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Re: hysterctomy for endometriosis
From: ampyali (anonymous@obgyn.net)
Wed May 27 09:28:09 2009
The last thing I would ever want to do is to cause someone to mistrust
or not feel confident in their doctor. Your surgeon sounds top-notch
and I am sure is a very qualified gyn surgeon. I have to say, though,
that his treatment plan for you is not consistent with what I know the
top endo specialists in the country would propose for treatment of
endometriosis. One of these doctors would not recommend hysterectomy or
oophorectomy to treat endo. It is well know that these procedures are
not curative for endometriosis. Before you take this drastic step, it
would be easy and pretty painless to forward your records to the CEC or
one of the other top excisionists. You could let them know that you
have surgery scheduled so that they could look at your records as soon
as possible. The surgery you have planned is irreversible and will have
life-long implications. If it were me, I would want to understand all
my options before taking such a drastic step. Just my two cents. Best
wishes!
At Tue, 26 May 2009, anonymous wrote:
>
>Fortunatley I do have the best endometriosis expert on the East Coast. I
>got tired of doctors who were not experts so I sought out the best. He
>is an expert at the advanced laproscopy "de venci" technique and knows
>where to look on ligaments, behind organs, micro-organisms, excision,
>etc. He specializes in pelvic pain with endo and other pelvic floor
>disfunctions. He only performs a hysterectomy when all else has been
>exhausted. You must go through pelvic PT before you are even considered
>a candidate with him. He also runs clinical research studies on endo
>and pelvic floor disfunction. I know he is the lead doctor/teacher at
>UNC and teaches other doctors with this procedure and has many books and
>articles published in medical journals. I was not about to mess around
>with surgery without going to the top doctor.
>
>However, I still have lots of anxiety and know the pain may not go away.
>I am nervous about an immediate menapause and having the same level of
>pain. I know after the surgery, I have to follow up with more Pelvic PT
>to work out tramatized ligaments (levator ani). And botox injections
>may be a discussion after surgery (I don't know what the studies are on
>this). Anyone have botox for endo and ligaments in the pelvis???
>I am in my mid forties...so I am complete with having children. I was
>blessed to be able to have one at 40 but never was able to conceive
>again.
>
>Any info on the true side efects anyone has experienced with complete
>removal (uterus, ovaries, ligaments, cervex and possible bowel excisions
>surgery would be much appreciated. Oh...I have to do a bowel ultrasound
>the day before surgery just in case it has penetrated the bowel. If so,
>the gyn oncologist will be their as well.
>
>At Tue, 26 May 2009, anonymous wrote:
>>
>>have you tried excision surgery and diet?
>>
>>there's a chance endo is on your sciatic nerve, cul-de-sac, etc etc -
>>you need an endo expert's opinion
>>
>>this step your doing will not be effective and is very drastic - you're
>>in te hands of the wrong / wrong kind of doctor!
>>
>>ask your doctor where they will look for endo, and how they will remove
>>it, and why they think a drastic surgery like this will help your pain?
>>
>>centerforendo.com
>>
>>endometriosissurgeon.com
>>
>>i'd cancel the surgery today, and get the opinions of an expert you can
>>go to, and make an appointment with them
>>
>>they can remove endo and make sure it's gone
>>
>> http://www.centerforendo.com/articles/excision.htm
>>
>>http://www.endometriosissurgeon.com/TreatingEndometriosis/ImagesOfEndometriosis/default.aspx
>>
>>http://www.endometriosistreatment.org/html/laser_vaporization.html
>>
>>http://www.endometriosistreatment.org/html/reprint7.html
>>
>>At Mon, 25 May 2009, anonymous wrote:
>>>
>>>Has anyone had a total hysterectomy (uterus, overies, tubes removed) and
>>>had good results reducing pain from endometiosis? I have had it for
>>>years and tried everything but removal. Scheduled to have surgery next
>>>week. I am nervous about it not working and being just in the same
>>>amount of pain. Surgery is being performed by a pelvic pain expert at a
>>>teaching hospital. I am worried that everything will be removed and I
>>>will be left with immediate menapause symptoms and the pain will still
>>>remain.
>>>Tried hormones, injections, laproscopy, pelvic pain physical therapy,
>>>biofeedback. And the pain is worse...down leg, in rectum, SI joint and
>>>hip.
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