Re: Treatment with Norethindrone
From: anonymous (anonymous@obgyn.net)
Mon Apr 27 16:59:03 2009
meant to post this, erc.activboard.com/
also, this article might help you
http://centerforendo.com/articles/bcp.htm
here's some info on endo
http://www.endofound.org/about-endometriosis.php
endometriosis.org
At Mon, 27 Apr 2009, anonymous wrote:
>
>You really need an endo expert, not just a doctor as you described. The
>nice things are incidental. You need one with expertise in this rare
>field.
>
>They have a doc recommendations section on erc.activboard./
>
>I believe there's one in Milwaukee (Dr Koh?) and Pittsburgh (not sure of
>the name). You need one that does endo excision.
>
>I went to these people and they're worth the trip.
>
>centerforendo.com
>
>Re: your last statement, have you had your hormones checked? Dr Phil and
>Oprah have just had segments on these issues for women, with info about
>testing and compounding pharmacies.
>
>At Mon, 27 Apr 2009, Roxann wrote:
>>
>>I am in Chicago. My doctor seems highly regarded but I am looking for
>>someone not so tunnel-visioned. I would like a doctor that takes the
>>patient's opinion into consideration. My symptoms were bad before but I
>>know it is not half as bad as for some women so I am willing to take a
>>chance and see how long I can go before they come back. I just haven't
>>felt myself since starting this course of treatment. I am fat and
>>fatigued and not enthused about life.
>>
>>At Mon, 27 Apr 2009, anonymous wrote:
>>>
>>>I'd send my records to an excision specialist and get their opinion.
>>>What part of the country are you in? You can join the doctor
>>>recomendation board, it's connected with erc.activboard.com/
>>>
>>>Progesterone might help, see johnleemd.com, with symptoms while you
>>>decide what to do.
>>>
>>>Your doctor doesn't really know how to treat endo, though. For that,
>>>you need an endo expert.
>>>
>>>for diet changes, see endo-resolved.com and endometriosis.org
>>>
>>>At Mon, 27 Apr 2009, Roxann wrote:
>>>>
>>>>Has anyone gone off norethindrone and what has it been like? I have been
>>>>on it since 2006 after a lap with Lupron and add-back but I don't want
>>>>to take it anymore. My doc tells me I will be making a mistake but I am
>>>>at a point where I want to try some other alternatives. I currently
>>>>take 10mg/day. I just want to have something to back myself up with
>>>>when I go for my next visit in May.
>>>>
>>>>--
>>>>Roxann
>>>>
>>--
>>Roxann
>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)