Re: ADENOMYOSIS AND SYMPTOMS....ANYONE??? (LONG)
From: anonymous (anonymous@obgyn.net)
Thu Apr 30 15:38:15 2009
Just curious - how were you diagnosed? Usually, with adeno, really the
only way to diagnose a woman is after a hyst...
I would have a consultation with someone like Dr Sinervo at the CEC. If
you do have pain, and have no periods, you need to know what's going on.
This doctor doesn't seem to know how to treat endo, experts are actually
pretty rare/
What you want to make sure is that you also have any endo excised at the
same time - endo is outside the uterus, and this is why it matters if
you're still getting your period.
I had some pelvic pain that was helped by changing my diet. That is not
the case with everyone, but I was surprised how much it helped.
oxalate content of foodsUnderstanding Chronic Pelvic Pain And Vulvodynia
· Oxalate Diet for Pelvic Pain and Vulvodynia ... (1993)
Musculoskeletal Origins of Chronic Pelvic Pain. ...
http://www.seekwellness.com/incontinence/table4oxalates.htm - 43k - Cached -
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Pelvic pain: diagnosis and management - Google Books Resultby Fred M.
Howard, C. Paul Perry, James Carter ... - 2000 - Medical - 529 pages
... greatest sources of misery for patients suffering with chronic
pelvic pain. ... irritant in association with vestibulitis is calcium
oxalate crystals. ...
books.google.com/books?isbn81717248...
Oxalates and Pain: Pain can be caused by eating foods that contain ...A
build up of oxalate's can cause a number of pain related disorders such
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http://www.pelvicpain.org.uk :: View topic - immune responses and oxalates5
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The low oxalate cookbook 2 is the one to get. It is BRILLIANT and is
produced by the Vulval Pain Foundation. It gives a comprehensive list
...
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At Wed, 29 Apr 2009, anonymous@obgyn.net wrote:
>
>At Tue, 23 Nov 2004, Tracy wrote:
>>
>>Hi Erin,
>>I thought your story was interesting. I just wanted to let you know
>>that your c-sections might not be the only reason your uterus is a mess.
>>I will be having my uterus taken out Dec 8th. I delivered both of my
>>children vaginally. I never had any miscarriages nor abortions. I
>>think some women just have tramatic births. The doc said I had lots of
>>scar tissue. I think this must be from where the placentas were
>>attached. I also had cryo surgery on my cervix due to damage during
>>labor. I don't feel that my deliverys were difficult at least not more
>>than anyone elses. Both of my children are considered normal births. I
>>also agree with the lack of knowlege people have about adenomyosis. My
>>sister is a nurse and has never heard of it. It's nice to know that
>>there are others with the same problems. I will gladly hand over my
>>uterus. It was good enough to carry 2 children in it so I am very
>>thankful. I also have a fertile husband. I conceived the first time
>>with both children. I feel so blessed compared to women who are having
>>difficulty. I will post after my surgery to inform everyone wether is
>>has helped. I know this might not be the answer for everyone but it is
>>for me. I feel that my life and family are complete. Thanks for
>>listening.
>>Tracy
>>
>>At Sat, 20 Nov 2004, anonymous@obgyn.net wrote:
>>>
>>>I have adenomyosis, too. Just confirmed last week. I experience many
>>>of the same symptoms that Tracy describes (even once put my back out
>>>sitting on the toilet, and I'm in very good shape back there).
>>>
>>>Sometimes, posting to this board, I feel like an usurper (okay, not that
>>>strong, maybe just an imposter), because I don't feel the same kinds of
>>>pains as endo, nor do they seem extreme. So it's very comforting,
>>>albeit sad, to get a little feedback from others with adenomyosis. Seems
>>>most everyone I talk to about it knows what endometriosis is, but not
>>>adenomyosis.
>>>
>>>I haven't found out how advanced my adenomyosis is (if advanced is
>>>something that can be applied to this condition). I can say that my
>>>discomfort is increasing by leaps and bounds in the last year. Hopefully
>>>the results of my MRI indicate to my doctor that a course of action is
>>>called for. Not that this man has ever been lacking in his treatment of
>>>me, but far from it. Still, there's always this nagging worry,
>>>especially after reading all of these stories, that he'll tell me that
>>>things aren't advanced enough to cause me the pain I'm in.
>>>
>>>During my first pregnancy, a fibroid was spotted in my uterus. Perhaps
>>>coincidentally, my cervix failed to dilate and my son was born by
>>>emergency c-section. During my second pregnancy, the fibroid was again
>>>noted (different hospital, different u/s tech). When I went into labor
>>>with her, there was obviously something wrong, and the nurses were
>>>completely unable to pick up the contractions I was having on their
>>>monitors. They opted to break my sac and monitor the contractions
>>>vaginally, but they still didn't display correctly. Again, my cervix
>>>failed to dilate and my daughter was delivered by c-section.
>>>
>>>I've had a pretty good rate of success at guessing how my current
>>>uterine tribulations have caused problems historically, corroborated
>>>heavily by my doctor. What I'm assuming now is that in addition to PCOS
>>>and the fibroid, I already had some slight problems with adenomyosis
>>>before my first pregnancy. I believe I was able to conceive due to two
>>>things: being in very, very good physical shape on an excellent diet and
>>>an extremely fertile husband. I'd like to note that despite my
>>>precautions of diet and exercise, I still delivered both of my children
>>>by surgery. I am convinced that adenomysosis caused the complications
>>>with my first delivery, that the c-section allowed the adenomyosis to
>>>advance, making the second delivery also complicated.
>>>
>>>So I guess what I'm saying is: it's not impossible to conceive or bear
>>>children, but it might just be a little bit more complicated, especially
>>>at the end. And, too, I am certain that two c-sections are now costing
>>>me my uterus. Not that I mind: I'm grateful for these children I was
>>>told I could not have, and I don't plan to have any more, anyway.
>>>
>>>Cheers,
>>>
>>>Erin P.
>
>--
>hi I have been diagnosed with adenomyosis. Is medical treatment ie using hormone treatment instead of surgery better? I am in extreme pain every day but my consultant is saying that a hormone treatment rather than a hysterectomy is preferrable because of my age and closeness to the menapause ( i am 52)
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)