Re: ADENOMYOSIS AND SYMPTOMS....ANYONE??? (LONG)
From: anonymous (anonymous@obgyn.net)
Wed Apr 29 16:51:17 2009
by hormone treatment, do you mean Lupron?
are you still getting periods?
At Wed, 29 Apr 2009, anonymous@obgyn.net wrote:
>
>At Tue, 23 Nov 2004, Tracy wrote:
>>
>>Hi Erin,
>>I thought your story was interesting. I just wanted to let you know
>>that your c-sections might not be the only reason your uterus is a mess.
>>I will be having my uterus taken out Dec 8th. I delivered both of my
>>children vaginally. I never had any miscarriages nor abortions. I
>>think some women just have tramatic births. The doc said I had lots of
>>scar tissue. I think this must be from where the placentas were
>>attached. I also had cryo surgery on my cervix due to damage during
>>labor. I don't feel that my deliverys were difficult at least not more
>>than anyone elses. Both of my children are considered normal births. I
>>also agree with the lack of knowlege people have about adenomyosis. My
>>sister is a nurse and has never heard of it. It's nice to know that
>>there are others with the same problems. I will gladly hand over my
>>uterus. It was good enough to carry 2 children in it so I am very
>>thankful. I also have a fertile husband. I conceived the first time
>>with both children. I feel so blessed compared to women who are having
>>difficulty. I will post after my surgery to inform everyone wether is
>>has helped. I know this might not be the answer for everyone but it is
>>for me. I feel that my life and family are complete. Thanks for
>>listening.
>>Tracy
>>
>>At Sat, 20 Nov 2004, anonymous@obgyn.net wrote:
>>>
>>>I have adenomyosis, too. Just confirmed last week. I experience many
>>>of the same symptoms that Tracy describes (even once put my back out
>>>sitting on the toilet, and I'm in very good shape back there).
>>>
>>>Sometimes, posting to this board, I feel like an usurper (okay, not that
>>>strong, maybe just an imposter), because I don't feel the same kinds of
>>>pains as endo, nor do they seem extreme. So it's very comforting,
>>>albeit sad, to get a little feedback from others with adenomyosis. Seems
>>>most everyone I talk to about it knows what endometriosis is, but not
>>>adenomyosis.
>>>
>>>I haven't found out how advanced my adenomyosis is (if advanced is
>>>something that can be applied to this condition). I can say that my
>>>discomfort is increasing by leaps and bounds in the last year. Hopefully
>>>the results of my MRI indicate to my doctor that a course of action is
>>>called for. Not that this man has ever been lacking in his treatment of
>>>me, but far from it. Still, there's always this nagging worry,
>>>especially after reading all of these stories, that he'll tell me that
>>>things aren't advanced enough to cause me the pain I'm in.
>>>
>>>During my first pregnancy, a fibroid was spotted in my uterus. Perhaps
>>>coincidentally, my cervix failed to dilate and my son was born by
>>>emergency c-section. During my second pregnancy, the fibroid was again
>>>noted (different hospital, different u/s tech). When I went into labor
>>>with her, there was obviously something wrong, and the nurses were
>>>completely unable to pick up the contractions I was having on their
>>>monitors. They opted to break my sac and monitor the contractions
>>>vaginally, but they still didn't display correctly. Again, my cervix
>>>failed to dilate and my daughter was delivered by c-section.
>>>
>>>I've had a pretty good rate of success at guessing how my current
>>>uterine tribulations have caused problems historically, corroborated
>>>heavily by my doctor. What I'm assuming now is that in addition to PCOS
>>>and the fibroid, I already had some slight problems with adenomyosis
>>>before my first pregnancy. I believe I was able to conceive due to two
>>>things: being in very, very good physical shape on an excellent diet and
>>>an extremely fertile husband. I'd like to note that despite my
>>>precautions of diet and exercise, I still delivered both of my children
>>>by surgery. I am convinced that adenomysosis caused the complications
>>>with my first delivery, that the c-section allowed the adenomyosis to
>>>advance, making the second delivery also complicated.
>>>
>>>So I guess what I'm saying is: it's not impossible to conceive or bear
>>>children, but it might just be a little bit more complicated, especially
>>>at the end. And, too, I am certain that two c-sections are now costing
>>>me my uterus. Not that I mind: I'm grateful for these children I was
>>>told I could not have, and I don't plan to have any more, anyway.
>>>
>>>Cheers,
>>>
>>>Erin P.
>
>--
>hi I have been diagnosed with adenomyosis. Is medical treatment ie using hormone treatment instead of surgery better? I am in extreme pain every day but my consultant is saying that a hormone treatment rather than a hysterectomy is preferrable because of my age and closeness to the menapause ( i am 52)
>
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