Re: Free Fluid in Pelvis: PLEASE HELP!!
From: anonymous (anonymous@obgyn.net)
Mon May 25 14:42:04 2009
A mother has posted here that she took her daughter about the same age
to the CEC for surgery and was very happy. her daughter is doing great.
I would call and send your records asap!
centerforendo.com
you might also look for info on the CEC at erc.activboard.com/ (google
that if it doesn't come up)
At Sun, 24 May 2009, Beatrice wrote:
>
>At Thu, 31 Jul 2008, kat35423 wrote:
>>
>>At Mon, 26 Feb 2007, Nicole wrote:
>>>
>>>I've had so many doctors seem completely unconcerned by the fact that I
>>>have Endometriosis, just as in your case. I don't know how many times
>>>I've been in the ER complaining of severe pain (usually a ruptured cyst
>>>which can leak fluid into the pelvic are and cause severe pain,
>>>infections, fever etc.) I get abnormal sized cysts which rupture all the
>>>time. I know exactly what they feel like and the signs/symptoms. The
>>>doctor's always shrug and say "well Endometriosis probably has nothing
>>>to do with this, you probably have appendicitis" I'm like HELLO I have
>>>ENDOMETRIOSIS, and I do not have appendicitis...I have no appendix!
>>>Endometriosis is serious! Why won't you listen to me! And the truth is
>>>most doctors don't know crap about it! So when a doctor shrugs, or seems
>>>totally unconcerned get rid of 'em. I've gotten to the point where I
>>>don't trust anything a doctor says (yes this is sad) but I've been told
>>>more lies than truth. Unless I'm talking to an Endo expert. Even if
>>>your doc is an OBGYN...I've found most know little about
>>>Endometriosis(also very sad). I once went to an OBGYN who listed on her
>>>website bio as having experience with treating Endo. When I saw her,
>>>she looked at me shrugged and said "Well, Endometriosis is tough to
>>>treat, so there's not much that I can do for you" I was
>>>appaled...needless to say I never paid her 350 dollar fee to hear her
>>>blow wind at me! I simply never went back to her and looked for another
>>>doc. It's ironic that a lot of the women I talk to who have Endo, don't
>>>have a good GYN, or they go through like 10 or 20 before finding a good
>>>one that knows about Endo. I couldn't believe this woman claimed to be
>>>"experienced treating Endometriosis" and she basically said-sorry I
>>>can't help you because I don't know anything about treating Endo, I
>>>lied. Anyway...I would suggest that if you are not happy with your
>>>doctor (for whatever reason, even if you've been with her/him awhile) go
>>>seek out a doctor who is an expert in Endo. I don't think it is
>>>something to shrug off for example, if you are getting free fluid in
>>>your pelvic area. It is very common for women with Endo to get large
>>>abnormal cysts which rupture and cause free fluid in that area. My
>>>guess would be that this is probably what is causing the free-standing
>>>fluid you have. If you want to talk to me more about this problem feel
>>>free to email me: "meenee@gmail.com" I have a long history of ovarian
>>>cysts/ruptured cysts, endometrial cysts, so I can tell you all about
>>>'em.
>>>Grrr it makes me so upset to hear about doctors like this...at least she
>>>could have said "sorry I'm not sure what is causing this, but you may
>>>want to see a specialist since I'm not that familiar with Endometriosis.
>>>As women with this disease, we need to learn as much about it as
>>>possible, so we can protect ourselves from mis-information and those
>>>doctors who may do more harm than good. When in doubt, seek another
>>>opinion.
>>>Good luck with everything.
>>>-Nic
>>>
>>>At Fri, 23 Feb 2007, sheila wrote:
>>>>
>>>>At Sun, 24 Jul 2005, michele wrote:
>>>>>
>>>>>I had a CT scan done a couple of months ago due to GI problems I was
>>>>>experiencing, and have been experiencing for quite some time. My scan
>>>>>also revealed fluid in my pelvic region....and like you, I paniced.
>>>>>However, when I went back to the doctors how ordered the results, she
>>>>>was completely unconcerned. She did seem to care or think anything of
>>>>>the fact that I have endometriosis, and I was still concerned because I
>>>>>was disappointed with her lack of acknowledgement of the fluid, so I
>>>>>went to my OBGYN to discuss it. He, too, was unconcerned, and said it
>>>>>could be the result of a ruptured cyst. He also ordered a pelvic
>>>>>ultrasound to make sure I did not have anymore cysts. I felt happy
>>>>>after my visit with him because he is a great doctor, and he ordered the
>>>>>ultrasound as well. Just as someone else replied, I'm sure if there was
>>>>>a reason for concern they would've directed you to the hospital. But I
>>>>>agree, waiting is the worse, especially if you're the type of person
>>>>>like me who always thinks the worst. I had to wait a few days as well
>>>>>and was frustrated, but like I said, nobody was too concerned. Hope
>>>>>this was helpful.
