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Re: Endo and Celiac disease - a link?
From: E. (anonymous@obgyn.net)
Thu May 28 15:07:13 2009
It can be hard to get an endoscopy if your blood test comes back
"normal" and doesn't show and celiac. Some doctors will not do an
endoscopy, saying that it is 'not medically necessary'.
So, you may have to fight for it, depending on your doc and your
insurance.
One thing: remember to KEEP EATING gluten, otherwise, the test will not
pick anything up. So don't change your diet while you are going through
these tests, otherwise, you won't get an adequate diagnosis.
If you have a family history of the disease, it should be easier to
"push" for an endoscopy/biopsy.
At Thu, 28 May 2009, Caitlin wrote:
>
>Debbie,
>
>I'm actually thrilled about the diagnosis. I have been following a
>gluten free diet for 5 days and have had no intestinal issues whatsoever
>(diarreah, bloat etc...) WOOHOO!
>
>I was honestly convinced my symptoms were caused by Endo but lo and
>behold, not the case after all. I urge you to have the Endoscopy w/
>biopsy and please keep me posted.
>
>Best of luck to you!
>
>--
>Caitlin
>
>At Wed, 27 May 2009, Debbie wrote:
>>
>>Hi Caitlin,
>>
>>Sorry to hear that. At least you know for sure and can do something to
>>keep it under control. I had my blood test yesterday but don't know the
>>result yet. I shall probably go ahead and have the biopsy regardless of
>>the result. I have been attributing a lot of symptoms to Endo but think
>>that maybe a lot of them are actually Celiac. Thanks for letting me
>>know what happened, and I hope you start to feel better with your change
>>in diet. It's a big change but if you feel better it will be worth the
>>upheaval. Good luck
>>
>>--
>>Debbie
>>=+=+=+
>>At Tue, 26 May 2009, Caitlin wrote:
>>>
>>>Debbie,
>>>
>>>I had my endoscopy and biopsy Friday and sure enough, I have Celiac. I'm
>>>so relieved it's not IBS. At least w/ Celiac, you can control it by
>>>adopting a gluten free diet, which I've already started to do
>>>immediately following my diagnosis on Friday.
>>>
>>>My mother who has suffered from IBS for approx. 27 years is going to
>>>get tested for Celiac. Her doc did the blood tests 27 years ago when
>>>she first displayed symptoms but the markers are so much better now she
>>>has decided to get re-tested.
>>>
>>>--
>>>Caitlin
>>>
>>>At Tue, 19 May 2009, Debbie wrote:
>>>>
>>>>Hi Caitlin and thanks for your reply. It's interesting to hear your
>>>>experiences as I'm gig through something similar myself. My doctor has
>>>>recommended the blood test, endoscopy and biopsy too. I have been
>>>>avoiding wheat religiously for over a year now, but it doesn't seem to
>>>>be ebough, and I'm shocked how much gluten is in everyday foods.
>>>>
>>>>I always dismissed myself having Celiac but now I'm not so sure. I
>>>>thought avoiding wheat was enough but now I don't think it is so I'm
>>>>doing more research and seeing if its common to have both diseases
>>>>because of the autoimmune link. I get the extreme bloating where I look
>>>>very pregnant and I put this down to lactose intolerance, but now I have
>>>>discovered that lactose intolerance goes hand in hand with celiac and
>>>>I've been getting bloating despite avoiding dairy products. I've also
>>>>had a lot of bowel issues but my colon was clear of Endo in my laps.
>>>>
>>>>Thanks for your input and good luck with your endoscopy! Let us know
>>>>what happens.
>>>>
>>>>--
>>>>Debbie
>>>>=+=+=+
>>>>At Tue, 19 May 2009, Caitlin wrote:
>>>>>
>>>>>Debbie,
>>>>>
>>>>>It is so funny you ask this question! I logged on and was going to post
>>>>>the same exact thing. I have stage 3 Endo and have always had bowel
>>>>>issues. I had a Colonoscopy to rule out endo in the colon (negative)
>>>>>and was told it could be IBS. The gastro doc ran a blood test for
>>>>>Celiac just to be sure and turns out I was way above normal levels so
>>>>>this friday I am going to have an endoscopy w/ biopsy to either confirm
>>>>>or rule out Celiac.
>>>>>
>>>>>As for symptoms, extreme bloating (randomly) to the point where I look 7
>>>>>or 8 mos. pregnant. Stomach pains (gas pains, pressure) and sporadic
>>>>>diarreah. There is always a possibility this could be due to Endo on
>>>>>the bowel or adhesions but will know for sure if it's Celiac after
>>>>>Friday.
>>>>>
>>>>>I had no idea but women w/ Celiac have a higher rate of miscarriage,
>>>>>C-sections and infertility. I also know that a diet low in wheat is
>>>>>often recommended for Endo patients, so I too wonder if there is a
>>>>>connection between Celiac and Endo.
>>>>>
>>>>>I'll let you know what I find out!
>>>>>
>>>>>--
>>>>>Caitlin
>>>>>
>>>>>At Mon, 18 May 2009, Debbie wrote:
>>>>>>
>>>>>>Does anyone know of there is a link between Endo and Celiac disease?
>>>>>>Does anyone have Celiac disease and if so what symptoms did you have and
>>>>>>did you confuse them with Endo symptoms at all?
>>>>>>
>>>>>>--
>>>>>>Debbie
>>>>>>=+=+=+
>>>>>>
>>>>>--
>>>>>Caitlin
>>>>>
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