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Re: Endo and Celiac disease - a link?

From: Debbie (anonymous@obgyn.net)
Wed May 27 13:24:07 2009


Hi Caitlin,

Sorry to hear that. At least you know for sure and can do something to keep it under control. I had my blood test yesterday but don't know the result yet. I shall probably go ahead and have the biopsy regardless of the result. I have been attributing a lot of symptoms to Endo but think that maybe a lot of them are actually Celiac. Thanks for letting me know what happened, and I hope you start to feel better with your change in diet. It's a big change but if you feel better it will be worth the upheaval. Good luck

--
Debbie
=+=+=+
At Tue, 26 May 2009, Caitlin wrote:
>
>Debbie,
>
>I had my endoscopy and biopsy Friday and sure enough, I have Celiac.  I'm
>so relieved it's not IBS.  At least w/ Celiac, you can control it by
>adopting a gluten free diet, which I've already started to do
>immediately following my diagnosis on Friday.
>
>My mother who has suffered from IBS for approx.  27 years is going to
>get tested for Celiac.  Her doc did the blood tests 27 years ago when
>she first displayed symptoms but the markers are so much better now she
>has decided to get re-tested.
>
>--
>Caitlin
>
>At Tue, 19 May 2009, Debbie wrote:
>>
>>Hi Caitlin and thanks for your reply.  It's interesting to hear your
>>experiences as I'm gig through something similar myself.  My doctor has
>>recommended the blood test, endoscopy and biopsy too.  I have been
>>avoiding wheat religiously for over a year now, but it doesn't seem to
>>be ebough, and I'm shocked how much gluten is in everyday foods.
>>
>>I always dismissed myself having Celiac but now I'm not so sure.  I
>>thought avoiding wheat was enough but now I don't think it is so I'm
>>doing more research and seeing if its common to have both diseases
>>because of the autoimmune link.  I get the extreme bloating where I look
>>very pregnant and I put this down to lactose intolerance, but now I have
>>discovered that lactose intolerance goes hand in hand with celiac and
>>I've been getting bloating despite avoiding dairy products.  I've also
>>had a lot of bowel issues but my colon was clear of Endo in my laps.
>>
>>Thanks for your input and good luck with your endoscopy! Let us know
>>what happens.
>>
>>--
>>Debbie
>>=+=+=+
>>At Tue, 19 May 2009, Caitlin wrote:
>>>
>>>Debbie,
>>>
>>>It is so funny you ask this question! I logged on and was going to post
>>>the same exact thing.  I have stage 3 Endo and have always had bowel
>>>issues.  I had a Colonoscopy to rule out endo in the colon (negative)
>>>and was told it could be IBS.  The gastro doc ran a blood test for
>>>Celiac just to be sure and turns out I was way above normal levels so
>>>this friday I am going to have an endoscopy w/ biopsy to either confirm
>>>or rule out Celiac.
>>>
>>>As for symptoms, extreme bloating (randomly) to the point where I look 7
>>>or 8 mos.  pregnant.  Stomach pains (gas pains, pressure) and sporadic
>>>diarreah.  There is always a possibility this could be due to Endo on
>>>the bowel or adhesions but will know for sure if it's Celiac after
>>>Friday.
>>>
>>>I had no idea but women w/ Celiac have a higher rate of miscarriage,
>>>C-sections and infertility.  I also know that a diet low in wheat is
>>>often recommended for Endo patients, so I too wonder if there is a
>>>connection between Celiac and Endo.
>>>
>>>I'll let you know what I find out!
>>>
>>>--
>>>Caitlin
>>>
>>>At Mon, 18 May 2009, Debbie wrote:
>>>>
>>>>Does anyone know of there is a link between Endo and Celiac disease?
>>>>Does anyone have Celiac disease and if so what symptoms did you have and
>>>>did you confuse them with Endo symptoms at all?
>>>>
>>>>--
>>>>Debbie
>>>>=+=+=+
>>>>
>>>--
>>>Caitlin
>>>



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