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Re: Proctalgia Fugax
From: anonymous (anonymous@obgyn.net)
Tue Mar 31 21:50:21 2009
If you have endo in the cul-de-sac (between rectum and vagina) you can
have it removed by an excision specialist and you can have relief!
I really really suggest you contact someone like the CEC
centerforendo.com or Dr Redwine endometriosissurgeon.com
At Tue, 31 Mar 2009, anonymous wrote:
>
>I have had severe pain exactly as you described it. I vomit, sweat etc
>from the pain. It is brought on by sex, sometimes even the thought of
>sex, bowel movement or just for the hell of it it comes on out of no
>where. I have kept a log of food etc, to no avail. I find that if I am
>dehydrated it comes on. I have tried, advil, hot bath , over the lumbar
>area of my back, vibration, TENS electric stimulation to my lower back
>and all had some calming effect, but not any more. It was silent for a
>while after I started consistently with Yoga, but the pain is now coming
>more often, but less intense. I have found that i take 2 advil and
>stretch in a 1/2 kneeling position, the pain subsides. I believe the
>pain is coming from lumbar area, as I started with this muscle spasm the
>same time I had my first bout of siatic pain. Whether is is nerve
>problem induced or straight muscle spasm I do not know. I hope this
>helps.
>At Sun, 19 Jun 2005, anonymous@obgyn.net wrote:
>>
>>At Mon, 20 Dec 2004, Lisa wrote:
>>>
>>>Thank God, thank God I found you guys. I've suffered for my entire
>>>adult life with this nameless condition and I finally found it tonight
>>>here.
>>>
>>>It's horrible to wake up in the middle of the night with a pain so
>>>intense you think you're dying. I've walked the floors, paced, prayed,
>>>cried, begged, passed out. Oh, occasionally it might happen in the
>>>middle of the day, but it almost invariably is a night thing. After I
>>>get an attack, the whole next day I'm lifeless and weak.
>>>
>>>A gastroenterologist I consulted about 8 years ago ran the whole gamut
>>>of tests, internal and external, and could find nothing wrong with me.
>>>He looked at me like I was off my nut when I told him it felt like
>>>someone doing a procto exam with their fist. He finally gave a
>>>frustrated diagnosis of "possibly spastic colon" and put me on a 40
>>>grams of fiber a day regimen! Oh, I followed it for a while, at least
>>>till there was no hide left on my poor raw behind, then I dropped back
>>>to a reasonable amount when not even the fiber stopped the pain. After
>>>all, I've always eaten healthy, and I have no problem with either
>>>diarrhea or constipation.
>>>
>>>So I've lived with this for years, scared he missed something, scared it
>>>could be colon cancer or some other horrible life-threatening illness.
>>>After all, what else could hurt so bad? But tests are expensive, and
>>>even though you don't want to hear you've got something wrong, it's just
>>>as frustrating for you to hear that they can't find anything. You pay
>>>off all those medical bills over the next several months feeling like an
>>>idiot, and it makes you even more inclined not to go back and get more
>>>in debt for nothing.
>>>
>>>All I can say is that if I could reach inside and touch the pain, it
>>>would be a few inches inside the colon. Sometimes it feels almost like
>>>hard period cramps, and it radiates into my tailbone and into my female
>>>organs too. The pain is always, though, centrally in the colorectal
>>>area. I just wish I could reach in and massage away the hurt, but
>>>instead all I can do is pray it's a short spasm and not a long drawn-out
>>>one. I've even had to lay off from work or go in late the next day I'd
>>>be so wrung-out from wrestling with the pain.
>>>
>>>I'm just curious to hear what everyone else does that actually gives
>>>relief. The only medicine I've ever gotten any relief with is plain old
>>>aspirin. Tylenol and other NSAIDS don't seem to bring any, and I'm not
>>>sure if the aspirin actually works or if the pain is subsiding on its
>>>own. At any rate, the time it takes for anything to kick in is an
>>>agonizing wait.
>>>
>>>Anyway, thanks for making your website available to women like me who
>>>have tried everything else and just need to find some common ground.
>>>Maybe I'll get a little better educated from the others on here who have
>>>learned to live with this most bizarre disorder.
>>
>>--
>>Try moist heat. I have had proctalgia for many years and have tried everything imagninable to relieve the pain because it is so intense, even a swig of whisky...and I rarely dring any alchoho...but I was desperate. Then finally I discovered that moist heat relieves the pain very quickly. Many internet resources say to fill a tub with hot water and sit in it. However, by the time you do that the pain is beginning to subside on its own. I heat a moist towel in the microwave and then wrap it in another towel, or in a plastic bag with another towel around it. The moist heat helps the pain to go away much faster than anything I have ever tried.
>>
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