Re: Treatment with Norethindrone
From: anonymous (anonymous@obgyn.net)
Mon Apr 27 16:48:17 2009
You really need an endo expert, not just a doctor as you described. The
nice things are incidental. You need one with expertise in this rare
field.
They have a doc recommendations section on erc.activboard./
I believe there's one in Milwaukee (Dr Koh?) and Pittsburgh (not sure of
the name). You need one that does endo excision.
I went to these people and they're worth the trip.
centerforendo.com
Re: your last statement, have you had your hormones checked? Dr Phil and
Oprah have just had segments on these issues for women, with info about
testing and compounding pharmacies.
At Mon, 27 Apr 2009, Roxann wrote:
>
>I am in Chicago. My doctor seems highly regarded but I am looking for
>someone not so tunnel-visioned. I would like a doctor that takes the
>patient's opinion into consideration. My symptoms were bad before but I
>know it is not half as bad as for some women so I am willing to take a
>chance and see how long I can go before they come back. I just haven't
>felt myself since starting this course of treatment. I am fat and
>fatigued and not enthused about life.
>
>At Mon, 27 Apr 2009, anonymous wrote:
>>
>>I'd send my records to an excision specialist and get their opinion.
>>What part of the country are you in? You can join the doctor
>>recomendation board, it's connected with erc.activboard.com/
>>
>>Progesterone might help, see johnleemd.com, with symptoms while you
>>decide what to do.
>>
>>Your doctor doesn't really know how to treat endo, though. For that,
>>you need an endo expert.
>>
>>for diet changes, see endo-resolved.com and endometriosis.org
>>
>>At Mon, 27 Apr 2009, Roxann wrote:
>>>
>>>Has anyone gone off norethindrone and what has it been like? I have been
>>>on it since 2006 after a lap with Lupron and add-back but I don't want
>>>to take it anymore. My doc tells me I will be making a mistake but I am
>>>at a point where I want to try some other alternatives. I currently
>>>take 10mg/day. I just want to have something to back myself up with
>>>when I go for my next visit in May.
>>>
>>>--
>>>Roxann
>>>
>--
>Roxann
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)