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Re: ADENOMYOSIS AND SYMPTOMS....ANYONE??? (LONG)From: anonymous@obgyn.netWed Apr 29 15:49:41 2009
At Tue, 23 Nov 2004, Tracy wrote: > >Hi Erin, >I thought your story was interesting. I just wanted to let you know >that your c-sections might not be the only reason your uterus is a mess. >I will be having my uterus taken out Dec 8th. I delivered both of my >children vaginally. I never had any miscarriages nor abortions. I >think some women just have tramatic births. The doc said I had lots of >scar tissue. I think this must be from where the placentas were >attached. I also had cryo surgery on my cervix due to damage during >labor. I don't feel that my deliverys were difficult at least not more >than anyone elses. Both of my children are considered normal births. I >also agree with the lack of knowlege people have about adenomyosis. My >sister is a nurse and has never heard of it. It's nice to know that >there are others with the same problems. I will gladly hand over my >uterus. It was good enough to carry 2 children in it so I am very >thankful. I also have a fertile husband. I conceived the first time >with both children. I feel so blessed compared to women who are having >difficulty. I will post after my surgery to inform everyone wether is >has helped. I know this might not be the answer for everyone but it is >for me. I feel that my life and family are complete. Thanks for >listening. >Tracy > >At Sat, 20 Nov 2004, anonymous@obgyn.net wrote: >> >>I have adenomyosis, too. Just confirmed last week. I experience many >>of the same symptoms that Tracy describes (even once put my back out >>sitting on the toilet, and I'm in very good shape back there). >> >>Sometimes, posting to this board, I feel like an usurper (okay, not that >>strong, maybe just an imposter), because I don't feel the same kinds of >>pains as endo, nor do they seem extreme. So it's very comforting, >>albeit sad, to get a little feedback from others with adenomyosis. Seems >>most everyone I talk to about it knows what endometriosis is, but not >>adenomyosis. >> >>I haven't found out how advanced my adenomyosis is (if advanced is >>something that can be applied to this condition). I can say that my >>discomfort is increasing by leaps and bounds in the last year. Hopefully >>the results of my MRI indicate to my doctor that a course of action is >>called for. Not that this man has ever been lacking in his treatment of >>me, but far from it. Still, there's always this nagging worry, >>especially after reading all of these stories, that he'll tell me that >>things aren't advanced enough to cause me the pain I'm in. >> >>During my first pregnancy, a fibroid was spotted in my uterus. Perhaps >>coincidentally, my cervix failed to dilate and my son was born by >>emergency c-section. During my second pregnancy, the fibroid was again >>noted (different hospital, different u/s tech). When I went into labor >>with her, there was obviously something wrong, and the nurses were >>completely unable to pick up the contractions I was having on their >>monitors. They opted to break my sac and monitor the contractions >>vaginally, but they still didn't display correctly. Again, my cervix >>failed to dilate and my daughter was delivered by c-section. >> >>I've had a pretty good rate of success at guessing how my current >>uterine tribulations have caused problems historically, corroborated >>heavily by my doctor. What I'm assuming now is that in addition to PCOS >>and the fibroid, I already had some slight problems with adenomyosis >>before my first pregnancy. I believe I was able to conceive due to two >>things: being in very, very good physical shape on an excellent diet and >>an extremely fertile husband. I'd like to note that despite my >>precautions of diet and exercise, I still delivered both of my children >>by surgery. I am convinced that adenomysosis caused the complications >>with my first delivery, that the c-section allowed the adenomyosis to >>advance, making the second delivery also complicated. >> >>So I guess what I'm saying is: it's not impossible to conceive or bear >>children, but it might just be a little bit more complicated, especially >>at the end. And, too, I am certain that two c-sections are now costing >>me my uterus. Not that I mind: I'm grateful for these children I was >>told I could not have, and I don't plan to have any more, anyway. >> >>Cheers, >> >>Erin P. hi I have been diagnosed with adenomyosis. Is medical treatment ie using hormone treatment instead of surgery better? I am in extreme pain every day but my consultant is saying that a hormone treatment rather than a hysterectomy is preferrable because of my age and closeness to the menapause ( i am 52)
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