>>>>>At Fri, 22 Jul 2005, Jill wrote:
>>>>>>
>>>>>>Hi All,
>>>>>>Has anyone had a CT scan that showed free fluid in the pelvis? My scan
>>>>>>was yesterday by my GI's request. She is sending the results back to my
>>>>>>GYN. They feel it may be a burst cyst. I started my period, too. Can
>>>>>>a period contribute to free fluid? This is my first period after six
>>>>>>months of Lupron therapy.
>>>>>>
>>>>>>I've had endo problems for a long time now, but free fluid freaks me out
>>>>>>b/c I was bleeding internally from a ruptured ectopic preg. for 10 days
>>>>>>and almost died in Dec. 04. I know I am not preg. now.
>>>>>>
>>>>>>I'm shaking right now; I'm so scared. I just called my GYN to give her
>>>>>>the heads up about the CT results, but it's Friday at 4pm. I'm not
>>>>>>expecting a call back, even though I let her know how important it was
>>>>>>to me.
>>>>>>
>>>>>>Any information anyone has on this subject would be much appreciated.
>>>>>>Why did I have to get this news on a Friday afternoon??!!
>>>>>>
>>>>>>Help!
>>>>>>
>>>>>>--
>>>>>>Jill
>>>>>>
>>>>>>--
>>>>>>Jill
>>>>>>
>>>>I know exactly what you mean about being upset over having free floating
>>>>fluid in the pelvis. I had a ct of the the right hip to rule out a
>>>>orthopedic problem but all that showed up was FREE FLOATING FLIUD IN MY
>>>>PELVIS !!!!!! I had never heard of this before. I did think the worst,I
>>>>saw my doctor who ordered an ultrasound of the pelvis that showed the
>>>>same.So now I am to have a ct of the pelvis.I searched the internet for
>>>>days to even find this problem, which I have yet to do. Reading your
>>>>e-mail at least gave me some hope knowing that someone else has at least
>>>>heard of this problem.I wish you the best with your situation.I will
>>>>follow up with the ct scan. The lack of concern that my doctors are
>>>>showing may be a good sign as well.I do wish that some information out
>>>>there did exist for this problem. good luck
>>>>
>>>>--
>>>>sheila
>>>>
>>Hi, i have been in a lot of pain for months now and evertime i go to
>>doctor they say i must have STD, they do tests and always come back
>>negative. they have been brushing it off for ages until i demanded an
>>ultrasound. it showed free fluid around my ovaries. now they wont tell
>>me what that means and whats wrong with me. from the little information
>>i have got from them i think i have cysts on my ovaries but they wont
>>confirm it. they say we will do a couple more tests. why are they
>>hidding information from me. im so scared that it could be something
>>serious. i have all the symptoms of being pregnant and constant
>>cramping, i cant have intercourse with my boyfriend as it hurts too
>>much. does any1 else have these problems at if so what is it?
>>
>>--
>>katrina
>>
>--
>I have a 14 yrd old daughter who for the past 8 mths have had sever RUQ
>abd pain.
>On multiple ultrasounds and a CT scan, the ovarian cyst has been seen,
>but on follow-up testing they did not appear. Her pain is so sever
>about three day per week every week that she can't even stand up straight.
>She has to walk beeded towards the right. She was even admitted for three
>days in order to control the pain. I was told the pain was due to ruptured
>cyst and that she would hav to learn how to deal with and decrease the pain,
>but we have tried everything that was instructed of us but to no avail. She
>was just recently prescirbed a low dose birth control, so I'm hoping that this
>will help. This is really interfering with her quality of life. She's too
>young to have to deal with this and I feel so totally helpless. Everytime I
>have to present to the ER it feel as if the ER staff is saying here we go
>again. They have no idea how we try and control this before my child is
>doubled over in pain and screaming before we have to present to the ER. My
>heart just goes out to my child. She has missed out on so many planned
>events because of this issue. On our last vist to the ER anoter ultrasount and
>CT scan was performe and this showed free fluid in the pelvis on both test.
>So this, of course, was the ruptured cyst and the cause once again of my
>daughters pain. It has now beem three days and we start the mornig the same
>way, with hydrocodone to relieve my child's discomfort.
>
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