Mailer.pdf
>>>>
>>>>I wanted to post this for others
>>>>
>>>>http://www.centerforendo.com/articles/robotsandexcisions.htm
>>>>
>>>>I believe that Nweber, who answered your question, also had da vinci
>>>>surgery, in Texas.
>>>>
>>>>I see this, link below, but I don't see evidence that they are the top
>>>>endo docs, even on the East Coast. Did the doctor tell you they're the
>>>>top specialist on the East Coast? Who do they consider top specialists
>>>>in the rest of the country?
>>>>
>>>>http://www.med.unc.edu/obgyn/patient-care-services/advanced-laparoscopy-pelvic-pain/types-of-surgeries-performed
>>>>
>>>>Where do you have pain? Do you have it every day? Do you have heavy
>>>>bleeding? Is the pain consistent every day of the cycle or worse during
>>>>or around your period?
>>>>
>>>>I really do think that every surgery is a different experience for
>>>>different people, but a lot of doctors have previous patients that new
>>>>ones can contact. Does yours?
>>>>
>>>>I just finally want to say that although some excision docs use the da
>>>>vinci, I believe that the true top docs do not: the CEC and Redwine.
>>>>
>>>>At Tue, 26 May 2009, anonymous wrote:
>>>>>
>>>>>Fortunatley I do have the best endometriosis expert on the East Coast. I
>>>>>got tired of doctors who were not experts so I sought out the best. He
>>>>>is an expert at the advanced laproscopy "de venci" technique and knows
>>>>>where to look on ligaments, behind organs, micro-organisms, excision,
>>>>>etc. He specializes in pelvic pain with endo and other pelvic floor
>>>>>disfunctions. He only performs a hysterectomy when all else has been
>>>>>exhausted. You must go through pelvic PT before you are even considered
>>>>>a candidate with him. He also runs clinical research studies on endo
>>>>>and pelvic floor disfunction. I know he is the lead doctor/teacher at
>>>>>UNC and teaches other doctors with this procedure and has many books and
>>>>>articles published in medical journals. I was not about to mess around
>>>>>with surgery without going to the top doctor.
>>>>>
>>>>>However, I still have lots of anxiety and know the pain may not go away.
>>>>>I am nervous about an immediate menapause and having the same level of
>>>>>pain. I know after the surgery, I have to follow up with more Pelvic PT
>>>>>to work out tramatized ligaments (levator ani). And botox injections
>>>>>may be a discussion after surgery (I don't know what the studies are on
>>>>>this). Anyone have botox for endo and ligaments in the pelvis???
>>>>>I am in my mid forties...so I am complete with having children. I was
>>>>>blessed to be able to have one at 40 but never was able to conceive
>>>>>again.
>>>>>
>>>>>Any info on the true side efects anyone has experienced with complete
>>>>>removal (uterus, ovaries, ligaments, cervex and possible bowel excisions
>>>>>surgery would be much appreciated. Oh...I have to do a bowel ultrasound
>>>>>the day before surgery just in case it has penetrated the bowel. If so,
>>>>>the gyn oncologist will be their as well.
>>>>>
>>>>>At Tue, 26 May 2009, anonymous wrote:
>>>>>>
>>>>>>have you tried excision surgery and diet?
>>>>>>
>>>>>>there's a chance endo is on your sciatic nerve, cul-de-sac, etc etc -
>>>>>>you need an endo expert's opinion
>>>>>>
>>>>>>this step your doing will not be effective and is very drastic - you're
>>>>>>in te hands of the wrong / wrong kind of doctor!
>>>>>>
>>>>>>ask your doctor where they will look for endo, and how they will remove
>>>>>>it, and why they think a drastic surgery like this will help your pain?
>>>>>>
>>>>>>centerforendo.com
>>>>>>
>>>>>>endometriosissurgeon.com
>>>>>>
>>>>>>i'd cancel the surgery today, and get the opinions of an expert you can
>>>>>>go to, and make an appointment with them
>>>>>>
>>>>>>they can remove endo and make sure it's gone
>>>>>>
>>>>>> http://www.centerforendo.com/articles/excision.htm
>>>>>>
>>>>>>http://www.endometriosissurgeon.com/TreatingEndometriosis/ImagesOfEndometriosis/default.aspx
>>>>>>
>>>>>>http://www.endometriosistreatment.org/html/laser_vaporization.html
>>>>>>
>>>>>>http://www.endometriosistreatment.org/html/reprint7.html
>>>>>>
>>>>>>At Mon, 25 May 2009, anonymous wrote:
>>>>>>>
>>>>>>>Has anyone had a total hysterectomy (uterus, overies, tubes removed) and
>>>>>>>had good results reducing pain from endometiosis? I have had it for
>>>>>>>years and tried everything but removal. Scheduled to have surgery next
>>>>>>>week. I am nervous about it not working and being just in the same
>>>>>>>amount of pain. Surgery is being performed by a pelvic pain expert at a
>>>>>>>teaching hospital. I am worried that everything will be removed and I
>>>>>>>will be left with immediate menapause symptoms and the pain will still
>>>>>>>remain.
>>>>>>>Tried hormones, injections, laproscopy, pelvic pain physical therapy,
>>>>>>>biofeedback. And the pain is worse...down leg, in rectum, SI joint and
>>>>>>>hip.
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