ALL RESPONSES ARE VALID
From: Nancy (anonymous@obgyn.net)
Sun Apr 26 17:26:47 2009
I have never addressed a moderator here but it's absolutely wrong to
censor someone's posting just because you don't like the content.
It's a known fact that Lupron hurts lots and lots of women and the
medical profession's incorrect reliance upon it as a treatment option
only hinders the progress that could be made, worldwide, to eradicate
Endometriosis as we know it.
All responses here are valid.
If any of us doesn't like a particular response, we should just not read
it. But to go crying like a little baby for the moderator is
ridiculous.
At Sun, 26 Apr 2009, anonymous wrote:
>
>At Sun, 26 Apr 2009, Dumbfounded-By-Dumb-Actions wrote:
>>
>>WHY WOULD ANYONE WILLINGLY SUBJECT HERSELF TO THE POISON -- LUPRON --
>>WHEN ALL IT DOES IS ENRICH GREEDY DOCTORS AND PROLONG AN ENDO PATIENT'S
>>AGONY???
>>
>>Like sheep to slaughter they line up to take it, when all they really
>>have to do is use "Google."
>>
>>At Sun, 26 Apr 2009, anonymous wrote:
>>>
>>>DO NOT have surgery with THIS doctor!! I think all or almost all endo
>>>experts DO NOT use lupron!
>>>
>>>Have you looked into excision surgery, with an expert? Most ob/gyns do
>>>not know how to remove endo in the right ways...or even where to find it
>>>or identify it!
>>>
>>>centerforendo.com
>>>
>>>endometriosissurgeon.com
>>>
>>>endoexcision.com
>>>
>>>pelvicpain.com
>>>
>>>erc.activboard.com/
>>>
>>>there might be one closer to you, what part of the country are you in?
>>>
>>>At Sat, 25 Apr 2009, Heather wrote:
>>>>
>>>>At Wed, 27 Jul 2005, Tia wrote:
>>>>>
>>>>>yes Jill!!!
>>>>>I totally know what you are going through I was myself. I was really
>>>>>sick!!! I still have bouts of the dizziness and nausea (in the morning).
>>>>>The hot flashes and night/cold sweats are still here and are keeping me
>>>>>from sleeping.
>>>>>I have been off a little over a month now.
>>>>>
>>>>>You are right, Dr's do not understand. It makes the body do crazy
>>>>>things and every woman is different. I have found that sleeping as much
>>>>>as possible helps. I got some pain pills because I am still having
>>>>>back/spine pain and aching. I have had to lave work because of
>>>>>dizziness and feeling sick to my stomach (both ways). My job was in
>>>>>jeopardy a few times while on this drug becasue it made me so sick.
>>>>>I have had little relief as well. I just sleep, drink a lot of water,
>>>>>and take acidophilis pills (for reoccurent yeast infections and better
>>>>>digestion so I don't get the stomach pains).
>>>>>Chamomile tea helps before bed because it's soothing and helps with the
>>>>>nausea. As well as peppermint tea.
>>>>>I wish there was more I could offer you.
>>>>>please feel free to email me if you want to talk more about your
>>>>>symptoms. I am interested in hearing more.
>>>>>Tia
>>>>>notice@hartford.edu
>>>>>
>>>>>At Wed, 27 Jul 2005, Jill wrote:
>>>>>>
>>>>>>Hi All,
>>>>>>
>>>>>>I am about two weeks off Luron and feel horrible. I am SO dizzy that I
>>>>>>can hardly walk a straight line. I'm nauseated, and am having cold
>>>>>>sweats and hot flashes which are ten times worse than any I had when in
>>>>>>the middle of the Lupron treatments. Has anyone else experienced
>>>>>>anything like this while coming off Lupron? I feel so sick and I'm
>>>>>>scared. This is just so extreme. I drove to work this morning and
>>>>>>don't think I should have been on the road.
>>>>>>
>>>>>>If you have any helpful info/suggestions, I would really appreciate it.
>>>>>>I don't know what to do. I have a call into my OBGYN, but she never
>>>>>>seesm to think that Lupron has anything to do with my pain/symptoms. I
>>>>>>think Docs just don't know what it's like to be on this drug.
>>>>>>
>>>>>>Please help if you can.
>>>>>>
>>>>>>Thanks!
>>>>>>Jill
>>>>>>
>>>>>>--
>>>>>>Jill
>>>>>>
>>>>--
>>>>I am so glad to have had a friend show me this website, I almost fell into the wall the other day, I bent over to pet a dog and then when I stood up went falling across the room, it was really strange, I had no balance?
>>>>Are there any other pointers you can give me as to what to expect? I have had pretty much the same symptoms as you and it has not been fun. Now after having this shot for 3 months the dr. has decided to do surgery? I don't understand the point of the last 3 months other than to screw up
>>>>my hormones, today was an emotional day and it was for no apparent reason?
>>>>
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