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Re: Endo and Celiac disease - a link?

From: Caitlin (anonymous@obgyn.net)
Thu May 28 08:46:20 2009


Debbie,

I'm actually thrilled about the diagnosis. I have been following a gluten free diet for 5 days and have had no intestinal issues whatsoever (diarreah, bloat etc...) WOOHOO!

I was honestly convinced my symptoms were caused by Endo but lo and behold, not the case after all. I urge you to have the Endoscopy w/ biopsy and please keep me posted.

Best of luck to you!

--
Caitlin

At Wed, 27 May 2009, Debbie wrote: > >Hi Caitlin, > >Sorry to hear that. At least you know for sure and can do something to >keep it under control. I had my blood test yesterday but don't know the >result yet. I shall probably go ahead and have the biopsy regardless of >the result. I have been attributing a lot of symptoms to Endo but think >that maybe a lot of them are actually Celiac. Thanks for letting me >know what happened, and I hope you start to feel better with your change >in diet. It's a big change but if you feel better it will be worth the >upheaval. Good luck > >-- >Debbie >=+=+=+ >At Tue, 26 May 2009, Caitlin wrote: >> >>Debbie, >> >>I had my endoscopy and biopsy Friday and sure enough, I have Celiac. I'm >>so relieved it's not IBS. At least w/ Celiac, you can control it by >>adopting a gluten free diet, which I've already started to do >>immediately following my diagnosis on Friday. >> >>My mother who has suffered from IBS for approx. 27 years is going to >>get tested for Celiac. Her doc did the blood tests 27 years ago when >>she first displayed symptoms but the markers are so much better now she >>has decided to get re-tested. >> >>-- >>Caitlin >> >>At Tue, 19 May 2009, Debbie wrote: >>> >>>Hi Caitlin and thanks for your reply. It's interesting to hear your >>>experiences as I'm gig through something similar myself. My doctor has >>>recommended the blood test, endoscopy and biopsy too. I have been >>>avoiding wheat religiously for over a year now, but it doesn't seem to >>>be ebough, and I'm shocked how much gluten is in everyday foods. >>> >>>I always dismissed myself having Celiac but now I'm not so sure. I >>>thought avoiding wheat was enough but now I don't think it is so I'm >>>doing more research and seeing if its common to have both diseases >>>because of the autoimmune link. I get the extreme bloating where I look >>>very pregnant and I put this down to lactose intolerance, but now I have >>>discovered that lactose intolerance goes hand in hand with celiac and >>>I've been getting bloating despite avoiding dairy products. I've also >>>had a lot of bowel issues but my colon was clear of Endo in my laps. >>> >>>Thanks for your input and good luck with your endoscopy! Let us know >>>what happens. >>> >>>-- >>>Debbie >>>=+=+=+ >>>At Tue, 19 May 2009, Caitlin wrote: >>>> >>>>Debbie, >>>> >>>>It is so funny you ask this question! I logged on and was going to post >>>>the same exact thing. I have stage 3 Endo and have always had bowel >>>>issues. I had a Colonoscopy to rule out endo in the colon (negative) >>>>and was told it could be IBS. The gastro doc ran a blood test for >>>>Celiac just to be sure and turns out I was way above normal levels so >>>>this friday I am going to have an endoscopy w/ biopsy to either confirm >>>>or rule out Celiac. >>>> >>>>As for symptoms, extreme bloating (randomly) to the point where I look 7 >>>>or 8 mos. pregnant. Stomach pains (gas pains, pressure) and sporadic >>>>diarreah. There is always a possibility this could be due to Endo on >>>>the bowel or adhesions but will know for sure if it's Celiac after >>>>Friday. >>>> >>>>I had no idea but women w/ Celiac have a higher rate of miscarriage, >>>>C-sections and infertility. I also know that a diet low in wheat is >>>>often recommended for Endo patients, so I too wonder if there is a >>>>connection between Celiac and Endo. >>>> >>>>I'll let you know what I find out! >>>> >>>>-- >>>>Caitlin >>>> >>>>At Mon, 18 May 2009, Debbie wrote: >>>>> >>>>>Does anyone know of there is a link between Endo and Celiac disease? >>>>>Does anyone have Celiac disease and if so what symptoms did you have and >>>>>did you confuse them with Endo symptoms at all? >>>>> >>>>>-- >>>>>Debbie >>>>>=+=+=+ >>>>> >>>>-- >>>>Caitlin >>>>




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