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Re: ALL RESPONSES ARE VALID - NOT THE NASTY, ILLMANNERED AND UNKIND
From: anonymous (anonymous@obgyn.net)
Mon Apr 27 01:25:59 2009
The person who makes up the whacky names and belittles people who use
Lupron should not be allowed to do so. If you're new here, you won't
get that other people are nice and helpful and will explain the problems
of Lupron in a nice way. The person who hates Lupron gets a weird
satisfaction from belittling people and that should not be allowed.
At Sun, 26 Apr 2009, Nancy wrote:
>
>I have never addressed a moderator here but it's absolutely wrong to
>censor someone's posting just because you don't like the content.
>
>It's a known fact that Lupron hurts lots and lots of women and the
>medical profession's incorrect reliance upon it as a treatment option
>only hinders the progress that could be made, worldwide, to eradicate
>Endometriosis as we know it.
>
>All responses here are valid.
>
>If any of us doesn't like a particular response, we should just not read
>it. But to go crying like a little baby for the moderator is
>ridiculous.
>
>At Sun, 26 Apr 2009, anonymous wrote:
>>
>>At Sun, 26 Apr 2009, Dumbfounded-By-Dumb-Actions wrote:
>>>
>>>WHY WOULD ANYONE WILLINGLY SUBJECT HERSELF TO THE POISON -- LUPRON --
>>>WHEN ALL IT DOES IS ENRICH GREEDY DOCTORS AND PROLONG AN ENDO PATIENT'S
>>>AGONY???
>>>
>>>Like sheep to slaughter they line up to take it, when all they really
>>>have to do is use "Google."
>>>
>>>At Sun, 26 Apr 2009, anonymous wrote:
>>>>
>>>>DO NOT have surgery with THIS doctor!! I think all or almost all endo
>>>>experts DO NOT use lupron!
>>>>
>>>>Have you looked into excision surgery, with an expert? Most ob/gyns do
>>>>not know how to remove endo in the right ways...or even where to find it
>>>>or identify it!
>>>>
>>>>centerforendo.com
>>>>
>>>>endometriosissurgeon.com
>>>>
>>>>endoexcision.com
>>>>
>>>>pelvicpain.com
>>>>
>>>>erc.activboard.com/
>>>>
>>>>there might be one closer to you, what part of the country are you in?
>>>>
>>>>At Sat, 25 Apr 2009, Heather wrote:
>>>>>
>>>>>At Wed, 27 Jul 2005, Tia wrote:
>>>>>>
>>>>>>yes Jill!!!
>>>>>>I totally know what you are going through I was myself. I was really
>>>>>>sick!!! I still have bouts of the dizziness and nausea (in the morning).
>>>>>>The hot flashes and night/cold sweats are still here and are keeping me
>>>>>>from sleeping.
>>>>>>I have been off a little over a month now.
>>>>>>
>>>>>>You are right, Dr's do not understand. It makes the body do crazy
>>>>>>things and every woman is different. I have found that sleeping as much
>>>>>>as possible helps. I got some pain pills because I am still having
>>>>>>back/spine pain and aching. I have had to lave work because of
>>>>>>dizziness and feeling sick to my stomach (both ways). My job was in
>>>>>>jeopardy a few times while on this drug becasue it made me so sick.
>>>>>>I have had little relief as well. I just sleep, drink a lot of water,
>>>>>>and take acidophilis pills (for reoccurent yeast infections and better
>>>>>>digestion so I don't get the stomach pains).
>>>>>>Chamomile tea helps before bed because it's soothing and helps with the
>>>>>>nausea. As well as peppermint tea.
>>>>>>I wish there was more I could offer you.
>>>>>>please feel free to email me if you want to talk more about your
>>>>>>symptoms. I am interested in hearing more.
>>>>>>Tia
>>>>>>notice@hartford.edu
>>>>>>
>>>>>>At Wed, 27 Jul 2005, Jill wrote:
>>>>>>>
>>>>>>>Hi All,
>>>>>>>
>>>>>>>I am about two weeks off Luron and feel horrible. I am SO dizzy that I
>>>>>>>can hardly walk a straight line. I'm nauseated, and am having cold
>>>>>>>sweats and hot flashes which are ten times worse than any I had when in
>>>>>>>the middle of the Lupron treatments. Has anyone else experienced
>>>>>>>anything like this while coming off Lupron? I feel so sick and I'm
>>>>>>>scared. This is just so extreme. I drove to work this morning and
>>>>>>>don't think I should have been on the road.
>>>>>>>
>>>>>>>If you have any helpful info/suggestions, I would really appreciate it.
>>>>>>>I don't know what to do. I have a call into my OBGYN, but she never
>>>>>>>seesm to think that Lupron has anything to do with my pain/symptoms. I
>>>>>>>think Docs just don't know what it's like to be on this drug.
>>>>>>>
>>>>>>>Please help if you can.
>>>>>>>
>>>>>>>Thanks!
>>>>>>>Jill
>>>>>>>
>>>>>>>--
>>>>>>>Jill
>>>>>>>
>>>>>--
>>>>>I am so glad to have had a friend show me this website, I almost fell into the wall the other day, I bent over to pet a dog and then when I stood up went falling across the room, it was really strange, I had no balance?
>>>>>Are there any other pointers you can give me as to what to expect? I have had pretty much the same symptoms as you and it has not been fun. Now after having this shot for 3 months the dr. has decided to do surgery? I don't understand the point of the last 3 months other than to screw up
>>>>>my hormones, today was an emotional day and it was for no apparent reason?
>>>>>
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