Re: hysterctomy for endometriosis
From: anonymous (anonymous@obgyn.net)
Wed May 27 01:25:23 2009
Why are you having your ovaries removed? I can almost understand the
hyst because of the possibility of adenomyosis, but I have never heard
or read of an expert telling you to have your ovaries removed for endo.
In addition, these kinds of doctors that do hysts often recommend taking
estrogen after surgery, which some feel contributes to cancer. Few know
about progesterone, which can help women in how they feel, and in
avoiding cancer (you can google it, and also check out sites like
power-surge.com)
Is he going to have a bowel doc in there?
Good luck, all the things you say don't resound with things I've read,
and most docs will tell you to get a 2nd opinion, especially for such a
drastic life changing situation. Has he talked to about possible
depression post-op?
You might go to erc.activboard.com/ , google it if it doesn't show
up...there are some stories there, also on hystersisters
You might also ask questions there of a nurse that had surgery with Dr
Redwine, after a hyst did not fix her pain issues....
At Tue, 26 May 2009, anonymous wrote:
>
>Fortunatley I do have the best endometriosis expert on the East Coast. I
>got tired of doctors who were not experts so I sought out the best. He
>is an expert at the advanced laproscopy "de venci" technique and knows
>where to look on ligaments, behind organs, micro-organisms, excision,
>etc. He specializes in pelvic pain with endo and other pelvic floor
>disfunctions. He only performs a hysterectomy when all else has been
>exhausted. You must go through pelvic PT before you are even considered
>a candidate with him. He also runs clinical research studies on endo
>and pelvic floor disfunction. I know he is the lead doctor/teacher at
>UNC and teaches other doctors with this procedure and has many books and
>articles published in medical journals. I was not about to mess around
>with surgery without going to the top doctor.
>
>However, I still have lots of anxiety and know the pain may not go away.
>I am nervous about an immediate menapause and having the same level of
>pain. I know after the surgery, I have to follow up with more Pelvic PT
>to work out tramatized ligaments (levator ani). And botox injections
>may be a discussion after surgery (I don't know what the studies are on
>this). Anyone have botox for endo and ligaments in the pelvis???
>I am in my mid forties...so I am complete with having children. I was
>blessed to be able to have one at 40 but never was able to conceive
>again.
>
>Any info on the true side efects anyone has experienced with complete
>removal (uterus, ovaries, ligaments, cervex and possible bowel excisions
>surgery would be much appreciated. Oh...I have to do a bowel ultrasound
>the day before surgery just in case it has penetrated the bowel. If so,
>the gyn oncologist will be their as well.
>
>At Tue, 26 May 2009, anonymous wrote:
>>
>>have you tried excision surgery and diet?
>>
>>there's a chance endo is on your sciatic nerve, cul-de-sac, etc etc -
>>you need an endo expert's opinion
>>
>>this step your doing will not be effective and is very drastic - you're
>>in te hands of the wrong / wrong kind of doctor!
>>
>>ask your doctor where they will look for endo, and how they will remove
>>it, and why they think a drastic surgery like this will help your pain?
>>
>>centerforendo.com
>>
>>endometriosissurgeon.com
>>
>>i'd cancel the surgery today, and get the opinions of an expert you can
>>go to, and make an appointment with them
>>
>>they can remove endo and make sure it's gone
>>
>> http://www.centerforendo.com/articles/excision.htm
>>
>>http://www.endometriosissurgeon.com/TreatingEndometriosis/ImagesOfEndometriosis/default.aspx
>>
>>http://www.endometriosistreatment.org/html/laser_vaporization.html
>>
>>http://www.endometriosistreatment.org/html/reprint7.html
>>
>>At Mon, 25 May 2009, anonymous wrote:
>>>
>>>Has anyone had a total hysterectomy (uterus, overies, tubes removed) and
>>>had good results reducing pain from endometiosis? I have had it for
>>>years and tried everything but removal. Scheduled to have surgery next
>>>week. I am nervous about it not working and being just in the same
>>>amount of pain. Surgery is being performed by a pelvic pain expert at a
>>>teaching hospital. I am worried that everything will be removed and I
>>>will be left with immediate menapause symptoms and the pain will still
>>>remain.
>>>Tried hormones, injections, laproscopy, pelvic pain physical therapy,
>>>biofeedback. And the pain is worse...down leg, in rectum, SI joint and
>>>hip.
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